Munyori: Marcus Baldwin
Zuva Rekusika: 17 Chikumi 2021
Gadziridza Zuva: 20 Mbudzi 2024
Anonim
Use of Stiripentol in Dravet Syndrome with Dr. Ben Menachem,
Vhidhiyo: Use of Stiripentol in Dravet Syndrome with Dr. Ben Menachem,

Zvemukati

Stiripentol inoshandiswa pamwe neclobazam (Onfi®) kudzora kubatwa muvakuru nevana vana makore maviri ekuberekwa uye vane Dravet syndrome (chirwere chinotanga muhudiki uye chinokonzeresa uye gare gare chinogona kukonzera kukurumidza kunonoka uye shanduko mukudya, kuenzanisa, uye kufamba). Stiripentol iri mukirasi yemishonga inonzi anticonvulsants. Inoshanda nekudzora kusanzwisisika kwekunakidzwa chiitiko muuropi.

Stiripentol inouya se capsule uye poda yemuromo yekumiswa kutora nemuromo. Inowanzo kutorwa kaviri kana katatu pazuva panguva yekudya. Tora stiripentol panguva dzakatenderedza nguva imwechete mazuva ese. Tevedza zvinongedzo pane yako tsamba yekunyora zvakanyatsonaka, uye bvunza chiremba wako kana wemishonga kuti atsanangure chero chikamu chausinganzwisise. Tora stiripentol chaizvo sezvakarairwa. Usatore zvimwe kana zvishoma nezvayo kana kuitora kakawanda pane zvakatemwa nachiremba wako.

Medza macapsule akazara negirazi remvura; usatyora kana kuvhura.

Kana iwe uri kutora upfu, unofanirwa kuusanganisa nemvura pakarepo usati wautora. Chiremba anokuudza iwe mangani mapakeji eipiripentol poda yekushandisa uye kuti yakawanda sei mvura yekuisanganisa nayo. Ngwarira kuverenga rairo yemugadziri iyo inotsanangura maitiro ekusanganisa uye kutora muyero weiripipentol. Ive neshuwa yekubvunza wako wemishonga kana chiremba kana iwe uine chero mibvunzo nezve nzira yekusanganisa kana kutora mushonga uyu.


Stiripentol inodzora mamiriro ako asi hairape. Ramba uchitora stiripentol kunyangwe iwe uchinzwa zvakanaka. Usarega kutora stiripentol usingatauri nachiremba wako, kunyange kana iwe ukava nemigumisiro yakadai sekushanduka kusingawanzoitiki mumaitiro kana mafungiro. Kana iwe ukangoerekana warega kutora stiripentol, kubata kwako kunogona kuwedzera. Chiremba wako angangoderedza dhizaini yako zvishoma nezvishoma.

Chiremba wako kana wemishonga achakupa iro gadziriro yeruzivo yemurwere (Gwaro RezveMishonga) paunotanga kurapwa neipiripentol uye pese paunozadza mushonga wako. Verenga iwo ruzivo nokungwarira uye bvunza chiremba wako kana wemishonga kana iwe uine chero mibvunzo. Iwe unogona zvakare kushanyira Chikafu neDrug Administration (FDA) webhusaiti (http://www.fda.gov/Drugs/DrugSafety/ucm085729.htm) kana webhusaiti yemugadziri kuti utore Gwaro reMishonga.

Mushonga uyu unogona kupihwa zvimwe zvinoshandiswa; bvunza chiremba wako kana wemishonga kuti uwane rumwe ruzivo.

Usati watora stiripentol,

  • udza chiremba wako uye wemishonga kana iwe uri weergoria kune stiripentol, chero mimwe mishonga, kana chero chipi zvacho chemushonga mune stiripentol capsules kana mukanwa poda yekumiswa. Kumbira wemishonga wako kana tarisa Gwaro Rekurapa kuti uwane runyorwa rwezvigadzirwa.
  • udza chiremba wako uye wemishonga kuti ndeipi imwe mishonga yekunyorera uye isina kunyoreswa, mavitamini, zvinowedzera zvinovaka muviri, uye mishonga yemakwenzi yauri kutora kana kuronga kutora. Ive neshuwa yekutaura chero eanotevera: caffeine kana mishonga ine caffeine (Cafcit, Excedrin, muCafergot, mamwe); carbamazepine (Carbatrol, Epitol, Equetro, Tegretol, Teril); clopidogrel (Plavix); diazepam (Valium); glyburide (Diabeta, Glynase); methotrexate (Otrexup, Rasuvo, Xatmep); midazolam (Seizalam); phenobarbital; phenytoin (Dilantin, Phenytek); prazosin (Minipress); quinidine (muNuedexta); rifampin (Rifadin, Rimactane, muRifamate, muRifater); sedatives, kurara mapiritsi, kana tranquilizers; sertraline (Zoloft); theophylline (Elixophyllin, Theo-24, Theochron); thiotepa (Tepadina); kana triazolam (Halcion). Chiremba wako angangoda kushandura madosi emishonga yako kana kukutarisisa nokungwarira mhedzisiro. Mimwe mishonga yakawanda inogona zvakare kubatana nepripipentol, saka ive shuwa kuudza chiremba wako nezve yese mishonga yauri kutora, kunyangwe iyo isingaonekwe pane ino runyorwa.
  • taurirawo chiremba wako kana iwe wakambove nekuora mwoyo, matambudziko emanzwiro, kana pfungwa dzekuzviuraya kana hunhu kana itsvo kana chirwere chechiropa.
  • udza chiremba wako kana iwe uri nepamuviri, ronga kuve nepamuviri, kana uri kuyamwisa. Kana iwe ukava nepamuviri uchitora stiripentol, danaidza chiremba wako.
  • iwe unofanirwa kuziva kuti stiripentol inogona kukuita dzungu kana kukotsira uye inogona kukanganisa kubatana kwako. Usatyaire mota kana kushandisa michina kusvikira iwe waziva kuti uyu mushonga unokubata sei.
  • bvunza chiremba wako nezve kushandiswa kwakachengeteka kwezvinwiwa zvinodhaka paunenge uchitora stiripentol. Doro rinogona kuita kuti mhedzisiro kubva kuipuripentol iwedzere.
  • kana iwe uine phenylketonuria (PKU, chinzvimbo chakagarwa nhaka umo chikafu chakasarudzika chinofanira kuteverwa kudzivirira kudzora kwepfungwa), iwe unofanirwa kuziva kuti stiripentol poda yemukanwa inotapira neaspartame inoumba phenylalanine.
  • iwe unofanirwa kuziva kuti hutano hwako hwepfungwa hunogona kuchinja nenzira dzisingatarisirwi uye unogona kuzviuraya (kufunga nezvekuzvikuvadza kana kuzviuraya kana kuronga kana kuyedza kuzviita) paunenge uchitora stiripentol. Chiverengero chidiki chevakuru uye vana vane makore mashanu ekuberekwa uye kupfuura (vangangoita 1 muvanhu mazana mashanu) vakatora anticonvulsants, senge stiripentol, kurapa akasiyana mamiriro panguva yekiriniki yekudzidzira kuzviuraya panguva yekurapa kwavo. Vamwe vevanhu ava vakaita pfungwa dzekuzviuraya pamwe nehunhu pakutanga kwevhiki rimwe chete vatanga kutora mushonga. Iwe nachiremba wako muchasarudza kana njodzi dzekutora mushonga weanticonvulsant dzakakura kudarika njodzi dzekusatora mushonga. Iwe, mhuri yako, kana mutarisiri wako unofanirwa kufonera chiremba wako ipapo kana iwe ukawana chero cheanotevera zviratidzo: kuvhunduka kwekutya; kusagadzikana kana kusagadzikana; kutsva kana kuwedzera kutsamwa, kushushikana, kana kushushikana; kuita zvishuvo zvine ngozi; kunetseka kudonha kana kuramba wakarara; hasha, hasha, kana kuita zvechisimba; mania (kupenga, kusanzwisisika zvisingaite); kufunga nezvekukuvadza kana kuzviuraya iwe, kana kuronga kana kuyedza kuzviita; kana chero imwe shanduko isina kujairika mumaitiro kana manzwiro. Iva nechokwadi chekuti mhuri yako kana muchengeti anoziva kuti ndezvipi zviratidzo zvingave zvakakomba saka vanogona kufonera chiremba kana iwe usingakwanise kutsvaga kurapwa iwe wega.

Kunze kwekunge chiremba wako akakuudza neimwe nzira, ramba uchidya zvakajairika.


Tora dosi rakarasika nekukurumidza kana uchinge warangarira. Zvisinei, kana yava nguva yenguva inotevera, svetuka chirwere chakarasika uye ramba uchiita purogiramu yako yenguva dzose. Usatore dosi yakapetwa kaviri kuti uwane imwe yakarasika.

Stiripentol inogona kukonzera mhedzisiro. Udza chiremba wako kana chimwe chezviratidzo izvi chakanyanya kana kuti chisingaendi:

  • hope
  • kuneta
  • matambudziko nekubatana
  • kuzunza kusingadzoreki nhengo yemuviri
  • kurasikirwa kwemhasuru toni
  • kuoma kutaura
  • kumedza mate
  • kusvotwa
  • kurutsa
  • shanduko mukurema
  • kurwadza kwemajoini

Mimwe mhedzisiro inogona kuve yakakomba. Kana iwe ukasangana nechimwe cheizvi zviratidzo, danaidza chiremba wako nekukasira:

  • kukosora, kurwadziwa pahuro, fivha, kutonhora, kana zvimwe zviratidzo zvehutachiona
  • kupwanya kusingawanzo kana kubuda ropa
  • ropa mune weti kana zvigaro

Stiripentol inogona kukonzera kurasikirwa kwechido uye kurasikirwa nekurema. Kana iwe ukaona kuti mwana wako ari kurasikirwa uremu, dana chiremba wako.Chiremba wako anozotarisa kukura kwemwana wako zvakanaka. Taura nachiremba wako kana iwe uine zvinetsekana nezve kukura kwemwana wako kana huremu paanenge achitora mushonga uyu.


Stiripentol inogona kukonzera mamwe mhedzisiro. Fonera chiremba wako kana uine chero matambudziko asina kujairika uchitora mushonga uyu.

Kana iwe ukawana chakakomba mhedzisiro, iwe kana chiremba wako ungatumira chirevo kuchirongwa cheKudya neDrug Administration's (FDA) MedWatch Yakashata Chiitiko Chirongwa online (http://www.fda.gov/Safety/MedWatch) kana nefoni ( 1-800-332-1088).

Chengetedza iyi mishonga mumudziyo iyo yakauya mukati, yakasungwa yakavharwa, uye isingasvike kune vana. Zvichengetedze pane tembiricha yemukati uye kure ne {mwenje,} kupisa kwakanyanya uye hunyoro (kwete mubathroom)

Izvo zvakakosha kuti chengetedza mishonga yese isingaonekwe uye kusvika kwevana semidziyo yakawanda (senge vhiki nevhiki mapiritsi epfungwa uye ayo emadonhwe eziso, makirimu, zvigamba, uye inhalers) hazvirambe vana uye vana vadiki vanogona kuvhura zviri nyore. Kuchengetedza vana vadiki kubva kune chepfu, gara wakavharira makapu ekuchengetedza uye nekukurumidza isa mishonga munzvimbo yakachengeteka - imwe iri kumusoro uye kure uye kubva kwavari uye kusvika. http://www.upandaway.org

Mishonga isingadiwe inofanirwa kuraswa nenzira dzakakosha kuona kuti zvipfuyo, vana, nevamwe vanhu havagone kuzvidya. Nekudaro, iwe haufanire kuburitsa uyu mushonga pasi pechimbuzi. Panzvimbo iyoyo, nzira yakanakisa yekurasa mishonga yako ndeyekurapa-kudzosa chirongwa. Taura nachiremba wako kana kuti taura nedhipatimendi rako remarara / rekudzokorora kuti udzidze nezve zvirongwa zvekudzosa munharaunda yako. Ona iyo FDA's Safe Disposal yeMedicine webhusaiti (http://goo.gl/c4Rm4p) kuti uwane rumwe ruzivo kana iwe usina mukana wekutora-kudzoka chirongwa.

Kana zvikaitika zvekudarika, fonera iyo chepfu yekudzora rubatsiro pa1-800-222-1222. Ruzivo rwunowanikwawo online pa https://www.poisonhelp.org/help. Kana munhu akabatwa akadonha, akabatwa nepfari, achinetseka kufema, kana kutadza kumutswa, pakarepo danaidza mabasa ekukurumidzira pa911.

Chengetedza zvese zvakagadzwa nachiremba wako uye murabhoritari. Chiremba wako acharaira mamwe marabhoritari kuti aongorore mhinduro yemuviri wako kuStiripentol.

Izvo zvakakosha kuti iwe uchengete yakanyorwa rondedzero yeese emushonga uye asiri ekunyora (pamusoro-e-pikisheni) mishonga yauri kutora, pamwe nezvimwe zvigadzirwa zvakaita sevhitamini, zvicherwa, kana zvimwe zvekuwedzera zvekudya. Iwe unofanirwa kuuya nerondedzero iyi iwe nguva imwe neimwe paunoshanyira chiremba kana kana iwe uchigamuchirwa kuchipatara. Izvo zvakare zvakakosha ruzivo kutakura newe kana zvikaitika zvechimbi-chimbi.

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