Kufamba neHemophilia A: Chii Chaunofanira Kuziva Usati Waenda

Zvemukati

• Ita shuwa kuti une inishuwarenzi yekufamba
• Uya nezvinhu zvakakwana
• Rongedza mishonga yako
• Usakanganwa tsamba yako yekufambisa
• Tarisa usati wasvetuka
• Svitsa kunze
• Usatya kukumbira rubatsiro
• Pfeka chinhu chekuzivisa nezvekurapa
• Chengetedza infusions
• Uye zvechokwadi, unakirwe!

Ini ndinonzi Ryanne, uye ndakawanikwa ndiine hemophilia A ndiine mwedzi minomwe yekuzvarwa. Ndakafamba zvakanyanya kuyambuka Canada, uye kusvika padiki padiki, United States. Heano mamwe emazano angu ekufamba nehemophilia A.

Ita shuwa kuti une inishuwarenzi yekufamba

Zvichienderana nekwauri kuenda, zvakakosha kuti uve neinishuwarenzi yekufamba inovhara mamiriro ezvinhu aripo. Vamwe vanhu vane inishuwarenzi kuburikidza nechikoro kana mushandirwi; dzimwe nguva makadhi echikwereti anopa inishuwarenzi yekufamba. Chinhu chikuru ndechekuti vave nechokwadi chekuti vanovhara mamiriro ezvinhu aripo, sehemophilia A. Rwendo rwekuenda kuchipatara kune imwe nyika isina inishuwarenzi runogona kudhura.

Uya nezvinhu zvakakwana

Ita shuwa kuti iwe unounza chakaringana chinhu newe pane ako mafambiro. Chero mhando yechinhu chaunotora, zvakakosha kuti uve nezvamunoda iwe usipo (uye zvimwe zvekuwedzera kuitira kana paine emergency). Izvi zvinoreva zvakare kurongedza tsono dzakaringana, mabhandiji, uye swabs swabs. Isu tese tinoziva kuti mukwende dzimwe nguva unorasika, saka zvakanaka kuti utakure zvinhu izvi uende nazvo mukutakura kwako. Ndege zhinji hadzibhadharise imwe mari yehomwe yekutakura.

Rongedza mishonga yako

Ita shuwa yekurongedza chero mishonga yekunyorera iwe yaunoda mubhodhoro ravo rekutanga repiritsi (uye muhomwe yako yekutakura!). Ive neshuwa yekurongedza zvakakwana kune yako yose rwendo. Ini nemurume wangu tinoseka kuti iwe unongoda pasipoti yako uye mushonga wako kuti ufambe; unogona kutsiva chero chinhu chipi zvacho kana zvichidikanwa!

Usakanganwa tsamba yako yekufambisa

Paunenge uchifamba, zvinogara zvakanaka kuunza tsamba yekufambisa yakanyorwa nachiremba wako. Tsamba yacho inogona kusanganisira ruzivo nezve chinhu chakakomberedzwa chawakatakura, chero mushonga wekurapa waunoda, uye chirongwa chekurapa kana uchida kuenda kuchipatara.

Tarisa usati wasvetuka

Mutemo wakanaka wechigunwe kutarisa kana nzvimbo yauri kuenda ine nzvimbo yekurapa hemophilia munzvimbo iyi. Kana zvirizvo, unogona kubata kiriniki uye uvape misoro kumusoro kuti urikuronga rwendo rwekuguta ravo (kana guta riri padyo). Iwe unogona kuwana rondedzero yehemophilia ekurapa nzvimbo online.

Svitsa kunze

Nharaunda yehemophilia, mune yangu ruzivo, inowanzo kuve yakabatana kwazvo uye inobatsira. Kazhinji, kune mapoka ekutsigira mumaguta makuru aunogona kusvika nekudyidzana nawo pakufamba kwako. Ivo vanogona kukubatsira iwe kufamba munzvimbo yako nyowani. Ivo vangatokarakadza zvimwe zvinokwezva zvemuno!

Usatya kukumbira rubatsiro

Ungave uri kufamba wega kana nemunhu waunoda, usatya kutya kukumbira rubatsiro. Kukumbira rubatsiro nemutoro unorema ungave mutsauko pakati pekunakidzwa nezororo rako, kana kurishandisa mubhedha uine ropa. Ndege zhinji dzinopa mawiricheya uye rubatsiro rwegedhi. Iwe unogona zvakare kukumbira yekuwedzera legroom kana kukumbira yakasarudzika zvigaro kana iwe ukasheedza iyo ndege pamberi penguva.

Pfeka chinhu chekuzivisa nezvekurapa

Chero ani ane chirwere chisingaperi anofanirwa kupfeka bhandi rekurapa kana chishongo nguva dzese (ichi chidimbu chinobatsira kunyangwe iwe usiri kufamba). Kwemakore, makambani mazhinji akabuda nesarudzo dzemhando yepamusoro kuenzanisa hunhu hwako uye mararamiro.

Chengetedza infusions

Ita shuwa iwe unochengeta rekodhi yakanaka yeako infusions iwe paunenge uchifamba. Nenzira iyoyo iwe unozoziva kuti yakawanda sei chinhu chawakatora. Iwe unogona kukurukura chero zvinonetsa nehematologist yako paunodzokera kumba.

Uye zvechokwadi, unakirwe!

Kana iwe wakagadzirira zvakakwana, kufamba kuchave kunonakidza uye kunonakidza (kunyangwe uine chirwere cheropa). Edza kusarega kushushikana kwezvisingazivikanwe kuchimisa iwe kubva parwendo rwako.

Ryanne anoshanda semunyori anoshanda akazvimirira muCalgary, Alberta, Canada. Iye ane blog yakatsaurirwa kusimudzira kuziva kune vakadzi vane chirwere chekubuda ropa chinonzi Hemophilia ndeyeVasikana. Iye zvakare anozvipira kushingaira mukati memharaunda yehemophilia.