Maitiro Ekubhadhara iyo Nyowani RRMS Mishonga

Zvemukati

• 1. Kana usina inishuwarenzi yehutano, tora matanho ekuti uwane inishuwarenzi
• 2. Nzwisisa uye uwane zvakazara kubva kune yako inishuwarenzi yehutano
• 3. Taura neMS Neurologist yako kuti ubatsire kuwana inishuwarenzi kune yako RRMS kurapwa
• 4. Bata zvirongwa zvekubatsira mari
• 5. Tora chikamu mumakiriniki ekuedzwa kweMS
• 6. Funga nezvekuwandisa mari
• 7. Chengetedza mari yako wega
• Kutora

Zvirwere-kugadzirisa marapirwo ekudzokazve-kuregedza akawanda sclerosis (RRMS) anoshanda kunonoka kutanga kwekuremara. Asi mishonga iyi inogona kudhura pasina inishuwarenzi.

Zvidzidzo zvinofungidzira kuti mutengo wepagore wekutanga-chizvarwa MS kurapa wakakwira kubva pamadhora zviuru zvisere muma1990 kusvika kumadhora zviuru makumi matanhatu nhasi. Zvakare, kufamba nenzira dzakaomarara kweinishuwarenzi kufukidza kunogona kuve kwakaoma.

Kukubatsira iwe kuchengetedza kugadzikana kwezvemari uchichinjira kuchirwere chisingaperi senge MS, heino nzira nomwe dzekongiri uye dzekugadzira dzekubhadhara mishonga mitsva yeRRMS.

1. Kana usina inishuwarenzi yehutano, tora matanho ekuti uwane inishuwarenzi

Vazhinji vashandirwi kana mabhizimusi makuru anopa inishuwarenzi yehutano. Kana iyi isiri iyo yako, shanyira healthcare.gov kuti uone zvaunogona kuita. Nepo yakajairwa kunyoreswa nguva yekuvhara kwehutano hwa2017 yaive Ndira 31, 2017, unogona kunge uchiri kukwanisa kunyoresa nguva yakatarwa kana yeMedicaid kana yeVanai Hutano Inishuwarenzi Chirongwa (CHIP).

2. Nzwisisa uye uwane zvakazara kubva kune yako inishuwarenzi yehutano

Izvi zvinoreva kuongorora chirongwa chako chehutano kuti unzwisise mabhenefiti ako, pamwe nekuronga miganho. Makambani mazhinji einishuwarenzi akasarudza mafarmasi, kufukidza chaiwo madhiragi, anoshandisa tiered copayments, uye kushandisa mimwe miganho

Sangano reNational Multiple Sclerosis rakanyora gwara rinobatsira kune akasiyana marudzi einishuwarenzi, pamwe nezviwanikwa zvevasina kuvimbiswa kana vasina inishuwarenzi.

3. Taura neMS Neurologist yako kuti ubatsire kuwana inishuwarenzi kune yako RRMS kurapwa

Vanachiremba vanogona kutumira mvumo yepamberi yekupa kururamiswa kwekurapa kuti iwe ugamuchire kurapwa kwakati. Izvi zvinowedzera mikana yekuti kambani yako yeinishuwarenzi ichafukidza kurapwa. Uye zvakare, taura nevanoratidzira pane yako MS nzvimbo kuti unzwisise izvo inishuwarenzi yako inovhara uye isingavhare kuitira kuti iwe usashamisike nemari yako yehutano.

4. Bata zvirongwa zvekubatsira mari

Sangano reNational Multiple Sclerosis rakanyora runyorwa rwezvirongwa zvekugadzira zvigadzirwa zvemushonga wega wega weMS. Uye zvakare, timu yeMS vafambisi vengarava kubva munharaunda vanogona kupindura yakatarwa mibvunzo. Vanogona zvakare kubatsira neshanduko muinishuwarenzi, kutsvaga rakasiyana chirongwa cheinishuwarenzi, kuvhara macopayments, uye zvimwe zvinodiwa zvemari.

5. Tora chikamu mumakiriniki ekuedzwa kweMS

Avo vanotora chikamu mumakiriniki ekuedzwa vanobatsira kufambisira mberi kurapwa kweMS, uye kazhinji vanogashira kurapwa mahara.

Kune akasiyana emakiriniki ekuedzwa. Yekutarisa miedzo inopa MS kurapa uchiongorora vatori vechikamu nekuwedzera ekuongorora bvunzo.

Randomized miedzo inogona kupa mushonga unoshanda uyo usati wagamuchirwa neU.S.Food and Drug Administration (FDA). Asi pane mukana wekuti mutori wechikamu agamuchire placebo kana yechinyakare FDA-inogamuchirwa MS mushonga.

Izvo zvakakosha kuti unzwisise zvakanakira nenjodzi dzekutora chikamu mukuedzwa kwekiriniki, kunyanya kune ekurapa ayo asati abvumidzwa.

Kumbira chiremba wako nezvekiriniki miedzo iri munharaunda mako, kana ita zvako wega online. National Multiple Sclerosis Society ine chinyorwa chemakiriniki ekuedzwa kunoitwa kutenderera nyika.

6. Funga nezvekuwandisa mari

Vanhu vazhinji vane chikwereti chepamusoro chekurapa vakatendeukira kune vanhu vazhinji kuti vabatsirwe. Kunyangwe izvi zvichida humwe hunyanzvi hwekushambadzira, nyaya inomanikidza, uye imwe mhanza, haisi nzira isina musoro kana dzimwe sarudzo dzisipo. Tarisa uone YouCaring, yepasirese yakazara nzvimbo yekubhadhara mari.

7. Chengetedza mari yako wega

Nokuronga kwakanaka, kuongororwa kweMS kana chimwe chirwere chisingaperi hakufanirwe kukonzera kusahadzika kwemari kamwe kamwe. Shandisa mukana uno kutanga nyowani mune zvemari. Ita musangano nemurongi wezvemari, uye unzwisise basa rekubviswa kwezvechiremba mumitero inodzoka.

Kana iwe uchinge uine hurema hwakawandisa nekuda kweMS, taura nachiremba wako nezve kunyorera Social Security hurema inishuwarenzi.

Kutora

Usarega mari ichikudzivirira kubva pakugamuchira iyo MS kurapa kwakakukodzera. Kutaura newe MS neurologist idanho rekutanga rakanaka. Ivo vanowanzove nekwaniso kune zviwanikwa zvakakosha uye vanogona kukureverera panzvimbo yako zvinobudirira kupfuura dzimwe zhinji nhengo dzeboka rako rekutarisira.

Tora mutoro wezvemari yako, uye uzive kuti zvinokwanisika kurarama hupenyu hunogutsa uye hwemari hwakazvimiririra kunyangwe uine MS.

Kuzivisa: Panguva yekuburitswa, munyori haana hukama hwemari nevagadziri veMS therapy.