Chirwere cheshuga Chiyedzo Chat: Izvo Zvawakarasikirwa

Zvemukati

• 1. Mumakore gumi apfuura, ongororo yeshuga yakachinja sei hupenyu hwevarwere?
• Kubva munharaunda medu:
• 2. Ndeipi basa rinoitwa nevarwere mune cheshuga kliniki yekutsvagisa? Vanofanira kutora basa rei?
• Kubva munharaunda medu:
• 3. Tingaita sei zviri nani kutaurirana dambudziko rekushomeka kwekiriniki kuyedza kutora chikamu nevarwere?
• Kubva munharaunda medu:
• 4. Unofunga ndezvipi zvipingamupinyi zvakajairika mukutora chikamu kwekiriniki? Zvingaitwe sei nazvo?
• Kubva munharaunda medu:
• 5. Tinoita sei kuti kuyedzwa kwekiriniki kutarise zvakanyanya pane zvinodiwa nevarwere?
• Kubva munharaunda medu:
• 6. Ndingazive sei kuti ndeapi makiriniki ekuedzwa kuti atore chikamu?
• 7. Ndezvipi zviwanikwa zvaunokurudzira kudzidza zvakawanda nezve kiriniki miedzo?
• 8. Ndeapi matanho ekurapa chirwere cheshuga angafadza iwe?
• Kubva munharaunda medu:
• 9. Iwe unofunga tiri padyo sei nemushonga wechirwere cheshuga?
• Kubva munharaunda medu:
• 10. Ndechipi chinhu chimwe chete chaunoshuvira kuti varwere vazive nezvemakiriniki ekuedzwa?
• Kubva munharaunda medu:
• 11. Ndeipi nhema huru pamusoro pemayedzo emakiriniki?
• Kubva munharaunda medu:

MunaNdira, Healthline akabata nhaurirano yeTwitter (#DiabetesTrialChat) kutaura nezvematambudziko ari kusangana nevanhu vane chirwere cheshuga 1 kuwana miedzo yekiriniki yakanangana nekuwana mishonga mitsva, uye inogona kurapwa. Kutora chikamu mune chat yaive:

• Sarah Kerruish, mukuru wezano uye mukuru wekukura paAntidote. (Vatevere ivo @Antidote)
• Amy Tenderich, muvambi uye mupepeti-mukuru weDiabetesMine. (Vatevere ivo @ DiabetesMine)
• Dr. Sanjoy Dutta, mutevedzeri wemutevedzeri wemutungamiriri wedudziro budiriro paJDRF (Vateverei @JDRF)

Verenga pamusoro kuti uone kuti ndeapi matambudziko, uye mhinduro dzinogona kugadziriswa, ivo nenharaunda yedu inoshamisa!

1. Mumakore gumi apfuura, ongororo yeshuga yakachinja sei hupenyu hwevarwere?

Dr. Sanjoy Dutta: "Kuwedzera kwekuziva, kudzikira mutoro, kudzoreredza kuenderera kwe glucose glucose (CGM), mhedzisiro zvirinani uchishandisa zvishandiso, uye kuongororwa kwekutanga."

Sara Kerruish: “Zvakashanduka zvese. Kubva pakushandisirwa pachitsuwa kusvika kune chinogona kuita pancreas - kufambira mberi kukuru kwakaitwa… Ndakada chinyorwa ichi kubva kuAmerican Diabetes Association pane zvese budiriro dzakaitwa mumakore makumi mashanu apfuura. ”

Amy Tendrich: "Kutsvagurudza kwakatipa CGM uye munguva pfupi yekupedzisira pancreas, uye Antidote kudzidza nezvezvikonzero zvechirwere cheshuga - zvinoshamisa!"

Kubva munharaunda medu:

@everydayupsdwns: “Zvakawanda zvemidziyo mitsva nemisanganiswa yekunyemwerera nezve T1D… Sensor yakawedzerwa pombi yekurapa inouya mupfungwa. Insulin analogues zvakabatsira vazhinji, asi smart insulin inotaridzika ”

@ ninjabetic1: "Kuona kuti ongororo yeshuga yakakwira mudariro zvinondipa tariro yekuti ndichave nehupenyu hunofadza & hune hutano"

@JDRFQUEEN: “Kuchinja kwakawanda. Ini ndakatanga kupfeka Guardian Medtronic CGM muna 2007. Zvaityisa, 100-200 pts kure. Zvino AP yakakodzera. ”

2. Ndeipi basa rinoitwa nevarwere mune cheshuga kliniki yekutsvagisa? Vanofanira kutora basa rei?

AT: “Varwere vanofanirwa kunge VAKanyanya kubatanidzwa mukufungidzira zvidzidzo! Tarisa uone iyo nyowani VitalCrowd. Ona Anna McCollisterSlip kuvhura masiraidhi paVitalCrowd kuwanda kwevanhu kwechirwere cheshuga kiriniki kunoedzwa pano. "

SD: "Varwere vanofanirwa zvakare kutora chinhanho chekuita mukupa maonero nemhinduro mune dhizaini dhizaini nezvabuda."

SK: "Ehe! Kufurira dhizaini kwakakosha! Ivo vanofanirwa kutamba HUGE basa! Varwere vanogona kunyatsotaura zvavanoda, saka vaongorori vanofanira kunge vachinyatsoteerera. ”

Kubva munharaunda medu:

@ AtiyaHasan05: “Kutendeseka. Kuva vakatendeseka pamusoro pezvavari uye zvavasiri kuita maererano nemitemo yekutsvaga. ”

@ ninjabetic1: "Ndinofunga varwere vanochengeta chirwere cheshuga pazvigunwe [zvavo] (nenzira yakanaka!) - Iwo mapurojekiti #wearenotwaiting humbowo hweizvozvo"

@JDRFQUEEN: "Clinicaltrials.gov [inzvimbo yakanaka yekutanga kune avo vari kutsvaga kupinda mukutsvaga!"

3. Tingaita sei zviri nani kutaurirana dambudziko rekushomeka kwekiriniki kuyedza kutora chikamu nevarwere?

AT: "Kufananidza sevhisi yeshuga nevarapi, seLiving BioBank."

SK: “Dzidzo! Tiri kuita nepatinogona napo kuparadzira izwi - Varwere mazana mashanu ezviuru vanodiwa pakuedzwa kweshuga muU.S., asi 85 muzana yemiedzo inononoka kana kukundikana nekuda kwenyaya dzekunyora. Idzi inhau dzakaipa kuvarwere UYE nevaongorori. "

SD: “Tinofanira kuva CANDID pamusoro pekukosha kwemurwere. Ivo vamiriri veiyi miedzo uye chikuru chakanakira vese vanorarama ne type 1 chirwere cheshuga. Yakagadziriswa kutora chikamu chakakosha! Usaunze murwere kumiedzo; kuunza miedzo kumurwere. ”

SK: "EHE!"

Kubva munharaunda medu:

@ ninjabetic1: “Bvunza HCPs kuti vagovane iyi info zvirinani nevarwere vakakodzera. Kutsvagurudza hakuna kumbobvira kwataurwa kwandiri mumakore gumi nematanhatu! ”

@ AtiyaHasan05: “Vachitsanangura maitikiro azere pamwe nebasa ravo rakakosha mazviri. Vazhinji havanyatsonzwisisa mashandiro anoita miedzo. "

@everydayupsdwns: “Sunga simba renhau renhau! … Ongororo zhinji dzinotambura sezvo [dzisingakwaniswi] nenzvimbo. ”

4. Unofunga ndezvipi zvipingamupinyi zvakajairika mukutora chikamu kwekiriniki? Zvingaitwe sei nazvo?

SK: “Pinda! Iyo info kunze uko ndeye yevaongorori, kwete varwere - ndosaka takagadzira Match. Isu tinofanirwa kuisa varwere pakati pekutsvagisa. Chii chakakosha kwavari? Dave deBronkart akatidzidzisa izvi. ”

AT: “Vanhu vanogara vachititumira tsamba kuDiabetes Mine vachibvunza kuti ivo kana vana vane chirwere cheshuga cherudzi rwekutanga vangapinda sei mumiedzo. Ndekupi kwakanyanya kuvatumira? Dambudziko nderekuti Clinicaltrials.gov yakanyanya KUSHONA kufamba. "

SD: "Kubatanidzwa kwakananga uye zvisina kunangana kwakakosha, pamwe nekutaurirana pachena. Iyo inotsigira ecosystem yevanotarisira & HCPs. Panogona kuve nekusavimbika kwemiedzo. Goverana iwo mukuru mufananidzo uye famba kubva kuyedza-centricity kune murwere-centricity.

AT: “Zano rakanaka! Mungati vangazviita sei? ”

SD: “Miedzo INOTARISIRA pane zvinotaurwa nemurwere. Chii chingaite kuti mhando yavo yeshuga igone kugoneka? Ndezvipi zvavanofarira nezvavasingakwanise kuita? ”

SK: “Zviri nyore. Ruzivo uye kuwana. Ruzhinji rwevanhu haruzive nezve kiriniki miedzo. Tiri kuedza kugadzirisa izvi. "

Kubva munharaunda medu:

@davidcragg: "Chinhu chakakosha kwandiri kuona kuzvipira kwenzira dzizere nemhedzisiro kuti zvimhanwe zvisinei nemhedzisiro."

@gwsuperfan: "Mimwe miedzo inotora mukana-inowedzera ichawedzera kutora chikamu. Mumwe aida kuti ndigare munzvimbo ino [kweanopfuura vhiki mbiri]… Kwete chinhu chechokwadi kune [vanhu vane chirwere cheshuga] vane mabasa / chikoro / hupenyu. ”

@everydayupsdwns: “Zvinoenderana nekugadzirwa kwemuedzo. Panogona kunge paine zvinhu zvakawanda… ndakapa mukana wekupinda kanoverengeka, ndikanyoresa kuti 'ndiwanikwe' asi ndangotorwa nekiriniki yega. "

@lawahlstorm: “Kukunda zvisirizvo maererano nekutora chikamu mukutongwa. Iyo "Guinea yenguruve" kunyepa. "

@ ninjabetic1: "Nguva: inguva yakawanda sei yandinofanira kuzvipira? Mhedzisiro: tichaona mhedzisiro? Zvinodiwa: chii chaunoda kwandiri? ”

5. Tinoita sei kuti kuyedzwa kwekiriniki kutarise zvakanyanya pane zvinodiwa nevarwere?

SD: "Deredza maitiro akaomarara, uye murwere chaiye anofanirwa kuvakwa achifunga nezvekugadzirwa kwechigadzirwa."

SK: "Dhizaina nevarwere mupfungwa! Vatsvakurudzi vanofanirwa kufunga sevarwere uye voona kuti zviri nyore kutora chikamu mukuyedzwa. Uye usatya kubvunza! Varwere vanoziva zvakanakira varwere, uye vaongorori vanofanirwa kushandisa izvozvo. "

AT: "Zvakare, isu tinoda chimwe chinhu senge Chirwere cheshuga Ongororo Yekubatanidza kuti tione zviri kuitwa nemuedzo wako."

Kubva munharaunda medu:

@lwahlstrom: "Batanidza varwere mune ese nhanho yekuyedzwa dhizaini - kupfuura 'bvunzo kuyedza.' Nharaunda inopinza yakakosha!"

@ ninjabetic1: “Mhanyai mitezo yakawanda yetweet seizvi. Tarisa mapoka. Verenga mablog. Taura nesu. Pfuurai neHCPs kuti musvike kune varwere ”

@JDRFQUEEN: "Uye kwete kuti munhu anoda kubhadharwa mari inokatyamadza, asi kudzorerwa nguva uye gasi chinhu chikuru chinokurudzira [kune] vatori vechikamu."

6. Ndingazive sei kuti ndeapi makiriniki ekuedzwa kuti atore chikamu?

SD: "Mubatanidzwa wekutsvagisa kwako wega uye neruzivo rwehutano hwako."

SK: "Tarisa mudziyo wedu mutsva - pindura mibvunzo mishoma uye system yedu inokutsvakira miedzo!"

7. Ndezvipi zviwanikwa zvaunokurudzira kudzidza zvakawanda nezve kiriniki miedzo?

SD: "Clinicaltrials.gov, pamwe neJRDF.org"

SK: “Shamwari dzedu CISCRP dzinopa zviwanikwa zvakanaka. Uye iyo nzanga yeshuga iri munharaunda inzira huru yekudzidza nezve zvakaitika kwauri. ”

8. Ndeapi matanho ekurapa chirwere cheshuga angafadza iwe?

SK: "Zvakawanda! Ini ndinonyanya kufadzwa neyakagadzirwa pancreas - fungidzira kuti mangani hupenyu hwaizoshandurwa. Ndiri kufarira zvakare kutsvagurudza kutsva kwekushandura masero emadziva kuita maseru epancreatic beta - zvinoita sekufambira mberi kukuru! "

AT: “Zvakakomba. Varwere nevatapi vakabvunzurudzwa nyaya [yedu] yeshuga nembanje vanoti ZVIDZIDZO ZVINODIWA. "Tinofara nezvidzidzo zvinobvumidza CGM kutsiva matanda emunwe."

SD: "Mhando dzekugadzira pancreas dzakagadzirwa, beta cell replacement (encapsulation), chirwere cheitsvo miedzo… Novel drug for better glucose glucose, miedzo yekuchengetedza beta cell function."

SK: "Miedzo miviri mikuru, inovimbisa yepancreas inouya muna 2016 kuburikidza neHarvard Research neUVA Chikoro cheMishonga."

Kubva munharaunda medu:

@OceanTragic: "OpenAPS zvechokwadi"

@ NanoBanano24: “AP inoita kunge iri padhuze! Ndinofara kwazvo nezvazvo. ”

9. Iwe unofunga tiri padyo sei nemushonga wechirwere cheshuga?

SK: "Handizive kuti padhuze sei, asi nezuro chaiye, nhau idzi dzakandipa tariro."

Kubva munharaunda medu:

@delphinecraig: "Ndinofunga tichine nzira refu yekuenda kunorapwa."

@davidcragg: “Kwete muhupenyu hwangu. Mazhinji midhiya hype nezve kurapwa iko kukona kuri nezve kuwana mari yekutsvaga "

@Mrs_Nichola_D: “Makore gumi? Kutamba padivi, handinyatso kuziva. Asi kwete nekukurumidza sezvandaida kuti zvive. "

@ NanoBanano24: “Padhuze nakare kose! Ndine makore makumi maviri nemasere, ndisina chokwadi kuti iri muhupenyu hwangu. Iyo inoshamisa AP inogona kunge iriko mukati memakore gumi. Anotarisira zvakanaka. ”

@diabetesalish: “Akaudzwa for 38yrs kuti [chirwere cheshuga] icharapwa mumakore mashanu kusvika gumi. Ndiri kuda mhedzisiro kwete fungidziro ”

10. Ndechipi chinhu chimwe chete chaunoshuvira kuti varwere vazive nezvemakiriniki ekuedzwa?

SD: "Ndinoshuva kuti varwere vazive kuti vakakosha zvakadii… Varwere vatambi uye vatungamiriri venzira inoenda kune zvakanakira avo vanorarama nechirwere cheshuga cherudzi rwekutanga."

SK: "Kazhinji, ndinomisa mibvunzo nezve kutsvaga miedzo - varwere vanouya kwatiri pavanenge vakanamatira, uye tinovabatsira kuwana muedzo. Tine timu inoshamisa inogona kukubatsira iwe kuti uwane chirwere cheshuga. Isu tinonyora miedzo yese, saka hapana kusarura. ”

Kubva munharaunda medu:

@lwahlstrom: “80% vari pasi pekunyoreswa vachidzivirira budiriro dzakakosha & vese vatori vechikamu vanowana min. kurapa kwakajairika. ”

11. Ndeipi nhema huru pamusoro pemayedzo emakiriniki?

AT: “Ndingati ngano huru ndeyekuti miedzo yeshuga inovhurika chete kune‘ vepamusoro ’uye haigoneke kune vese. Tinofanira kufambisa shoko! ”

SD: “Kurovera zvine mutsigo kuti zviyero zvemakiriniki ndezvipi uye hazvisi izvo zvakakosha. Vamwe vatsoropodzi vanonzwa kuti varwere vakaenzana mhuka dzemumabara. Icho hachisi chokwadi. Vanofunga vanogona kufunga kuti kuyedza kwese kwakaenzana nemushonga. Izvo zvakare hazvisi zvechokwadi. Kudzikamisa sainzi, zvinotarisirwa, uye tariro ndizvo zvinoitwa mukuedzwa kwekiriniki. ”

Kubva munharaunda medu:

@davidcragg: "Ngano hombe ndeyekuti miedzo yese yakanyatsogadzirwa & dhata inogara ichiburitswa -vazhinji havafi vakaburitsa kuita kuti kukosha kusanyanya kukosha… varwere vanofanirwa kunzwa kuti haisi chiratidzo asi chikamu chakakosha chemaitiro avanobata (kubva pakutanga)"

@delphinecraig: “Ndinofunga ngano incl. hapana muripo, kusagadzikana nezvezvinodhaka / makiriniki / varapi, mutengo kune anenge atora chikamu. "

@JDRFQUEEN: "'Kutumira' zvabuda. Unogara uine kodzero yekutora kana manejimendi arikutambura. ”

Kutenda kune vese vakapinda! Kuti uzive nezve zviri kuuya zviitiko pa Twitter, tevera isu @Healthline!