15 Zviwanikwa zveMoms vane Metastatic Breast Cancer
Zvemukati
- 1. Kuchenesa masevhisi
- 2. Kugadzirira kwekudya uye kuendesa
- 3. Musasa wevana vako
- 4. Mahara kupuruzira
- 5. Mabasa ekufambisa
- 6. Kutsvaga kwekutongwa kwechipatara
- 7. Rally shamwari dzako naLotsa Kubatsira Maoko
- 8. Vashandi vezvemagariro
- 9. Zvirongwa zvekubatsira mari
- 10. Mabhuku
- 11. Blogs
- 12. Mapoka ekutsigira
- 13. Murairidzi mumwe-mumwe
- 14. Mawebhusayithi anovimbwa edzidzo
- 15. Kana iwe uine pamuviri
- Tora woenda nazvo
Isu tinosanganisira zvigadzirwa zvatinofunga zvinobatsira kuvaverengi vedu. Kana iwe ukatenga kuburikidza nehukama pane ino peji, isu tinogona kuwana diki komisheni. Heano maitiro edu.
Kana iwe uri amai vadiki vanoonekwa kuti vane metastatic kenza yemazamu (MBC), kugadzirisa mamiriro ako uye kuchengeta vana vako panguva imwe chete kungaratidzika kuchinetsa. Kutatarika mabasa ekurera vana uchichengeta nguva dzakatarwa nachiremba, kugara kwenguva refu muchipatara, mafashama emanzwiro matsva, uye mhedzisiro yemishonga yako ingaite senge isingakwanisike kugadzirisa.
Neraki, pane zvakawanda zviwanikwa zvaunogona kutendeukira kuzano nerutsigiro. Usatya kukumbira rubatsiro. Heano zvimwe zvezvimwe zviwanikwa zvaunowana kwauri.
1. Kuchenesa masevhisi
Kuchenesa Chikonzero isangano risingabatsiri iro rinopa mahara dzimba dzekuchenesa vakadzi vari kurapwa chero rudzi rwekenza muNorth America. Isa ruzivo rwako pane yavo webhusaiti kuti ienzaniswe nekambani yekuchenesa padyo newe.
2. Kugadzirira kwekudya uye kuendesa
Kushumira iyo Washington, D.C., nzvimbo, Chikafu & Shamwari chinhu chisiri purofiti chinopa chikafu, zvekutengesa, uye kuraira kwehutano kune vanhu vanorarama nekenza nezvimwe zvirwere zvisingaperi. Zvekudya zvese mahara, asi iwe unofanirwa kutumirwa nemupi wezvehutano kuti uve unokodzera.
Magnolia Kudya Kumba rimwe sangano rinopa chikafu chinovaka muviri kune vanhu vane gomarara nemhuri dzavo. Magnolia parizvino inowanikwa muzvikamu zveNew Jersey, Massachusetts, New Hampshire, North Carolina, Connecticut, neNew York. Iwe uchagamuchira chikafu chakagadzirirwa kusangana nezvinodiwa zvako zvinovaka muviri iwe nemhuri yako, kana mukakumbirwa.
Kana iwe uchigara kumwe kunhu, bvunza chiremba wako kana mupi wezvehutano nezve ruzivo nezve kugadzirira kwekudya uye kuendesa munzvimbo yako.
3. Musasa wevana vako
Misasa yezhizha inogona kuve nzira inoshamisa yevana yekushushikana-pfungwa, kuwana rutsigiro, uye kuenda kunonakidza kunakidzwa.
Camp Kesem inopa emahara emisasa yezhizha kune vana vane mubereki ane kana ane kenza. Misasa inoitirwa kumayunivhesiti ese muUnited States.
4. Mahara kupuruzira
Kenza kurapwa kunogona kure kure nekuzorora. Iyo isingabatsiri United Cancer Support Foundation inopa "Just 4 U" Mapakeji Ekutsigira ayo anosanganisira kuzorora zvipo zvakasarudzika zvekushandisa panguva yekurapa gomarara.
Tarisika Zvakanaka Unzwe Zvirinyore rimwe sangano rinogona kukudzidzisa iwe runako matekinoroji mukati mekurapwa kwegomarara, sezvizoro, kutarisirwa kweganda, uye dhizaini
5. Mabasa ekufambisa
IAmerican Cancer Society inogona kukupa iwe yemahara kukwira kune kwako kurapwa. Ingofona nhamba yavo yemahara kuti uwane yekufambisa padhuze newe: 800-227-2345.
Unoda kubhururuka kumwe kunhu kuchirapa kwako? Air Charity Network inopa yemahara yendege yekufamba kwevarwere vane zvese zvekurapa uye zvemari zvinodiwa.
6. Kutsvaga kwekutongwa kwechipatara
Breastcancertrials.org inoita kuti kutsvaga kwekurapa kuve nyore. Saamai vakabatikana, pamwe hauna nguva kana moyo murefu wekusefa nemazana emakiriniki emiedzo inoitika munyika yese.
Nechigadzirwa chavo chakasarudzika, unogona kuona muyedzo unoenderana nekenza yemazamu yako uye zvaunoda iwe pachako. Nekujoinha kuyedzwa kwekiriniki, haungogone kuwana marapiro matsva uye ekurapa kuri kubuda kweMBC, asi unenge uchipa kune ramangwana rekurapwa kwekenza yemazamu.
7. Rally shamwari dzako naLotsa Kubatsira Maoko
Shamwari dzako uye nhengo dzemhuri dzinogona kuda kubatsira, asi iwe unogona kunge usina nguva kana tarisiro yekuronga yavo rubatsiro nenzira inoshanda kwazvo. Vanhu zvakare vanowanzo kuve vanodisisa kubatsira kana vangoziva chaizvo zvaunoda. Apa ndipo panonzi sangano rinodaidzwa kuti Lotsa Kubatsira Maoko kupinda.
Uchishandisa yavo webhusaiti kana nharembozha, unogona kuunganidza nharaunda yako yevanobatsira. Wobva washandisa Karenda yeKubatsira kutumira zvikumbiro zvekutsigirwa. Iwe unogona kukumbira zvinhu zvakaita sekudya, kukwira, kana kubata vana. Shamwari dzako uye mhuri vanogona kusaina kuti vabatsire uye iyo app ichavatumira iwo zviyeuchidzo otomatiki.
8. Vashandi vezvemagariro
Oncology vashandi vezvemagariro vakadzidziswa vanoshanda vanobatsira kuita kuti ruzivo rwekenza ruve nyore kwauri nekuvana vako munzira ipi neipi yavanogona. Humwe hunyanzvi hwavo hunosanganisira:
- kupa rutsigiro rwepfungwa kudzikisa kushushikana uye kuwedzera tariro
- kukudzidzisa nzira nyowani dzekugadzirisa
- kubatsira iwe kunatsiridza kutaurirana nechikwata chako chekurapa uye nevana vako
- kukupa iwe ruzivo nezve kurapwa
- kubatsira nekuronga zvemari neinishuwarenzi
- kukupa iwe ruzivo nezve zvimwe zviwanikwa munharaunda yako
Kumbira chiremba wako kuti atumire kune oncology social worker. Iwe unogona zvakare kubatana nemushandi wezvemagariro nekufonera iyo isingabatsiri CancerCare's Hopeline pa800-813-HOPE (4673).
9. Zvirongwa zvekubatsira mari
Mabhiri ekurapa anogona kuunganidzwa mukuwedzera kune mari inouya nekurera vana. Kune masangano mazhinji anopa rubatsiro rwemari kune avo vanoda rubatsiro. Kumbira mushandi wemagariro ako kuti akubatsire kunyorera mafomu erubatsiro aya
- CancerCare Zvemari Rubatsiro
- Vanoshayiwa maMedhi
- Patient Access Network Nheyo
- Iyo Pink Fund
- American Breast Cancer Foundation
- Sangano reU.S. Social Security uye Supplemental Security Income rekuremara
Mazhinji makambani emishonga anopawo mishonga pamitengo yakadzikiswa kana ichapa coupon rekuvhara chero epayipi mari. Iwe unogona kuwana ruzivo rwakadzama nezve kukodzera uye kufukidza pane webhusaiti yekambani pharma kana pawebhusaiti yeiyo chaiyo mhando yemishonga iwe yaunorayirwa.
10. Mabhuku
Vana vako vanogona kuve nenguva yakaoma kubata nekenza yako kuongororwa. Zvakakosha kuchengetedza kutaurirana navo, asi kuita kuti hurukuro itange kunogona kuoma.
Heano mabhuku mashoma anovavarira kubatsira vabereki kutaura nevana vavo nezve gomarara uye kurapwa:
- Mubindu raAmai: Bhuku rekubatsira kutsanangura Cancer kuvana vadiki
- Chii chiri Kumusoro naAmai vaBridget? Medikidz Tsanangura Cancer Yezamu
- Hakuna Kwese Bvudzi: Inotsanangura Kenza Yako uye Chemo kuvana
- Nana, Chii chinonzi Cancer?
- Butterfly Anotsvoda uye Anoshuva pamapapiro
- Mupiro waMai vangu
- Amai uye iyo Polka-Dot Boo-Boo
11. Blogs
Blogs inzira yakanaka kwazvo yekuverenga nyaya dzevamwe vachidarika zvimwe zvezviitiko zvakafanana newe.
Heano mashoma mabloggi ekutsvaga ruzivo rwakavimbika uye nharaunda yekutsigira:
- Kupona Kwechidiki
- Kurarama Kupfuura Kenza Yezamu
- Rega Hupenyu Huitike
- Kenza Yangu Chic
- Gomarara repazamu? Asi Chiremba… Ndinovenga Pink!
- Vamwe Vasikana Vanoda Carnations
12. Mapoka ekutsigira
Kusangana nevamwe vakadzi nanamai vanogovana kuongororwa kwako kunogona kuva sosi huru yekusimbisa nekusimbiswa. Boka rekutsigira iro rakatsaurirwa kune varwere vane metastatic chirwere chingave chiri chinonyanya kubatsira kwauri. METAvivor's Peer kune Peer Tsigiro Mapoka anogona kuwanikwa kuyambuka United States.
Iwe unogona zvakare kubvunza mupi wako wezvehutano kana mushandi wezvemagariro kana paine chero emunharaunda mapoka eMBC ekutsigira avanokurudzira.
13. Murairidzi mumwe-mumwe
Iwe haufanire kusangana nekenza wega. Kana iwe ukasarudza munhu-mumwe-chipangamazano panzvimbo yeboka rutsigiro, funga kutsvaga "Mentor Angel" naImerman Angels.
14. Mawebhusayithi anovimbwa edzidzo
Zvinogona kuyedza kuGoogle zvese nezveMBC, asi panogona kunge paine zvakawanda zvisirizvo, ruzivo rwechinyakare, neruzivo rusina kukwana online. Shandisa aya mawebhusaiti anovimbwa kuti ubatsire kupindura mibvunzo yako.
Kumbira chiremba wako kuti uwane rumwe ruzivo kana iwe usingakwanise kuwana mhinduro dzako kubva kune aya mawebhusaiti:
- Yenyika Bele Cancer Foundation
- American Cancer Society
- Breastcancer.org
- Metastatic Chipfuva cheCancer Network
- Susan G. Komen Nheyo
15. Kana iwe uine pamuviri
Kana iwe uri nepamuviri uye ukaonekwa uine cancer, Tariro yeVaviri… Vane Pamuviri neCancer Network inopa rubatsiro rwemahara. Sangano rinogona zvakare kukusanganisa iwe nevamwe vane nhumbu yekenza izvozvi.
Tora woenda nazvo
Tsvaga rubatsiro kana uchirida. Simba rako rinogona kushomeka paunenge uchirapwa gomarara, saka kukoshesa ndiko kukosha. Kukumbira rubatsiro hakusi kuratidza kugona kwako. Icho chikamu chekuita zvaunogona kwazvo kutarisira vana vako paunenge uchifamba hupenyu neMMBC.