Mutengo weKurarama neHepatitis C: Nyaya yaConnie

Zvemukati

• Kugadzirisa kurapwa kwemhedzisiro
• Kumirira kurapwa kutsva kuti kuvepo
• Kubhadhara kutarisira
• Izvo zvinodhura zvekuyedzwa uye kurapwa
• Kurwisa kunyara kwehutachiona

Muna 1992, Connie Welch akavhiyiwa panzvimbo yekurapa varwere muTexas. Aizozoziva kuti akabata hutachiona hwehepatitis C kubva mutsono yakashatiswa aripo.

Asati avhiyiwa, nyanzvi yekuvhiya yakatora sirinji kubva mutirayiti yake yeanesthesia, akazvibaya jekiseni nemushonga waivemo, ndokukwirisa sirinji nemushonga wemunyu usati waidzosera pasi. Pakasvika nguva yekuti Connie anyorwe, akabayiwa jekiseni rimwe chete.

Makore maviri gare gare, akagamuchira tsamba kubva kunzvimbo yekuvhiya: Nyanzvi yakanga yabatwa ichiba zvinhu zvekunyepa kubva mumajekiseni. Akange aongororawo hutachiona hwehepatitis C.

Hepatitis C chirwere chehutachiona chinokonzera kuzvimba kwechiropa uye kukuvara. Mune zvimwe zviitiko zvehutachiona hwakakomba C, vanhu vanogona kurwisa hutachiona vasina kurapwa. Asi muzviitiko zvakawanda, vanogadzira chisingaperi hepatitis C - hutachiona hunogara kwenguva refu hunoda kurapwa nemushonga wehutachiona.

Vanofungidzirwa kuti vanhu vanosvika mamirioni 2.7 kusvika 3.9 muUnited States vane hepatitis C. isingaperi C. Vazhinji havana zviratidzo uye havazive kuti vabata hutachiona. Connie aive mumwe wevanhu ava.

"Chiremba wangu akandisheedza ndokundibvunza kana ndanga ndagamuchira chiziviso nezve izvo zvaitika, ndikati ndazviita, asi ndanga ndichivhiringidzika nazvo," Connie akaudza Healthline. "Ini ndakati, 'Ndingadai ndisina kuziva here kuti ndaive nehepatitis?'"

Chiremba waConnie akamukurudzira kuti aongororwe. Pasi pekutungamira kweye gastroenterologist uye hepatologist, akaedzwa katatu eropa. Nguva imwe neimwe, akaongororwa aine hutachiona hweH hepatitis C.

Aivewo nechiropa chechipfuva. Yakaratidza kuti anga atove nekukuvara kwakapfava kwechiropa kubva kuhutachiona. Hepatitis C hutachiona hunogona kukonzera kukuvara uye kusagadzikana kunogadziriswa kuchiropa, kunozivikanwa se cirrhosis.

Zvinotora makumi maviri emakore, maround matatu ekurapa antiviral, uye zviuru zvemadhora zvakabhadharwa muhomwe kubvisa hutachiona kubva mumuviri wake.

Kugadzirisa kurapwa kwemhedzisiro

Connie paakagamuchirwa kuti aongororwe, paingova nehutachiona humwe chete hwehutachiona hweH hepatitis C hwaivepo. Muna Ndira 1995, akatanga kugamuchira majekiseni e-non-pegylated interferon.

Connie akavandudza "zvakashata kwazvo" mhedzisiro kubva kumushonga. Ainetseka nekuneta zvakanyanya, mhasuru uye majoini maronda, zviratidzo zvemudumbu, uye kurasikirwa nevhudzi.

"Mamwe mazuva anga ari nani kupfuura mamwe," akayeuka, "asi kazhinji kacho, yanga yakaoma."

Zvingave zvakaoma kubata basa renguva yakazara, akadaro. Akange ashanda kwemakore semurapi wekukurumidzira uye wekufema murapi. Asi akange arega nguva pfupi asati aongororwa hepatitis C, aine zvirongwa zvekudzokera kuchikoro uye kuita degree reukoti - zvirongwa zvaakachengeta mushure mekuziva kuti akabata hutachiona.

Zvakanga zvakaoma zvakakwana kuti agadzirise mabasa ake pamba achirarama nemhedzisiro yekurapwa. Paive nemazuva apo zvainge zvakaoma kubuda pamubhedha, ndoda kutaura nezvevana vaviri. Shamwari uye nhengo dzemhuri vakapindira kuti vabatsire kuchengeta vana, mabasa epamba, kutumwa, uye mamwe mabasa.

"Ini ndaive amai venguva yakazara, uye ndakaedza kuita kuti zvese pamba zvive zvakajairika sezvatinogona kuita kwedu, kwevana vedu, kuchikoro, uye nezvese," akarangarira, "asi pane dzimwe nguva ndaifanira kuva nezvimwe batsira. ”

Neraki, iye aisafanira kubhadhara kune imwezve rubatsiro. "Takanga tine shamwari zhinji dzine nyasha uye mhuri iyo yakapindira kuzobatsira, saka pakanga pasina mari yezvemari kunze kweiyo. Ndakafara nazvo. ”

Kumirira kurapwa kutsva kuti kuvepo

Pakutanga, majekiseni eisina pegylated interferon airatidzika kushanda. Asi pakupedzisira, iro rekutanga rekurapa antiviral rakaratidza kusabudirira. Kuverengera kwehutachiona hwaConnie kwakadzokedzana, huwandu hwayo enzyme yechiropa hwakawedzera, uye mhedzisiro yemushonga yakave yakanyanyisa kuenderera.

Pasina imwe nzira yekurapa yaiwanika, Connie aifanira kumirira makore akati wandei asati aedza mushonga mutsva.

Akatanga chikamu chake chechipiri chekurapa antiviral muna2000, achitora musanganiswa we pegylated interferon uye ribavirin iyo yakanga ichangobvumidzwa kune vanhu vane hutachiona hwehepatitis C.

Uku kurapwa hakuna kubudirira.

Zvakare, aifanira kumirira makore asati kurapwa kutsva kwave kuwanikwa.

Makore gumi nemaviri gare gare, mu2012, akatanga kechitatu uye kekupedzisira kurapa antiviral kurapwa. Yaisanganisira mubatanidzwa we pegylated interferon, ribavirin, uye telaprevir (Incivek).

“Paive nemutengo wakawanda waibatanidzwa nekuti kurapwa kwacho kwaitodhura kupfuura kurapwa kwekutanga, kana kurapwa kwekutanga, asi isu taifanira kuita zvataifanira kuita. Ndakakomborerwa zvikuru kuti kurapwa kwakabudirira. ”

Mumavhiki nemwedzi zvichitevera rake rechitatu rekurapa antiviral, kuwongororwa kweropa kwakawanda kwakaratidza kuti aive awana mhinduro yehutachiona yakasimba (SVR). Hutachiona hwacho hwakange hwadzika kusvika pamwero usingaonekwe muropa rake uye ndokuramba usingaonekwe. Akange arapwa hepatitis C.

Kubhadhara kutarisira

Kubva panguva yaakabata hutachiona muna 1992 kusvika panguva yaakarapwa muna 2012, Connie nemhuri yake vakabhadhara zviuru zvemadhora muhomwe kuti vabate hutachiona hweH.

"Kubva 1992 kusvika 2012, iyo yaive makore makumi maviri, uye izvo zvaisanganisira basa rakawanda reropa, maviri chiropa biopsies, mbiri dzakundikana kurapwa, kushanya kwachiremba," akadaro, "saka paive nemari zhinji yaibatanidzwa."

Paakatanga kuziva kuti anogona kunge akabata chirwere chehepatitis C, Connie akave nerombo rakanaka kuva neinishuwarenzi yehutano. Mhuri yake yaive yatenga inishuwarenzi-inotsigirwa nehurongwa hweinishuwarenzi kuburikidza nebasa remurume wake. Kunyange zvakadaro, mari yekunze-kwehomwe "yakatanga kukwirisa" nekukurumidza.

Vakabhadhara madhora mazana matatu nemakumi mashanu pamwedzi mumabhadhariro einishuwarenzi uye vaibvisirwa madhora mazana mashanu pagore, ayo aifanirwa kusangana pamberi pemubatsiri wavo weinishuwarenzi achibatsira kubhadhara mari dzekutarisirwa kwake.

Mushure mekunge arova mari inobviswa pagore, akaenderera mberi nekutarisana nemadhora makumi matatu nemashanu ekubhadhara kopay yekushanya kwega kwega kune nyanzvi. Mumazuva ekutanga ekuongororwa kwake uye kurapwa, akasangana nagastroenterologist kana hepatologist kazhinji kamwe chete pasvondo.

Pane imwe nguva, mhuri yake yakachinja marongero einishuwarenzi, ndokuzoona kuti gastroenterologist yake yakawira kunze kwenzvimbo yavo nyowani yeinishuwarenzi.

"Isu takaudzwa kuti wangu gastroenterologist wazvino aizove ari pachirongwa chitsva, uye zvinobva zvaitika kuti anga asiri. Uye izvo zvaitovhiringidza zvikuru nekuti ndaifanira kutsvaga chiremba mutsva panguva iyoyo, uye nachiremba mutsva, munenge muchida kutanga. ”

Connie akatanga kuona gastroenterologist nyowani, asi haana kugutsikana nekutarisira kwaakapa. Saka akadzokera kuna nyanzvi yake yapfuura. Aifanira kubhadhara muhomwe kuti amushanyire, kudzamara mhuri yake yagona kushandura zvirongwa zveinishuwarenzi zvekumudzosa kunetiweki yekuvhara.

"Aiziva kuti taive munguva yeinishuwarenzi yaizomubhadhara," akadaro, "saka akatipa mutengo wakaderera."

"Ndiri kuda kutaura kuti imwe nguva haana kana kundibhadharira imwe yekushanya kuhofisi," akaenderera mberi, "uyezve mamwe acho mushure maizvozvo, akangondichaja zvandaizobhadhara pacopay."

Izvo zvinodhura zvekuyedzwa uye kurapwa

Pamusoro pekubhadhara macopay kushanya kwachiremba, Connie nemhuri yake vaifanira kubhadhara zvikamu gumi nezvishanu kubva muzana zvebvunzo pakuyedza kwese kwachiremba kwaanowana.

Aifanirwa kuongororwa ropa kare, panguva, uye mushure mekurapa kwehutachiona. Akaenderera mberi nekuita basa reropa rakaitwa kamwe chete pagore kwemakore mashanu mushure mekuwana SVR. Zvichienderana nematanho akange aripo, akabhadhara madhora makumi matatu nemashanu kusvika kumadhora zana pabasa rega rega reropa.

Connie akaitwawo maviri echiropa biopsies, pamwe nekuongororwa kwegore negore kwechiropa chake. Akabhadharwa madhora zana nemakumi mashanu kana kudarika pabvunzo yega yega yeultrasound. Pakati peidzo bvunzo, chiremba wake anotarisa zviratidzo zvecirrhosis uye zvimwe zvingangonetsa. Kunyangwe izvozvi zvaakaporeswa hutachiona hwehepatitis C, ari pangozi yakakura yekubatwa nekenza yechiropa.

Mhuri yake yakafukidzawo 15 muzana yemubhadharo wematatu ehurongwa hwekurwisa hutachiona hwaakatambira. Yega yekutenderera yekurapa inodhura makumi ezviuru zvemadhora muhuwandu, kusanganisira chikamu chakapihwa kune yavo inishuwarenzi mupi.

"Zvikamu gumi nezvishanu kubva muzana zvemazana mashanu zvinogona kunge zvisina kunyanyoipa," akadaro, "asi 15 muzana yezviuru zvakawanda vanogona kuwedzera."

Connie nemhuri yake vakatarisanawo nemitero yemishonga yekunyorera kuti vagadzirise mhedzisiro yekurapwa kwake. Izvi zvaisanganisira anti-kunetseka mishonga uye majekiseni ekusimudzira yake tsvuku reropa masero kuverenga. Vakabhadhara gasi uye kupaka kuti vaende kunzvimbo dzisingaverengeke dzekurapa. Uye vaibhadhara zvekufanobvira kudya apo airwara zvakanyanya kana kubatikana nekugadzwa kwachiremba kuti abike.

Akave nemari yemanzwiro, futi.

“Hepatitis C yakaita semvura iri mudziva, nekuti inobata nzvimbo yega yega yehupenyu, kwete pamari chete. Inokukanganisa mupfungwa nepfungwa, pamwe nepanyama. ”

Kurwisa kunyara kwehutachiona

Vanhu vazhinji vane zvisirizvo pamusoro pehepatitis C, zvinova zvinopa ruzvidzo rwakabatana nayo.

Semuenzaniso, vanhu vazhinji havazive kuti nzira chete yekuti mumwe munhu atapurire hutachiona ndeyekubatana kweropa-neropa. Uye vazhinji vanotya kubata kana kupedza nguva nemunhu abatwa nehutachiona. Kutya kwakadai kunogona kutungamira kumatongero asina kunaka kana kusarura kuvanhu vanogara nayo.

Kuti utsungirire kusangana uku, Connie akaona zvichibatsira kudzidzisa vamwe.

"Manzwiro angu akarwadziswa kakawanda nevamwe," akadaro, "asi chaizvo, ndakatora iwo semukana wekupindura mibvunzo ine vamwe vanhu nezve hutachiona uye kubvisa dzimwe nhema nezvekuti inobatwa sei uye kuti haina sei . ”

Iye zvino anoshanda semurevereri wevarwere uye murairidzi wehupenyu akasimbiswa, achibatsira vanhu kugadzirisa matambudziko echiropa chirwere uye hepatitis C. hutachiona. Iye anonyorawo zvinyorwa zvakati wandei, kusanganisira webhusaiti yekutenda-yaanochengetedza, Hupenyu Husingapfuuri Hep C.

Kunyange vanhu vazhinji vakatarisana nematambudziko munzira yavo yekuongororwa uye kurapwa, Connie anotenda kuti pane chikonzero chetariro.

“Pane tariro yakawanda ikozvino yekupfuura hep C kupfuura nakare kose. Kudzoka pandakaonekwa, kwaingova nemushonga mumwe chete. Zvino nhasi, pari zvino tine marapirwo manomwe akasiyana echiropa hepatitis C pazvikamu zvitanhatu zvese zvemajini. ”

"Kune tariro yevarwere kunyangwe vane cirrhosis," akaenderera mberi. “Pane kumwe kuongorora kwepamusoro-soro izvozvi kukwanisa kubatsira varwere kuti vakurumidze kuongororwa nekukuvara kwechiropa. "Kune zvakawanda kwazvo zviripo iye zvino kune varwere kupfuura zvazvakambove zvakaita."