Kuedza Kwandinoita Kufambisa kweMidziyo Kwakachinja Maitiro Ekuzvitarisa Ndoga neMS

Zvemukati

• Chinokosha

Mwaka wezhizha pakati pegore rangu rejunior nerekare kukoreji, amai vangu neni takasarudza kusaina kukisheni yebhuti yehutano. Makirasi aiitwa mangwanani ega ega na5 a Mangwanani mamwe nguva ndichimhanya, ndakanga ndisinganzwe tsoka dzangu. Kwemavhiki mashoma akatevera, zvinhu zvakawedzera, uye ndakaziva kuti yaive nguva yekuona chiremba.

Ndakashanyira vanachiremba vakati wandei vaindipa rairo inopesana. Kwapera vhiki dzinoverengeka, ndakazviwana ndiri muchipatara kune imwe pfungwa.

Vanachiremba vakandiudza kuti ndakanga ndine multiple sclerosis (MS), chirwere chepakati chetsinga chinokanganisa kuyerera kweruzivo mukati mehuropi nepakati pehuropi nemuviri.

Panguva iyoyo, ndakanga ndisingazive kuti MS yaive chii. Ndakanga ndisingazive zvaigona kuita kumuviri wangu.

Asi ndaiziva kuti handaimborega mamiriro angu achinditsanangura.

Mumazuva mashoma, chirwere chandisina kumboziva nezvacho chakazova tarisiro izere uye pakati pehupenyu hwemhuri yangu. Amai vangu nehanzvadzi yangu vakatanga kushandisa maawa pakombuta zuva rega rega, vachiverenga yega yega chinyorwa uye zviwanikwa zvavaigona kuwana. Isu tanga tichidzidza sezvataienda, uye paive neruzivo rwakawanda kugaya.

Dzimwe nguva zvaiita senge ndaive pane roller roller coaster. Zvinhu zvaifamba nekukurumidza. Ndakanga ndichitya uye ndisingazivi kuti chii chandaizotarisira mberi. I was on a ride yandisina kusarudza kuenda, not sure kwayaizondisvitsa.

Zvatakakurumidza kuziva ndezvekuti MS yakafanana nemvura. Iyo inogona kutora akawanda maumbirwo uye mafomu, mafambiro mazhinji, uye zvinonetsa kuva kana kufanotaura. Zvese zvandaikwanisa kuita kwaingova kunyura mukati uye kugadzirira chero chinhu.

Ndakanzwa kusuruvara, kuremerwa, kuvhiringidzika, uye kutsamwa, asi ndaiziva kuti pakanga pasina chikonzero chekunyunyuta. Ehe, mhuri yangu ingadai isina kunditendera zvakadaro. Tine chirevo: "MS iri BS."

Ndaiziva kuti ndaizorwa nechirwere ichi. Ndakaziva kuti ndaive neuto rekutsigira kumashure kwangu. Ndakaziva kuti vaizove varipo nhanho dzese dzenzira.

Muna 2009, amai vangu vakafonerwa izvo zvakachinja hupenyu hwedu. Mumwe munhu kuNational MS Society akange adzidza nezve kuongororwa kwangu uye akabvunza kana uye nekutitsigira kwavangaita.

Mazuva mashoma gare gare, ndakakokwa kusangana nemumwe munhu aishanda nevechidiki vachangobva kuongororwa. She came to my house and we went out for ice cream. Akanyatsoteerera pandakanga ndichitaura nezvekuongororwa kwangu. Mushure mekunge ndamuudza nyaya yangu, akagovana mikana, zviitiko, uye zviwanikwa zvaifanirwa kupa musangano.

Kunzwa nezvebasa ravo uye zviuru zvevanhu zvavari kubatsira zvakaita kuti ndinzwe kusurukirwa. Zvaive zvichinyaradza kuziva kuti kune vamwe vanhu uye mhuri kunze uko vachirwa kurwa kumwe chete kwandaive ini. Ndainzwa kunge ndakamira mukana wekuzviita, pamwe chete. Ndakabva ndangoziva kuti ndaida kubatanidzwa.

Munguva pfupi, mhuri yangu yakatanga kutora chikamu muzviitiko zvakaita seMS Walk uye Dambudziko MS, kuunganidza mari yekutsvaga uye kudzorera kusangano iro raipa zvakanyanya kwatiri.

Kubudikidza nebasa rakawandisa uye kunyange kunakidzwa, timu yedu - inonzi "MS ndeye BS" - yakakwidza inopfuura $ 100,000 pamakore.

Ndakawana dunhu revanhu vaindinzwisisa. Raive rakakura uye rakanakisa "timu" yandakambopinda.

Pasina nguva refu, kushanda neMS Society kwakava kushoma kwekushambadzira uye zvakanyanya kuda kwandiri. Semukuru wezvekutaurirana, ndaiziva kuti ndaigona kushandisa ruzivo rwangu rwehunyanzvi kubatsira vamwe. Pakupedzisira, ndakabatana nesangano chikamu chenguva, ndichitaura nevamwe vechidiki vachangobva kuongororwa vane MS.

Pandaiyedza kubatsira vamwe nekugovana nyaya dzangu nezvakaitika kwandiri, ndakaona kuti vaindibatsira zvakanyanya. Kugona kushandisa izwi rangu kubatsira nharaunda yeMS kwakandipa kukudzwa uye chinangwa kupfuura zvandaigona kumbofungidzira.

Kuwanda kwezviitiko zvandaipinda, ndipo pandakazonyanya kudzidza nezvekuti vamwe vakasangana sei nechirwere ichi nekugadzirisa zviratidzo zvavo. Kubva pazviitiko izvi, ndakawana chimwe chinhu chandisina kwandaigona kusvika: kuraira kwekuzvionera kubva kune vamwe vari kurwa hondo imwechete.

Zvakadaro, kugona kwangu kufamba kwakaramba kuchikura zvishoma nezvishoma. Ndipo pandakatanga kunzwa nezve kagetsi kadiki kemagetsi kaikurudzira vanhu kunzi "muiti wezvishamiso."

Pasinei nekuenderera mberi nematambudziko, kunzwa nezvekukunda kwevamwe vanhu kwakandipa tariro yekuramba ndichirwa.

Muna 2012, mishonga yandaitora yekubatsira kugadzirisa zviratidzo zvangu yakatanga kukanganisa mapfupa angu, uye kufamba kwangu kwakaramba kuchiwedzera. Ini ndakatanga kuona "tsoka kudonha," chinetso chekukweva-gumbo icho chinowanzo kuuya neMS.

Kunyangwe ndakaedza kuramba ndiine tariro, ndakatanga kubvuma chokwadi chekuti pamwe ndaizoda wiricheya.

Chiremba wangu akandikwanirisa chishongo chekuisira chakafanirwa kusimudza tsoka yangu kuti ndirege kugumburwa nayo. Pane kudaro, yakachera mugumbo rangu uye yakakonzera kunetseka zvakanyanya kupfuura zvayakabatsira.

Ndakanzwa zvakawanda nezve "mashiripiti" chishandiso chinonzi iyo Bioness L300Go. Ndiko kafa cuff iwe waunopfeka wakakomberedza makumbo ako kuti umusimudzire uye kubatsira kudzosera mhasuru dzako. Ini ndinoda izvi, ndakafunga, asi ini ndaisakwanisa kuzvitenga panguva iyoyo.

Mwedzi mishoma gare gare, ndakakokwa kuti ndipe hurukuro yekuvhura nekuvhara kuMS Achievers chiitiko chikuru chekutsvaga mari cheMS Society.

Ini ndataura nezverwendo rwangu rweMS, shamwari dzinoshamisa dzandakanga ndasangana nadzo ndichishanda nesangano, uye nezve vanhu vese mipiro yaigona kubatsira, kungave kuburikidza nekutsvagisa kwakanyanya kana kubatsira vanhu kugamuchira tekinoroji, senge iyo L300Go.

Kutevera chiitiko ichi, ndakagamuchira runhare kubva kumutungamiriri weSMS Society. Mumwe munhu pachiitiko akandinzwa ndichitaura ndokubvunza kana vanganditengere L300Go.

Uye yakanga isiri chero munhu, asi mutambi weRedskins nhabvu Ryan Kerrigan. Ndakakundwa nekutenda uye mufaro.

Pandakazomuona zvakare, rinenge gore gare gare, zvaive zvakaoma kuisa mumazwi izvo zvaakange andipa. Panguva iyoyo, cuff iri pagumbo rangu yaireva zvakanyanya kupfuura chero chishongo kana rutsoka rwetsoka.

Chakanga chave chiwedzero chemuviri wangu - chipo chakange chachinja hupenyu hwangu chikandipa mukana wekuenderera mberi nekubatsira vamwe.

Kubva pazuva randakatanga kugamuchira iyo Bioness L300Go, kana "yangu diki komputa" sekuidaidza kwandakaita, ndakatanga kunzwa kusimba uye kuvimba zvakanyanya. I also regained sense of normalcy ndaisatomboziva kuti ndainge ndarasa. Ichi chaive chinhu chisina mumwe mushonga kana chishandiso chakange chakwanisa kundipa.

Nekuda kwechigadzirwa ichi, ndinozviona semunhu wenguva dzose zvakare. Ini handidzorwe nechirwere changu. Kwemakore, kufamba uye kufamba kwaive rakawanda basa kupfuura mubairo.

Zvino, kufamba kuburikidza nehupenyu hakuchisiri kwepanyama uye chiitiko chepfungwa. Ini handidi kuzviudza ini "Simudza tsoka yako, tora nhanho," nekuti yangu L300Go inondiitira izvozvo.

Handina kumbobvira ndanzwisisa kukosha kwekufamba kusvikira ndatanga kurasikirwa nazvo. Zvino, nhanho yega chipo, uye ndakatsunga kuramba ndichifambira mberi.

Chinokosha

Kunyangwe rwendo rwangu rwuchiri kure kupera, izvo zvandakadzidza kubva pakuonekwa zvichikosha: Unogona kukunda chero hupenyu hunokandwa kwauri nemhuri uye nenzvimbo inotsigira.

Hazvina mhosva kuti unonzwa kusurukirwa sei, kune vamwe ipapo vanokusimudza uye kuti urambe uchifambira mberi. Kune vanhu vazhinji vakanaka kwazvo pasi pano vanoda kukubatsira munzira.

MS inogona kunzwa kusurukirwa, asi kune rutsigiro rwakawanda kunze uko. Kune chero munhu anoverenga izvi, ungave uine MS kana kuti kwete, izvo zvandakadzidza kubva kuchirwere ichi kusamborega, nekuti "pfungwa dzakasimba muviri wakasimba" uye "MS i BS."

Alexis Franklin mumiriri wemurwere kubva kuArlington, VA akaonekwa aine MS pazera remakore 21. Kubva ipapo, iye nemhuri yake vakabatsira kukwidza zviuru zvemadhora pakutsvaga kweMS uye akafamba munzvimbo huru-DC achitaura nevamwe vadiki vachangobva kuongororwa. vanhu nezve ruzivo rwake nechirwere. Iye ndiye amai vane rudo vechihuahua-musanganiswa, Minnie, uye anofarira kuona Redskins nhabvu, kubika, uye kuruka munguva yake yemahara.