Matipi angu ekuzvimiririra neAnkylosing Spondylitis

Zvemukati

• Zvidzidzise pamusoro pemamiriro acho
• Nyatsotaura neshamwari uye nemhuri
• Chinja nharaunda yako
• Tora woenda nazvo

Isu tinosanganisira zvigadzirwa zvatinofunga zvinobatsira kuvaverengi vedu. Kana iwe ukatenga kuburikidza nehukama pane ino peji, isu tinogona kuwana diki komisheni. Heano maitiro edu.

Pandakatanga kuenda kuna chiremba kuti nditaure nezvezviratidzo zvinorwadza zvandakanga ndiri kusangana nazvo, ndakaudzwa kuti kwaingova "kusangana nekushatirwa." Asi ini ndairwadziwa zvakanyanya. Mabasa ezuva nezuva aive akaomesesa, uye ini ndakanga ndarasikirwa nechishuwo chekushamwaridzana. Uye kuita kuti zvinhu zvinyanye kutonyanya, zvakanzwa kunge hapana munhu ainyatsonzwisisa kana kutenda zvandaive ndichitarisana nazvo.

Zvakatora makore ndisati ndazonyengerera chiremba kuti aongororezve zviratidzo zvangu. Panguva iyoyo, vaive vatowedzera. Ini ndanga ndave nemarwadzo ekumusana, kurwadziwa kwemajoini, kuneta kusingaperi, uye nenyaya dzekugaya. Chiremba akangondipa zano rekuti ndidye zvirinani uye ndishike muviri zvakanyanya. Asi panguva ino, ndakaratidzira. Nguva pfupi yapfuura, ini ndakawanikwa ndine ankylosing spondylitis (AS).

Ini ndangobva kunyora chinyorwa nezve chiitiko changu chekugara neAS. Muchidimbu, chinozove chikamu cheanthology inonzi "Ipise Pasi," ndinovhura pamusoro pehasha dzandainzwa pandakatanga kubatwa ndiine chirwere ichi. Ndakanga ndakatsamwira vanachiremba vaiita sevanodzora kukomba kwezviratidzo zvangu, ndaive ndakatsamwa kuti ndaifanirwa kuenda kuchikoro chekupedza kurwadziwa, uye ndaive ndakatsamwira shamwari dzangu dzaisanzwisisa.

Kunyangwe kuenda kunoongororwa kwanga kuri rwendo rwakaoma, matambudziko makuru andakatarisana nawo munzira akandidzidzisa kukosha kwekuzvimiririra kushamwari, mhuri, vanachiremba, uye chero munhu anoda kuteerera.

Hezvino zvandadzidza.

Zvidzidzise pamusoro pemamiriro acho

Nepo vanachiremba vachiziva, zvakakosha kuti uverenge pamamiriro ako ezvinhu kuti unzwe kugoneswa kubvunza chiremba wako mibvunzo uye kuve nechekuita mukutora sarudzo kwehurongwa hwako hwekutarisira.

Ratidza kuhofisi yechiremba wako nechombo chemashoko. Semuenzaniso, tanga kuongorora zviratidzo zvako nekuzvinyora pasi mukabhuku kana muApple Notes pane yako smartphone. Zvakare, bvunza vabereki vako nezvenhoroondo yavo yekurapa, kana kana paine chero chinhu mumhuri chaunofanirwa kuziva nezvacho.

Uye, pakupedzisira, gadzirira runyorwa rwemibvunzo yekubvunza chiremba wako. Kunyanya kugadzirira iwe uri wekutanga kusangana, zvirinani kuti chiremba wako azokwanisa kunyatsoongorora uye akupe iwe pakurapwa chaiko.

Pane imwe nguva ndanga ndaita tsvagiridzo yangu paAS, ndakanzwa kuve nechivimbo zvakanyanya kutaura nachiremba wangu. Ndakageza pamusoro pezviratidzo zvangu zvese, uyezve ndakataura kuti baba vangu vane AS. Izvo, mukuwedzera pakurwadziwa kweziso kwakadzokororwa kwandakanga ndichisangana nako (chinetso cheAS chinonzi uveitis), yakayambira chiremba kuti andiedze HLA-B27 - iyo chiratidzo chemagene chakabatana neAS.

Nyatsotaura neshamwari uye nemhuri

Zvinogona kuva zvakaoma chaizvo kune vamwe kuti vanzwisise zvauri kutarisana nazvo. Marwadzo chinhu chakanyatsojeka uye chega chinhu. Chiitiko chako nekurwadziwa chinogona kunge chakasiyana neicho chinotevera chemunhu, kunyanya kana vasina AS.

Paunenge uine chirwere chekuzvimba senge AS, zviratidzo zvinogona kuchinja mazuva ese. Rimwe zuva unogona kuzara nesimba uye rinotevera iwe wakaneta uye usingakwanise kana kugeza.

Ehe, kukwira nekudzika kwakadaro kunogona kuvhiringidza vanhu nezve mamiriro ako. Ivo zvakare vangangobvunza kuti ungarwara sei kana iwe uchitaridzika uine hutano kunze.

Kuti ndibatsire vamwe kuti vanzwisise, ndichawedzera marwadzo andiri kunzwa pachikero kubva pa1 kusvika 10. Kukwidziridzwa kwenhamba, kwakanyanya kurwadziwa. Zvakare, kana ndakaita zvirongwa zvemagariro zvandinofanira kukanzura, kana kana ndichida kusiya chiitiko nguva isati yakwana, ndinogara ndichiudza shamwari dzangu kuti imhaka yekuti handisi kunzwa mushe uye kwete nekuti ndine nguva yakaipa. Ndinovaudza kuti ndinoda kuti varambe vachikoka ini, asi kuti ini ndinoda ivo kuti vagone kuchinjika dzimwe nguva.

Chero ani asina tsitsi kuzvido zvako pamwe haasi mumwe munhu waunoda muhupenyu hwako.

Ehezve, kuzvimiririra pachako kunogona kuve kwakaoma - kunyanya kana iwe uchiri kugadzirisa kune nhau dzekuziva kwako. Mukutarisira kubatsira vamwe, ini ndinoda kugovera ichi chinyorwa nezve mamiriro, zviratidzo zvacho, uye kurapwa kwacho. Ndinovimba, zvinopa muoni kunzwisiswa kwakanaka kwekukanganisa AS kunogona kuva.

Chinja nharaunda yako

Kana iwe uchida kuchinjisa nharaunda yako kuti ikwane zvaunoda, zvadaro. Kubasa, semuenzaniso, kumbira dhesiki rakamira kubva kumaneja wako wehofisi kana varipo. Kana zvisiri, taura nemaneja wako nezve kuwana imwe. Rongedza zvinhu padhesiki rako, kuitira kuti iwe usazoda kusvika kure kune zvinhu zvaunowanzoda.

Paunenge uchironga neshamwari, bvunza kuti nzvimbo yacho ive nzvimbo yakavhurika. Ndinoziva kwandiri, ndakagara mubhawa rakazara nevanhu vane matafura madiki uye kumanikidza nzira yangu kupinda mumapoka evanhu kuenda kubhawa kana kuchimbuzi kunogona kuwedzera zviratidzo (chiuno changu chakasimba! Ouch!).

Tora woenda nazvo

Hupenyu uhu ndehwako hapana mumwe. Kuti urarame yako yakanaka vhezheni yacho, iwe unofanirwa kuzvimiririra iwe pachako. Zvinogona kureva kubuda munzvimbo yako yekunyaradza, asi dzimwe nguva ndizvo zvinhu zvakanakisa zvatinogona kuzviitira izvo zvakaomesesa. Zvinogona kuita sekutyisidzira pakutanga, asi kana iwe uchinge wawana iko kuzvimiririra, kuzvirwira pachako chichava chimwe chezvinhu zvinopa simba zvakanyanya zvawakamboita.

Lisa Marie Basile mudetembi, munyori we "Light Magic yeRima Nguva," uye mupepeti wekutanga weLuna Luna Magazine. Anonyora nezve hutano, kupora kwekutambudzika, kusuruvara, chirwere chisingaperi, uye kurarama nechinangwa. Basa rake rinogona kuwanikwa muThe New York Times uye Sabat Magazine, pamwe neNarratively, Healthline, nezvimwe. Anogona kuwanikwa pa lisamariebasile.com, pamwe ne Instagram ne Twitter.