Endometriosis: Kutsvaga Mhinduro

Zvemukati

• Kubvisa zvisirizvo
• Nzira ine mabwe ekuongorora
• Hupenyu kupfuura kuongororwa
• Kutsigira kuchengetwa kuri nani

Pazuva rekupedza kwake kukoreji makore gumi nemanomwe apfuura, Melissa Kovach McGaughey akagara pakati pevamwe vake vakamirira kuti zita rake ridaidzwe. Asi pachinzvimbo chekunakidzwa zvizere nenguva inokosha, anorangarira chimwe chinhu chisingatombogamuchirwa: kurwadziwa.

Achinetsekana kuti mishonga yaakatora pakutanga yaizopera panguva yemhemberero, akaronga kumberi. "Ini ndaipfeka chikwama pasi pehembe yangu yekupedza kudzidza - ndine kabhodhoro kadiki kemvura uye piritsi - kuitira kuti ndikwanise kutora mushonga wangu unotevera wemarwadzo ndisingamuke," anoyeuka.

Iyi yakanga isiri nguva yekutanga kana yekupedzisira yaaizofanira kunetseka nezve Herendometriosis kutora nzvimbo yepakati. Iyo gynecological mamiriro, iyo inokonzeresa tishu kubva muchibereko lining kuti ikure pane dzimwe nhengo - inozivikanwa kunyanya, uye zvakajeka, nekurwadziwa.

McGaughey, weWisconsin-based aimbova nhengo yebhodhi yeEndometriosis Association, apedza makumi emakore akawanda achirapa zviratidzo zvake zvinorwadza. Anogona kuteedzera yake kumashure payakatanga mukutanga kuyaruka.

"Ini ndakatanga kufungidzira kuti chimwe chinhu chakange chakakanganisika pazera regumi nemana apo pandakaita senge ndaiva nekukosheswa zvakanyanya kumwedzi kupfuura shamwari dzangu," anoudza Healthline.

Mushure memakore akati wandei ekusawana zororo kuburikidza nebuprofen, zvakadaro, vanachiremba vaaiona vachinyorerwa mahormone ekudzivirira kubata marwadzo. Asi mapiritsi haana kuita zvakadaro. "Mwedzi mitatu yega yega, ndaiiswa parumwe rudzi," anoyeuka McGaughey, ane makore makumi matatu nemasere, uyo anoti vamwe vaitomupa kuora mwoyo uye nekuchinja kwepfungwa.

Mushure memwedzi yakawanda yekusawana mhinduro, vanachiremba vake vakamupa izvo zvaiita sekupedzisira: Anogona kuramba achinetswa nemarwadzo asingagumi asingazive chikonzero kana kuenda pasi pebanga kuti aone kuti chii chakanganisika.

Nepo maitiro epa laparoscopic angave asingakanganise zvishoma, "Pfungwa yekuvhiyiwa kuti ungoonekwa yaive yakaoma kumedza semunhu ane makore gumi nematanhatu," anoyeuka.

Kuruboshwe nesarudzo shoma, McGaughey akazopedzisira asarudza kusaenderera mberi nekuvhiya. Sarudzo, anodaro, anozozvidemba, sezvo zvaireva makore akati wandei akapedzwa mukurwadziwa kwakanyanya.

Yakanga isiri iyo mushure mekunge apedza kudzidza kukoreji pazera ramakore makumi maviri nerimwe paakanzwa pfungwa dzakagadzirira kuita maitiro uye pakupedzisira kuwana kuongororwa.

"Chiremba anovhiya akawana endometriosis uye akarasa zvakawanda sezvinobvira," anodaro. Asi maitiro acho akange asiri mushonga-zvese zvaaitarisira. "Marwadzo angu akadonha zvakanyanya mushure, asi gore negore marwadzo akadzoka sezvo magumo akakura zvakare."

Kune inofungidzirwa1 mugumi evakadzi vezera rekubereka muAmerica vanokanganiswa nemamiriro, uyu mutambo wekati negonzo unowanzozivikanwa. Asi kusiyana nezvimwe zvirwere zvine mhinduro yakajeka, hapana mushonga unozivikanwa we endometriosis.

Izvo izvo zvakawanda zvevakadzi izvi zvinosangana nazvo, zvisinei, inyonganiso.

Apo muvambi uye CEO weFlutter Health, Kristy Curry, aive mumakore ake makumi maviri, akaziva kuti chimwe chinhu chakange chakashata zvakanyanya mushure mekupotsa achidonha mushower kubva kumarwadzo ekuenda kumwedzi.

Kunyangwe aive asiri muenzi wenguva refu uye inorwadza zvakanyanya, ino nguva yaive yakasiyana. "Ndakanga ndisingakwanisi kuenda kubasa kana kuchikoro kwemazuva mashoma uye ndakanga ndave pamubhedha," anoyeuka anogara kuBrooklyn. "Ndafunga kuti zvakajairika sezvo iwe usingakwanise 'kuenzanisa' kurwadziwa kwepakati nemumwe munhu."

Zvese izvi zvakakurumidza kuchinja, zvakadaro, paakazviwana akananga kuimba yekukurumidzira.

"Zvirwere zvekubereka zvevakadzi zvinoita kunge zvinopindirana nedzimwe nyaya munharaunda," anodaro Curry, uyo anozoenderera mberi ave nemakore akati wandei eEER anoshanyira kurwadziwa kwepamuviri kwakanzwisiswa zvisirizvo kungaitwa IBS kana zvimwe zvine chekuita neGI.

Sezvo endometriosis inokonzeresa matishu akasungwa kuti akure uye apararire kunze kwenzvimbo yedumbu, nhengo dzakakanganisika senge maovari uye ura hunochinja mahormone panguva yemukadzi, zvichikonzera kuzvimba kunorwadza.

Uye kana zviratidzo zvako zvakaomarara uye wotora pekugara muzvikamu zvemuviri wako kunze kwehurongwa hwako hwekubereka, Curry anoti, iwe zvino uchabata nevamwe vanamazvikokota.

Kubvisa zvisirizvo

Izvo chaizvo zvikonzero zve endometriosis hazvisati zvanyatsojeka. Asi imwe yedzidziso dzekutanga inoratidza kuti zvinosvika pane izvo zvinozivikanwa sekutangazve kuenda kumwedzi - chirongwa chinosanganisira ropa rekumwedzi kuyerera richidzoka nepakati pemachubhu kupinda muchiuno chepelvic pane kusiya kuburikidza nemukadzi.

Kunyangwe mamiriro acho achigona kugadziriswa, chimwe chezvinhu chakaomesesa kutanga kwechirwere hachisi kugamuchira kuongororwa kana kurapwa. Kune zvekare kusava nechokwadi uye kutya kwekusazombowana zororo.

Sekureva kweongororo yazvino yakaitwa neHealthyWomen yevakadzi vanopfuura chiuru uye mazana makumi maviri nemaviri evashandi vezvehutano (HCPs), kurwadziwa panguva nepakati pezviratidzo ndizvo zvakakonzera vazhinji vakapindura kushanyira HCP yavo kuti vawane chirwere. Chechipiri uye chechitatu zvikonzero zvaisanganisira gastrointestinal nyaya, kurwadziwa panguva yebonde, kana kunorwadza ura kufamba.

Vatsvakurudzi vakaona kuti nepo vakadzi vana pavashanu vasina chirwere vakanyatsonzwa nezve endometriosis kare, vazhinji vanongova neruzivo rwushoma rwekuti zviratidzo izvi zvinoita sei. Vazhinji vanotenda kuti zviratidzo zvinosanganisira kurwadziwa pakati nepakati uyezve panguva yebonde. Vashoma vanoziva zvimwe zviratidzo, senge kurukutika, nyaya dzemudumbu, weti inorwadza, uye kutamisa ura.

Zvimwe zvinovhenekera, zvakadaro, inyaya yekuti inenge hafu yevakadzi vasina kuongororwa havazivi kuti hakuna mushonga.

Iyi mhedzisiro yekuongorora inoratidza dambudziko hombe maererano nemamiriro acho. Nepo endometriosis ichinyanyo kuzivikanwa kupfuura nakare kose, ichiri kazhinji kazhinji kusanzwisiswa, kunyangwe nevakadzi vane chirwere.

Nzira ine mabwe ekuongorora

Imwe ongororo yakaitwa nechikwata chevatsvagiri vekuUK inoratidza kuti kunyangwe hazvo zvinhu zvakati zvingaitisa basa, "chimwe chikonzero chakakosha chekuwedzera kwechirwere ichi chingangove chiri kunonoka kuongororwa."

Kunyangwe zvichinetsa kuona kana izvi zvichikonzerwa nekusakwana kwekutsvagisa kwekurapa, sezvo zviratidzo zvinowanzo kutevedzera mamwe mamiriro akaita seanovhiya cyst uye chirwere chepachivhuru chinoputira, chinhu chimwe chiri pachena: Kugamuchira kuongororwa hakusi chinhu chidiki.

Philippa Bridge-Cook, PhD, musayendisiti muToronto anoshanda muboka revatungamiriri veThe Endometriosis Network Canada, anoyeuka achiudzwa nachiremba wemhuri yake ari pakati pemakore makumi maviri kuti paive pasina chikonzero chekutsvaga kuongororwa nekuti pakanga pasina chinhu icho inogona kuitwa nezve endometriosis zvakadaro. "Izvo zvisiri zvechokwadi, asi ndaisaziva izvozvo panguva iyoyo," Bridge-Cook anotsanangura.

Uku kusanzwisiswa kunogona kuenzanisira kuti nei vangangoita hafu yevakadzi vasina kuongororwa muongororo yeWomenyWomen vaive vasina kujaira maitiro ekuongororwa.

Gare gare, mushure meBridge-Cook asangana nezvakawanda zvekubviswa, anoti vana OB-GYNs vakasiyana vakamuudza kuti haangave nechirwere, nekuti kana akadaro, aizove nekushaya mbereko. Kusvika panguva iyoyo, Bridge-Cook anga ave kubata pamuviri pasina kunetseka.

Kunyange chiri chokwadi kuti nyaya dzekubereka ndeimwe yematambudziko akaomarara anosanganisirwa ne endo, fungidziro isiriyo ndeyekuti ichadzivirira vakadzi kubva pakubata uye kutakura mwana kusvika panguva.

Chiitiko cheBridge-Cook chinoratidzira kwete chete kushayikwa kwekuziva pachinzvimbo chevamwe HCPs, asiwo kusava nehanya nezve mamiriro acho.

Tichifunga kuti kunze kwevakabvunzurudzwa mazana masere nemakumi masere, vanhu vanenge makumi matatu nenomwe muzana ndivo vakazviratidza kuti vane chirwere chinonzi endometriosis diagnostic, mubvunzo unosara: Sei kugashirwa iri nzira inonetsa kuvakadzi?

Mhinduro inogona kungorara munhurume.

Kunyangwe paine mukadzi mumwe chete pavakadzi vana muongororo akataura kuti endometriosis inowanzo kukanganisa hupenyu hwavo hwezuva nezuva - nemumwe mu5 achiti inogara ichiita - avo vakazivisa zviratidzo zvavo kuHCP vanowanzodzingwa. Ongororo iyi yakawana zvakare kuti zvikamu gumi neshanu kubva muzana zvevakadzi zvakaudzwa kuti "Zvese zviri mumusoro wako," nepo mumwe chete muvatatu akaudzwa kuti "Zvinoitika." Uyezve, mumwechete muvatatu akaudzwa "Icho chikamu chekuve mukadzi," uye mukadzi mumwe muvashanu aifanira kuona mana kana mashanu HCPs vasati vawana kuongororwa.

Iyi tsika haina kushamisika yakapihwa yekuti marwadzo evakadzi anowanzo kufuratirwa kana kuregererwa zvisina mwero muindasitiri yekurapa. Kumwe kuongorora kwakaratidza kuti "Kazhinji, vakadzi vanotaura marwadzo akakomba zvakanyanya, marwadzo anowanzoitika, uye kurwadziwa kwenguva refu kupfuura varume, asi zvakadaro vanorapwa nemarwadzo zvishoma."

Uye zvinowanzoitika nekuda kwekusarudzika uku kwevakadzi vazhinji vasingatsvage rubatsiro kusvikira zviratidzo zvavo zvasvika padanho risingatsungiririki. Vazhinji vevakabvunzurudzwa vakapindura vakamirira makore maviri kusvika mashanu vasati vaona HCP yezviratidzo, nepo mumwe muvashanu akamirira makore mana kusvika matanhatu.

"Ini ndinonzwa nezve vazhinji endo varwere vasina kupihwa mushonga wekurwadziwa," anotsanangura McGaughey, uyo anoti anonzwisisa kuti vanachiremba havadi kuti mumwe munhu ave anovimba nemaopioid kana kukanganisa chiropa chavo kana dumbu nemaanti-inflammatories. "Asi izvi zvasiya vakadzi nevasikana vazhinji varwadziwa zvakanyanya," anodaro. "Zvakanyanya iwe haugone kufamba, [nevakawanda] vachifunga kuti vangangotora maviri Advil."

Tsvagiridzo inomutsigira pane izvi - seimwe yakazivisa kuti vakadzi kashoma kupihwa marwadzo ekurwadziwa muER, kunyangwe nekurwadziwa mudumbu.

Chikamu chechinetso chinouya kune vanotenda vakadzi nevasikana, McGaughey anowedzera. Anorangarira achiudza mumwe chiremba kuti anga achirwadziwa zvakanyanya nekuenda kumwedzi, asi izvo hazvina kunyoresa. Chete paakatsanangura kuti zvaive zvichikonzera kuti apotse mazuva mazhinji ebasa mwedzi wega ndipo apo chiremba akateerera ndokucherechedza.

"Kubva ipapo zvichienda mberi, ndakaverengera kurwadziwa kwangu kune nyanzvi mumazuva ekupererwa nebasa," anodaro. "Izvo zvakakosha kupfuura kungotenda nhoroondo dzangu dzemazuva ekutambura."

Zvikonzero zvekudzinga marwadzo evakadzi zvakafukidzwa mutsika nemagariro, asiwo, sekuratidzira kweongororo, "kushomeka kwekutanga kweendometriosis seyakakosha nyaya yehutano hwevakadzi."

Hupenyu kupfuura kuongororwa

Nguva refu apedza kudzidza kukoreji, McGaughey anoti apedza nguva yakawandisa achiratidzira kurwadziwa kwake. "Zviri kuzviparadzanisa uye kuodza mwoyo uye kufinha."

Anofungidzira kuti hupenyu hwake hwaizovei dai asina chirwere. "Ndine rombo rakanaka kuva nemwanasikana wangu, asi ndinonetseka kana ndingadai ndakaedza kuyedza mwana wechipiri dai ndisina endometriosis," anotsanangura, izvo zvakanonotsa kubata pamuviri kuburikidza nemakore ekushaya mbereko uye zvakaguma nekuvhiya kwekucheka . "[Mamiriro acho ezvinhu] anoramba achindipedza simba rangu nenzira inoita kuti mwana wechipiri aite senge asingakwanise."

Zvimwechetezvo, Bridge-Cook anoti kurasikirwa nenguva nenguva nemhuri yake paanenge aine marwadzo akawandisa kusimuka pamubhedha ndicho chakanyanya kuoma chiitiko chake.

Vamwe vakaita saCurry vanoti kurwira kukuru kwave kuri kuvhiringidzika nekusanzwisisa. Zvakadaro, iye anotenda kuonga nekuziva nezve mamiriro ake pakutanga. "Ndakave nerombo rakanaka, mumakore makumi maviri, kuti wangu wekutanga OB-GYN akafungidzira endometriosis uye akavhiya laser ablation." Asi, anowedzera, uku kwaive kusara kwemutemo, sezvo maitiro ake mazhinji eHCP anga ari ekuziva zvisizvo. "Ndoziva ndakaita rombo rakanaka uye kuti vakadzi vazhinji vane endo havana rombo rakanaka."

Ipo basa rekuona kuti vakadzi vagara zvakakwana vachiziva nezve mamiriro aripo paHCPs, McGaughey anosimbisa vakadzi kuti vazvitsvagire uye vazvirwire. "Kana chiremba wako asingatendi iwe, tora chiremba mutsva," anodaro McGaughey.

Zvakafanana neinopfuura hafu yevakabvunzurudzwa vakapindura avo vakaonekwawo neOB-GYN, rwendo rwekupedzisira rweCurry rwaive kure nekuguma. Kunyangwe mushure mekuwana kuongororwa uye kuvhiyiwa, akaenderera mberi nekushandisa makumi maviri emakore anotevera kutsvaga mhinduro nerubatsiro.

"Gynecologists mazhinji haasi kurapa endometriosis zvakanyanya," anodaro Bridge-Cook, uyo akamirira makore gumi kubva panguva yaakatanga kufungidzira kuti pane chakaipa muma20s ake asati awana chirwere. "Kuvhiyiwa kweablation kunoenderana neyakawandisa kwazvo yekudzokororazve," akatsanangura, "asi kuvhiya kwekucheka, izvo zvisingaitwe navanachiremba vezvechikadzi, kunobatsira zvakanyanya pakurapa kwenguva refu kwezviratidzo."

Munguva pfupi yapfuura inomutsigira pane izvi, sekuti vaongorori vakawana kuvandudzika kwakanyanya mukurwadziwa kwepelinha kusingaperi kunokonzerwa ne endometriosis semhedzisiro yekuparadzwa kweparoscopic kana ichienzaniswa neablation.

Zvinoenderana neBridge-Cook, kusanganisa nzira dzakasiyana siyana dzekurapa kunopa mhedzisiro. Akashandisa musanganiswa wekuvhiya kwekucheka, kudya, kurovedza muviri, uye pelvic physiotherapy yekuwana zororo. Asi iye zvakare akawana kuti iyo yoga yakave yakakosha mukugadzirisa kushushikana kunouya nekurarama nechirwere chisingaperi.

Kunyangwe McGaughey achiona kuti kuvhiiwa kwake kwese kwakakonzera kudzikisira kurwadziwa uye kudzorera hupenyu hwake, ari kuramba kuti hapana zviitiko zviviri zvakafanana. "Nyaya yemunhu wese yakasiyana."

"Haasi munhu wese anokwanisa kuvhiiwa zvemhando yepamusoro nevarapi vanovhiya kuziva nekuwedzera endometriosis," anotsanangura, uye vamwe vanhu vanowanzo gadzira zvinyama zvevanga kupfuura vamwe. Kupfupisa nguva yekuongororwa kuburikidza nenzira yekuvhiya yekuongorora, anowedzera, zvinogona kuita mutsauko wese.

Kutsigira kuchengetwa kuri nani

Maitiro eHCPs anobata vakadzi vane marwadzo zvakaenzana, kana zvisiri zvakanyanya, zvakakosha kune maitiro avanogadzirisa iwo mamiriro acho pachawo. Kuziva izvi zvakasarudzika kwevakadzi pabonde idanho rekutanga, asi rinotevera rinosanganisira kuve nekuziva kukuru uye kutaurirana nekunzwira tsitsi.

Kubudirira kwakakosha murwendo rweCurry endo kwakasvika nguva pfupi mushure mekuonana nachiremba aisangoziva chete, asiwo ane tsitsi. Paakatanga kumubvunza mibvunzo isina hukama ne endometriosis isina mumwe chiremba anga aine makore makumi maviri, akatanga kuchema. "Ndakanzwa kurerukirwa nekukurumidza."

Ipo basa rekuona kuti vakadzi vagara zvakakwana vachiziva nezve mamiriro aripo paHCPs, McGaughey anosimbisa vakadzi kuti vazvitsvagire uye vazvirwire. Anofunga kubvunza vanachiremba vanovhiya, kujoina masangano endo, uye kuverenga mabhuku nezvenyaya iyi. "Kana chiremba wako asingatendi iwe, tora chiremba mutsva," anodaro McGaughey.

"Usamirira makore ekurwadziwa sezvandakaita nekutya kuongororwa chirwere cheparacoscopic." Anokurudzirawo kuti vakadzi vatsigire marapirwo avanofanirwa nawo, senge asingadzvinyiriri Toradol.

Kure nekutsvaga kwemakumi emakore-mhinduro, vakadzi ava vanogovana chishuwo chakasimba chekupa vamwe simba. "Taura nezvekurwadziwa kwako uye ugovane zvese nezve nitty-gritty ruzivo," inokurudzira Curry. "Unofanirwa kuunza ura hwako, bonde rinorwadza, uye dambudziko redundira."

"Izvo zvinhu zvisina munhu anoda kutaura nezvazvo zvinogona kuve zvinhu zvakakosha pakuongorora kwako uye nzira yekutarisira," anowedzera.

Chinhu chimwe chakaitwa kuti chive pachena kubva kuongororo ye HealthyWomen ndechekuti tekinoroji inogona kuve mubatsiri mukuru wemukadzi kana zvasvika pakugara uine ruzivo. Mhedzisiro yacho inoratidza kuti vakadzi vazhinji vasina kuongororwa vanoda kudzidza zvakawanda nezve endometriosis kuburikidza neemail uye neinternet - uye izvi zvinoshanda kunyangwe kune avo vanoonekwa uye vasina kufarira kudzidza zvakawanda.

Asi inogona zvakare kushandiswa senzira yekubatana nevamwe munharaunda endo.

Kunyangwe ese makore ese ekugumbuka nekusanzwisisana, iyo imwe sirivheri yakakwenenzverwa yeCurry anga ari vakadzi vaakasangana navo vari parwendo rumwe chete. "Vanotsigira uye munhu wese anoda kubatsirana neimwe nzira yavanogona."

"Ndinofunga ikozvino kuti vanhu vazhinji vanoziva nezve endometriosis zviri nyore kutaura nezvazvo," anodaro Curry. "Panzvimbo pekutaura kuti haunzwi zvakanaka nekuda kwe'mai marwadzo 'unogona kuti' Ndine endometriosis 'uye vanhu vanoziva."

Cindy Lamothe mutori wenhau anoshanda akazvimirira anogara kuGuatemala. Anonyora kazhinji nezve mapindano pakati pehutano, hutano, uye sainzi yekuzvibata kwevanhu. Akanyorerwa The Atlantic, New York Magazine, Teen Vogue, Quartz, The Washington Post, uye zvimwe zvakawanda. Mutsvage pa cindylamothe.com.