Murume ari kuseri kwe ALS Dambudziko Ari Kunyura Mumabhiri ekurapwa

Zvemukati

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Aimbove mutambi webaseball weBoston College Pete Frates akaonekwa kuti ane ALS (amyotrophic lateral sclerosis), inozivikanwawo sechirwere cheLou Gehrig, muna 2012. Makore maviri gare gare, akauya nezano rekuunganidza mari yechirwere ichi nekugadzira dambudziko reALS iro gare gare. yakava chiitiko chezvemagariro.

Asi nanhasi, sezvo Frates avete pakutsigira hupenyu pamba, mhuri yake iri kuona zvichinetsa kuwana $ 85,000 kana $ 95,000 pamwedzi inodiwa kuti arambe ari mupenyu. "Chero mhuri yaizoputswa nekuda kweizvi," baba vaFrates, John, vakaudza CNN yakabatana WBZ. "Mushure memakore maviri nehafu yerudzi irworwo rwezvinodhura, zvave kusagadzikana zvachose kwatiri. Hatigone kuzviwana."

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Pfungwa yedambudziko reALS yaive nyore: munhu anorasa bhakiti remvura inotonhora pamusoro pemusoro wavo uye anotumira chinhu chose pasocial media. Ipapo, ivo vanopokana shamwari nemhuri kuti vaite zvakafanana kana kupa mari kuiyo ALS Association. (Zvakabatana: Vedu 7 Vanofarira Vakakurumbira Vakatora ALS Ice Bucket Dambudziko)

Mukufamba kwemavhiki masere, zano reFrates rakangwara rakakwidza pamusoro pe $ 115 miriyoni nekuda kwevanhu vanosvika mamirioni gumi nematanhatu vakapinda muchirongwa. Gore rapfuura, Sangano reALS rakazivisa kuti zvipo zvakavabatsira ID yejini rinokonzeresa chirwere chinoita kuti vanhu vatadze kudzora kufamba kwetsandanyama, zvichizopedzisira zvavatorera kugona kudya, kutaura, kufamba uye, pakupedzisira, kufema.

Kwete izvozvo chete asi kutanga kwemwedzi uno FDA yakazivisa kuti mushonga mutsva uchavepo munguva pfupi yekurapa ALS-yekutanga nzira yekurapa itsva inowanikwa muanopfuura makumi maviri emakore. Nehurombo, zvinonetsa kutaura kana kutsvaga uku kuchizobatsira maFrates munguva. Mumwe mubatsiri wekutanga kwedambudziko, Anthony Senerchia ane makore makumi mana nemapfumbamwe, akashaya mukupera kwaNovember 2017 mushure memakore gumi nemana kurwa nechirwere ichi.

Kunyangwe zvichidhura $ 3,000 pazuva kuti arambe ari mupenyu, mudzimai waFrates, Julie anoramba kuendesa murume wake kuchipatara, kunyangwe chingave chakachipa kumhuri. “Tinongoda kumuchengeta pamba nemhuri yake,” akaudza WBZ kuti kupedza nguva nemwanasikana wake ane makore 2 chimwe chezvinhu zvinoita kuti Frates arambe achirwira upenyu hwake.

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Zvino, mhuri yaFrates iri kusvikira kuruzhinji zvakare nekugadzira homwe itsva kuburikidza neiyo ALS Association kubatsira mhuri senge Pete anokwanisa kuchengeta avo vavanoda pamba. Yakapihwa iyo Home Health Care Initiative, chinangwa chayo ndechekusvika madhora miriyoni imwe, uye wekusimudzira mari achaitwa muna Chikumi 5. Tungamira kumusoro kuThe ALS Association kuti uwane rumwe ruzivo.

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