Ndekupi Kwaungaenda Iwe Kana Vanachiremba Vasingakwanise Kukuziva Iwe?

Zvemukati

• Ndipo paakaenda online, ndokuwana zviuru zvevanhu vachigara nezviratidzo zvakafanana
• Iye zvino arikugovana nyaya yake, nekuti haadi kuti vamwe vanhu vaende vasina kuziva nenzira yaakaita
• Nhaurirano dzakadai ndedze kutanga kwakakosha kushandura masangano edu netsika nemagariro edu - {textend} nekuvandudza hupenyu hwevanhu vanorarama nezvirwere zvisinganzwisisike uye zvisina kuongororwa.

Mumwe mukadzi arikugovana nyaya yake kubatsira mamirioni evamwe.

"Wakafamba zvakanaka."

"Zvese zviri mumusoro mako."

"Uri hypochondriac."

Izvi ndizvo zvinhu zvakanzwiwa nevanhu vazhinji vakaremara uye vane chirwere chisingaperi - {textend} uye murwiri wezvehutano, director we documentary "Kusagadzikana" uye mumwe weTED weJen Brea akazvinzwa zvese.

Izvo zvese zvakatanga paakange aine fever ye104 degrees uye iye akaibvisa. Aive nemakore makumi maviri nemasere uye aine hutano, uye sevanhu vazhinji vezera rake, aifunga kuti haakundike.

Asi mukati memavhiki matatu, akange aine dzungu zvekuti aisakwanisa kubva pamba pake. Dzimwe nguva aisakwanisa kudhirowa kurudyi kwedenderedzwa, uye pane dzimwe nguva dzaaitadza kufamba kana kutaura zvachose.

Akaona ese marudzi ekiriniki: rheumatologists, masayendisiti, endocrinologists, cardiologists. Hapana akakwanisa kuziva kuti chii chaiitika paari. Akave akavharirwa pamubhedha wake kweanoda kusvika makore maviri.

"Chiremba wangu angadai akazviwana zvisizvo sei?" anoshamisika. "Ndakafunga kuti ndaiva nechirwere chisingawanzoitiki, chimwe chinhu icho vanachiremba vasati vamboona."

Ndipo paakaenda online, ndokuwana zviuru zvevanhu vachigara nezviratidzo zvakafanana

Vamwe vavo vaive vakanamatira pamubhedha saye, vamwe vaigona kungoshanda basa-remaawa.

"Vamwe vairwara zvekuti vaifanira kurarama murima rakazara, vasingakwanise kutsungirira inzwi revanhu kana kubata kwemudiwa," anodaro.

Pakupedzisira, akaonekwa aine myalgic encephalomyelitis, kana sekuzivikanwa kwazvo, chisingaperi kuneta chirwere (CFS).

Chiratidzo chakajairika chekusingaperi kuneta chirwere kuneta kwakanyanya zvakakwana kuti kukanganise zviitiko zvako zvezuva nezuva, izvo hazvivandudze nekuzorora, uye zvinogara kweinenge mwedzi mitanhatu.

Zvimwe zviratidzo zveCFS zvinogona kusanganisira:

• post-exertional malaise (PEM), uko zviratidzo zvako zvinowedzera zvakanyanya mushure mekuita chero kwepanyama kana kwepfungwa
• kurasikirwa ndangariro kana kuisa pfungwa
• kunzwa kusagadzikana mushure mekurara kwehusiku
• kusuruvara kusingaperi (uye zvimwe zvinokanganisa kurara)
• kurwadziwa kwemhasuru
• kazhinji musoro
• marwadzo mazhinji-akabatanidzwa asina kutsvuka kana kuzvimba
• kugara uchirwadza pahuro
• nyoro uye kuzvimba lymph nodes mumutsipa wako uye muhapwa

Kunge zviuru zvevamwe vanhu, zvakatora makore kuti Jen aongororwe.

Sekureva kweInstitute of Medicine, sagore ra2015, CFS inoitika munenge mazana mazana masere nemakumi matanhatu nematanhatu kusvika pamazana maviri nezviuru mazana maviri emaAmerican Inofungidzirwa, zvisinei, kuti 84 kusvika 91 muzana havasati vaonekwa vachiri.

"Iro tsika yakanaka jeri," anodaro Jen, achitsanangura kuti kana murume wake akamhanya, angarwadziwa kwemazuva mashoma - {textend} asi kana akaedza kufamba hafu yebhuru, anogona kunge akanamira pamubhedha kwevhiki.

Iye zvino arikugovana nyaya yake, nekuti haadi kuti vamwe vanhu vaende vasina kuziva nenzira yaakaita

Ndosaka ari kurwira chisingaperi kuneta chirwere kuti chizivikanwe, chidzidziswe, uye kurapwa.

"Vanachiremba havarape uye sainzi haitidzidze," anodaro. “[Chronic fatigue syndrome] chimwe chezvirwere zvisingabhadharwe mari. MuU.S. gore rega rega, tinoshandisa mari inosvika madhora zviuru zviviri nemazana mashanu pamurwere weAIDS, $ 250 pamurwere weMS, uye madhora mashanu chete pagore pamurwere we [CFS]. ”

Paakatanga kutaura pamusoro pezvaakasangana nazvo nekusingaperi kuneta chirwere, vanhu munharaunda yake vakatanga kusvika. Akazviwana ari pakati peboka revakadzi vane makore ekupedzisira makumi maviri avo vaitarisana nezvirwere zvakakomba.

"Chairova chaingova chete dambudziko rakawanda ratiri kutorwa zvakakomba," anodaro.

Mumwe mukadzi ane scleroderma akaudzwa kwemakore kuti zvese zvaive mumusoro wake, kudzamara ziso rake rakakuvara zvekuti haachakwanise kudya zvakare.

Mumwe ane gomarara remuchibereko akaudzwa kuti aingotangisa kuenda kumwedzi. Imwe shamwari yekoreji bundu reropi rakaonekwa zvisizvo sekushushikana.

"Heino chikamu chakanaka," anodaro Jen, "kunyangwe zvese, ndichine tariro."

Iye anotenda mukusimba uye kushanda nesimba kwevanhu vane chisingaperi kuneta chirwere. Kuburikidza nekuzvimiririra uye kuuya pamwechete, ivo vakadya izvo zviripo tsvakiridzo uye vakakwanisa kudzorera zvidimbu zvehupenyu hwavo.

"Pakupedzisira, pazuva rakanaka, ndakakwanisa kubva pamba pangu," anodaro.

Iye anoziva kuti kugovana nyaya yake uye nyaya dzevamwe kuchaita kuti vanhu vazhinji vazive, uye zvinogona kusvika kune mumwe munhu asina kuziva CFS - {textend} kana chero munhu ari kunetseka kuzvimiririra - {textend} anoda mhinduro.

Nhaurirano dzakadai ndedze kutanga kwakakosha kushandura masangano edu netsika nemagariro edu - {textend} nekuvandudza hupenyu hwevanhu vanorarama nezvirwere zvisinganzwisisike uye zvisina kuongororwa.

"Kurwara uku kwakandidzidzisa kuti sainzi nemishonga zvinoitwa nevanhu," anodaro. "Vanachiremba, masayendisiti, uye vagadziri vemitemo havasi vakasununguka pane zvakafanana zvinokanganisa isu tese."

Zvinotonyanya kukosha: “Tinofanira kuda kutaura kuti: Handizive. 'Handizive' chinhu chakanaka. "Handizive" ndipo panotangira kutsvaga. "

Alaina Leary mupepeti, manejimendi midhiya maneja, uye munyori anobva kuBoston, Massachusetts. Parizvino ndiye mubatsiri mupepeti weEqually Wed Magazini uye midhiya enhau midhiya yeasina purofiti Tinoda Mabhuku Akasiyana.