Nei Zviuru zvevanhu Vari Kugovana Homwe dzeOstomy paSocial Media

Zvemukati

• Kudheerera kwacho kwanga kwakaipa zvekuti mugiredhi repiri, ndakanyepera mhedzisiro yangu ye scoliosis
• Ichi ndicho chokwadi vana vazhinji uye vechidiki vane hurema vanogara navo
• Kuva chikamu chenharaunda inonzwisisa zvauri kupfuura kunogona kuve kusimba kunoshamisa

Zviri mukuremekedza maBridge manomwe, mukomana wechidiki akafa nekuzviuraya.

"Hausi wani!"

"Chii chakaipa newe?"

"Hauna kujairika."

Izvi zvinhu zvese vana vakaremara vanganzwa kuchikoro uye panhandare. Sekutsvagurudza, vana vakaremara vaive nemaviri kana katatu mukana wekushungurudzwa kupfuura vezera ravo vasina kugadzikana.

Pandaive kuchikoro chepuraimari, ndaishungurudzwa zuva nezuva nekuda kwehurema hwangu hwepanyama uye hwekudzidza. Ndainetseka kuenda nekudzika masitepisi, kubata midziyo kana mapenzura, nematambudziko akakomba nekuyanana nekubatana.

Kudheerera kwacho kwanga kwakaipa zvekuti mugiredhi repiri, ndakanyepera mhedzisiro yangu ye scoliosis

Ini ndanga ndisingade kupfeka bhureki yekumashure uye kurapwa zvakanyanya zvakanyanya nevandaidzidza navo, saka ndakasimuka ndakamira kupfuura chimiro changu chechisikigo uye handina kumboudza vabereki vangu kuti chiremba akakurudzira kuti tigare takatarisa.

Kufanana neni, Mazambuko manomwe, mukomana ane makore gumi okuberekwa anobva kuKentucky, aive mumwe wevana vazhinji vaibatwa zvakaipa nekuda kwehurema hwake. Vanomwe vaive vaine chirwere chemuviri chisingaite uye colostomy. Aigara achishungurudzwa. Amai vake vanoti akakwenenzverwa mubhazi nekuda kwehwema hunobva muhudyu hwake.

Musi waNdira 19, Vanomwe vakafa nekuzviuraya.

Zvinoenderana nekumwe kutsvagurudza kuripo pamusoro wenyaya, mwero wekuzviuraya pakati pevanhu vane mamwe marudzi ekuremara wakanyanya zvakanyanya kupfuura kune vanhu vasingagone. Vakaremara vanofa nekuzviuraya vanowanzoita kudaro nekuda kwemesocial mameseji atinogamuchira kubva munharaunda maererano nehurema.

Kune zvakare kubatana kwakasimba pakati pekushungurudzwa nekunzwa kuzviuraya pamwe nedzimwe nyaya dzehutano hwepfungwa.

Nguva pfupi mushure mekufa kwaManomwe, anoshandisa Instagram anonzi Stephanie (anoenda na @lapetitechronie) akatanga hashtag #bagsoutforSeven. Stephanie ane chirwere cheCrohn uye zvachose ileostomy, iyo yaakagovana pikicha pa Instagram.

Ostomy kuvhura mudumbu, kunogona kugara zvachose kana kwechinguva (uye mune yaNomwe, yaive yenguva pfupi). Ostomy inosungirirwa kune stoma, kupera kwematumbo ayo akasonerwa kune ostomy kubvumira marara kuti abve mumuviri, nehomwe inosungira kunotora tsvina.

Stephanie akagovana zvake nekuti aigona kurangarira kunyara uye kutya kwaaigara nako, awana colostomy pazera remakore gumi nemana. Panguva iyoyo, iye aisaziva mumwe munhu ane Crohn's kana ostomy. Aitya kuti vamwe vanhu vaizozviona nekumudherera kana kumudzinga nekuda kwekusiyana.

Ichi ndicho chokwadi vana vazhinji uye vechidiki vane hurema vanogara navo

Tinoonekwa sevokunze tobva tanyombwa zvisingaite uye kusurukirwa nevezera redu. SaStephanie, ini hapana wandaiziva kunze kwemhuri yangu akaremara kusvika ndave mugiredhi rechitatu, pandakaiswa mukirasi yakakosha yedzidzo.

Panguva iyoyo, ini ndaisatomboshandisa rubatsiro rwekufambisa, uye ndinogona kungofungidzira kuti ndinonzwa kusurukirwa zvakanyanya dai ndaishandisa tsvimbo pandaive mudiki, sezvandinoita izvozvi. Pakanga pasina munhu aishandisa rubatsiro rwekufamba kwechimiro chenguva dzose muchikoro changu chepuraimari, chepakati, kana chepamusoro.

Kubva Stephanie paakatanga hashtag, vamwe vanhu vane maostomies vanga vachigovana mafoto avo vega. Uye semunhu akaremara, kuona vatsigiri vachivhura uye vachitungamira nzira yevechidiki zvinondipa tariro yekuti vechidiki vakaremara vanogona kunzwa kutsigirwa - uye kuti vana vakaita seVanomwe havafanirwe kutambura vari vega.

Kuva chikamu chenharaunda inonzwisisa zvauri kupfuura kunogona kuve kusimba kunoshamisa

Kune vanhu vakaremara uye vane chirwere chisingaperi, iko kuchinja kubva kunyadzi uye kuenda kukuremara kwekuremara.

Kwandiri, yaive Keah Brown's #DisabledAndCute yakabatsira kugadzirisa mafungiro angu. Ndaiwanzovanza tsvimbo yangu mumifananidzo; ikozvino, ndinodada nechokwadi kuti zvinoonekwa.

Ini ndaive chikamu chevanhu vakaremara pamberi peiyo hashtag, asi zvakanyanya pandakaziva nezvenharaunda yevakaremara, tsika nemagariro - uye ndikaona vanhu vakaremara vakasiyana siyana vanobva munzvimbo dzakasiyana dzehupenyu vachigovana zviitiko zvavo nemufaro - ndakakwanisa kuona hunhu hwangu hwakaremara sehwunofanirwa kupemberera, kungofanana nekuzivikanwa kwangu kwandaiziva.

Iyo hashtag yakaita se #bagsoutforSeven ine simba rekusvika kune vamwe vana vakaita seMabhiriji manomwe uye kuvaratidza kuti havasi vega, kuti hupenyu hwavo hwakakosha kurarama, uye kuti hurema hachisi chinhu chekunyara nacho.

Muchokwadi, inogona kuve sosi yemufaro, kudada, uye kubatana.

Alaina Leary mupepeti, manejimendi midhiya maneja, uye munyori anobva kuBoston, Massachusetts. Iye parizvino mubatsiri mupepeti weEqually Wed Magazine uye midhiya yemagariro edhisheni yeasina purofiti Tinoda Mabhuku Akasiyana.