Chii chinonzi Anencephaly?

Zvemukati

• Chii chinokonzera uye ndiani ari panjodzi?
• Inoonekwa sei?
• Ndezvipi zviratidzo?
• Inorapwa sei?
• Anencephaly vs. microcephaly
• Ndeapi maonero?
• Inogona kudzivirirwa here?

Mhedziso

Anencephaly chirema chekuzvarwa umo huropi nemapfupa ehenya hazvigadzike zvakakwana mwana achiri mudumbu. Nekuda kweizvozvo, huropi hwemwana, kunyanya cerebellum, inokura zvishoma. Iyo cerebellum chikamu chehuropi chinonyanya kukonzera kufunga, kufamba, uye kunzwa, kusanganisira kubata, kuona, uye kunzwa.

Anencephaly inoonekwa seiyo neural chubhu hurema. Iyo neural chubhu idombo rakamanikana iro rinowanzovhara panguva yekukura kwechibereko uye rinoumba huropi uye musana. Izvi zvinowanzoitika nevhiki rechina rekuzvitakura, asi kana zvikasadaro, mhedzisiro inogona kuve anencephaly.

Aya mamiriro asingarapike anokanganisa nhumbu nhatu pavane zviuru gumi muUnited States gore rega rega, sekureva kwe. Mune inenge 75 muzana yezviitiko, mwana akazvarwa akafa. Vamwe vana vanozvarwa vaine anencephaly vanogona kungopona maawa mashoma kana mazuva.

Muzviitiko zvakawanda, kubata pamuviri kunosanganisira neural tube kukanganisa kunopera mukuparara.

Chii chinokonzera uye ndiani ari panjodzi?

Chikonzero cheanencephaly hachizivikanwe, izvo zvinogona kunetsa. Kune vamwe vacheche, iyo mhaka inogona kunge iine hukama negene kana shanduko yechromosome. Muzviitiko zvakawanda, vabereki vemucheche havana nhoroondo yemhuri yeanencephaly.

Kuratidzirwa kwaamai kune humwe huturu hwezvakatipoteredza, mishonga, kana kunyangwe chikafu kana zvinwiwa zvinogona kuita basa. Zvisinei, vatsvakurudzi havazivi zvakakwana pamusoro peizvi zvinogona kuisa njodzi asi kuti vape chero nhungamiro kana yambiro.

Kuratidzirwa kumatembiricha akakwirira, kungave kubva ku sauna kana hot tub kana kubva kune yakawanda fivha, kunogona kukwidza njodzi yeiyo neural tube kuremara.

ICleveland Clinic inoratidza mamwe madhiragi ekurapa, kusanganisira mamwe eanoshandiswa kurapa chirwere cheshuga, anogona kuwedzera njodzi yeanencephaly. Chirwere cheshuga uye kufutisa kunogona kuve njodzi panjodzi yekuzvitakura, saka zvinogara zvakanaka kutaura nachiremba wako nezve chero mamiriro asingaperi uye maitiro aanogona kukanganisa kubata kwako.

Imwe yakakosha njodzi njodzi ine hukama neanencephaly kusakwana kwekudya kwe folic acid. Kushayikwa kweichi chinhu chakakosha kunogona kukwidziridza njodzi yako yekuve nemwana ane mamwe mairiyumu ehubhu hurema mukuwedzera kune anencephaly, senge spina bifida. Vakadzi vane nhumbu vanogona kudzikisira njodzi iyi nefolic acid inowedzera kana kuchinjika kwekudya.

Kana iwe wakave nemucheche ane anencephaly, mukana wako wekuva nemwana wechipiri ane mamiriro akafanana kana akasiyana neural tube hurema inowedzera ne4 kusvika 10 muzana. Nhumbu mbiri dzakapfuura dzakabatwa neanencephaly dzinowedzera mwero wekudzokorora kusvika kungangoita gumi kusvika gumi nenhatu muzana.

Inoonekwa sei?

Vanachiremba vanogona kuongorora anencephaly panguva yekuzvitakura kana nekukurumidza mushure mekunge mwana azvarwa. Pakuberekwa, izvo zvisina kujairika zvedehenya zvinogona kuoneka nyore. Mune zvimwe zviitiko, chikamu cheganda chinoshayikwa, pamwe chete nedehenya.

Kuongororwa kwepabonde kweanencephaly kunosanganisira:

• Kuongorora ropa. Yakakwira mazinga echiropa protein alpha-fetoprotein inogona kuratidza anencephaly.
• Amniocentesis. Fluid yakabviswa kubva muamniotic sac yakatenderedza fetus inogona kuongororwa kutsvaga mamaki akati wandei ebudiriro kukura. Yakakwira mazinga ealpha-fetoprotein uye acetylcholinesterase inosanganisirwa neye neural tube zvirema.
• Ultrasound. Yakakwira-frequency kurira mafungu anogona kubatsira kugadzira mifananidzo (sonograms) yeiri kukura fetus pakombuta. Sonogram inogona kuratidza zviratidzo zvepanyama zveanencephaly.
• Fetal MRI scan. A magnetic field uye redhiyo mafungu anogadzira mifananidzo yeiyo fetus. Fetal MRI scan inopa yakawanda yakajeka mifananidzo kupfuura iyo ultrasound.

ICleveland Clinic inoratidza kuyedzwa kwepamuviri kweanencephaly pakati pemasvondo gumi nemana negumi nemasere ekubata. Iyo fetal MRI scan inoitika chero nguva.

Ndezvipi zviratidzo?

Zviratidzo zvinonyanya kuoneka zveanencephaly ndizvo zvisipo zvikamu zvehenya, izvo zvinowanzove mapfupa ari kumashure kwemusoro. Mamwe mapfupa ari pamativi kana kumberi kwe dehenya anogona kunge asipo kana kuumbwa zvisina kusimba. Uropi zvakare hauna kuumbwa mushe. Pasina cerebellum ine hutano, munhu haakwanise kurarama

Zvimwe zviratidzo zvinogona kusanganisira kupetwa kwenzeve, mukanwa makatsemuka, uye mafungiro akashata. Vamwe vacheche vanozvarwa vaine anencephaly vanewo hurema hwemwoyo.

Inorapwa sei?

Iko hakuna kurapwa kana kurapwa kweanencephaly. Mucheche akazvarwa aine chirwere anofanira kuchengetedzwa uye kugadzikana. Kana paine chero zvikamu zveganda remusoro zvisipo, zvakafumurwa zvikamu zvehuropi zvinofanirwa kuvharwa.

Hupenyu hunotarisirwa hwemucheche akazvarwa aine anencephaly haapfuuri mazuva mashoma, angangoita maawa mashoma.

Anencephaly vs. microcephaly

Anencephaly ndeimwe yemamiriro akati wandei anozivikanwa secephalic kusagadzikana. Izvo zvese zvine hukama nematambudziko nekuvandudzwa kweiyo nervous system.

Imwe kusagadzikana kwakafanana neanencephaly mune dzimwe nzira ndeye microcephaly. Mwana anozvarwa aine chirwere ichi ane diki-kupfuura-akajairwa musoro denderedzwa.

Kusiyana neanencephaly, inoonekwa pakuzvarwa, microcephaly inogona kana kunge isipo pakuzvarwa. Inogona kukura mukati memakore mashoma ekutanga ehupenyu.

Mwana ane microcephaly anogona kusangana neyakajairika kumeso kwechiso uye zvimwe zvikamu zvemuviri, uku musoro uchiramba uri mudiki. Mumwe munhu ane microcephaly anogona kunge achikurumidza kunonoka uye kutarisana nehupenyu hupfupi pane mumwe munhu asina cephalic mamiriro.

Ndeapi maonero?

Kunyangwe kuve nemwana mumwe achikura anencephaly kunogona kukuvadza, ramba uchifunga kuti njodzi yekuzotevera nhumbu ichibuda nenzira imwechete ichiri yakaderera. Unogona kubatsira kudzikisira njodzi iyi nekuwedzera nekuita chokwadi kuti unodya zvakakwana folic acid usati uye panguva yekuzvitakura.

ICDC inoshanda neCenters for Birth Defects Research and Prevention pazvidzidzo zvinotsvaga nzira dzakagadziriswa dzekudzivirira nekurapa anencephaly uye nehurema hwese hwekuzvarwa.

Kana iwe uri nepamuviri kana uri kuronga kuve nepamuviri, taura nachiremba wako munguva pfupi nezvenzira dzese dzaunogona kubatsira kuvandudza mikana yekuva nepamuviri hwakanaka.

Inogona kudzivirirwa here?

Kudzivirira anencephaly kunogona kusakwanisika mune zvese zviitiko, asi pane mamwe matanho anogona kudzikisira njodzi.

Kana iwe uri nepamuviri kana uchigona kutora nhumbu, iyo CDC inokurudzira kutora kwezuva nezuva kweinenge. Ita izvi nekutora folic acid yekuwedzera kana nekudya chikafu chakasimbiswa nefolic acid. Chiremba wako anogona kukurudzira musanganiswa wenzira mbiri idzi, zvinoenderana nedhayeti yako.