Spina Bifida Haina Kumisa Mukadzi Uyu Kubva Kumhanya Half Marathons uye Kupwanya Spartan Race

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Misty Diaz akazvarwa aine myelomeningocele, iyo yakanyanya kuoma spina bifida, hurema hwekuzvarwa hunotadzisa musana wako kukura zvakanaka. Asi izvo hazvina kumutadzisa kubva mukuzvidza izvo zvisingaite uye kurarama hupenyu hunoshingairira hapana aifunga kuti zvaigona.

"Kukura, handina kumbobvuma kuti pane zvinhu zvandisingakwanise kuita, kunyangwe vanachiremba vakandiudza kuti ndinotambura kufamba kweupenyu hwangu hwese," anodaro. Chimiro. "Asi ini handina kumbobvira ndarega izvozvo zvichisvika kwandiri. Dai paive nemamita makumi mashanu- kana zana remamita, ndaizosaina, kunyangwe zvaireva kufamba newangu wandinofamba naye kana kumhanya nemadondoro angu." (Yakabatana: Ndiri Amputee uye Mudzidzisi-Asi Haana Kutsika Tsoka MuGym Kusvikira Ndave 36.

Panguva yaakange ave mumakore ake ekutanga makumi maviri, zvakadaro, Diaz akange avhiyiwa makumi maviri nemasere, iro rekupedzisira richikonzera matambudziko. "Kuvhiyiwa kwangu makumi maviri nemasere kwakaguma rave basa rakachekererwa," anodaro. "Chiremba aifanirwa kucheka chikamu chemuura hwangu asi akazoguma atora zvakawandisa. Nekuda kweizvozvo, ura hwangu hunosundira padyo padumbu rangu, zvinova zvisina kugadzikana, uye ndinofanira kurega zvimwe zvekudya."

Panguva iyoyo, Diaz aifanirwa kuenda kumba zuva rekuvhiyiwa asi akazopedza mazuva gumi ari muchipatara. “Ndairwadziwa zvisingaite uye ndakanyorerwa morphine yandaifanira kunwa katatu pazuva,” anodaro. "Izvi zvakakonzera kupindwa muropa nemapiritsi, zvakanditorera mwedzi kuti ndikunde."

Semhedzisiro yemushonga wekurwadziwa, Diaz akazviwana ave mune mhute isingagumi uye akatadza kufambisa muviri wake sezvaaimboita. "Ndainzwa kushaya simba zvisingaite uye ndakanga ndisina chokwadi kana hupenyu hwangu hwaizove hwakafanana zvakare," anodaro. (Zvakabatana: Zvese Zvaunofanirwa Kuziva Usati Watora Prescription Painkillers)

Akapedzwa nemarwadzo, akawira mukuora mwoyo kwakadzika uye, dzimwe nguva, akatombofunga kuzviuraya. "Ndakanga ndichangobva mukurambana, ndakanga ndisingawani mari, ndakanga ndichinyura mumari yezvokurapa, uye ndakatarisa Salvation Army ichidzokera munzira yangu uye yakatora zvinhu zvangu zvose. Ndakatofanira kupa imbwa yangu yebasa nokuti ndakanga ndi ndave nenguva yekuzvichengeta,” anodaro. "Zvakasvika panguva yandakabvunza kuda kwangu kurarama."

Chakaita kuti zvinhu zviome ndechekuti Diaz aisaziva mumwe munhu anga ari mushangu dzake kana mumwe munhu waanogona kufananidzana naye. "Hakuna magazini kana pepanhau panguva iyoyo raiburitsa vanhu vane musana bifida vaiedza kurarama vachishandira kana hupenyu hwakajairika," anodaro."Ndakanga ndisina munhu wandaigona kutaura naye kana kutsvaka mazano kwaari. Kushaikwa kwemumiririri ikoko kwakaita kuti ndisava nechokwadi pamusoro pezvandaifanira kutarisira, kuti ndaifanira kutungamira sei hupenyu hwangu, kana zvandaifanira kutarisira kubva mazviri."

Kwemwedzi mitatu inotevera, Diaz mubhedha akashanda, achipa kubhadhara shamwari nekuita mabasa epamba. “Panguva iyi ndipo pandakatanga kufamba zvakanyanya kudarika zvandainge ndajaira,” anodaro. "Pakupedzisira, ndakaona kuti kufambisa muviri wangu kwakandibatsira kuti ndinzwe zvirinani panyama nepfungwa."

Saka Diaz akaisa chinangwa chekufamba nekuwedzera zuva nezuva mukuedza kujekesa pfungwa dzake. Akatanga aine diki chinangwa chekungodzika nenzira yekubhokisi retsamba. "Ini ndaida kutanga kumwe kunhu, uye izvo zvakaita senge chinogoneka," anodaro.

Panguva iyi Diaz akatangawo kupinda misangano yeAA kuti amubatsire kuti arambe akatsiga sezvo aizvibvisa pamishonga yaakange arairwa. “Mushure mekunge ndafunga kuti ndicharega kunwa mapiritsi angu ekunyaradza marwadzo, muviri wangu wakabva watanga kurega – izvo zvakaita kuti ndione kuti ndakanga ndapindwa muropa,” anodaro. "Kuti ndigone, ndakafunga kuenda kuAA kuti ndinotaura nezve izvo zvandaisangana nazvo uye nekuvaka rutsigiro apo ini ndaiyedza kudzosera hupenyu hwangu pamwechete." (Zvakabatana: Uri Accidental Addict?)

Zvichakadaro, Diaz akakwira chinhambwe chake chekufamba ndokutanga kuita nzendo dzakatenderedza block. Nenguva isipi chinangwa chake chakanga chiri chokusvika kumhenderekedzo yegungwa yaiva pedyo. "Hazvina musoro kuti ndakagara pedyo negungwa hupenyu hwangu hwese asi ndisina kumbobvira ndafamba rwendo kuenda kugungwa," anodaro.

Rimwe zuva, paakanga ari parwendo rwake rwezuva nezuva, Diaz aive nekushandurwa kwehupenyu: "Hwangu hupenyu hwese, ndanga ndiri pane imwe mishonga kana imwe," anodaro. "Uye mushure mekunge ndarumura morphine, kekutanga nguva dzose, ndakanga ndisina zvinodhaka. Saka rimwe zuva pandakanga ndiri pane imwe nzendo dzangu, ndakaona ruvara kekutanga. Ndinoyeuka ndichiona ruva repingi uye ndichiziva kupinki "Ndinozviziva kuti zvinoita kunge zvakapusa, asi ndakanga ndisati ndambonakidzwa nekunaka kwakaita nyika. Kuva kure nemishonga yese kwakandibatsira kuona izvozvo." (Zvakafanana: Mashandisiro Akaita Mumwe Mukadzi Mumwe Mushonga Kuti Akunde Kutsamira Kwake Opioid)

Kubva panguva iyoyo zvichienda mberi, Diaz akaziva kuti aida kushandisa nguva yake ari kunze, achishingaira, uye achiona hupenyu zvizere. "Ndakasvika kumba musi iwoyo ndikabva ndangosaina kufamba kwetsitsi uko kwaiitika muvhiki kana zvakadaro," anodaro. "Kufamba kwakaita kuti ndinyore 5K yangu yekutanga, yandakafamba. Zvadaro pakutanga kwe2012, ndakanyorera Ronald McDonald 5K, yandakamhanya."

Manzwiro akaitwa naDiaz mushure mekupedza mujaho uyu aive asingaenzaniswi nechero chinhu chaakambonzwa. "Pandakasvika kumutsetse wekutanga, munhu wese ainditsigira uye achikurudzira," anodaro. "Uyezve pandakatanga kumhanya, vanhu kubva padivi vakanga vava kupenga vachindifadza. Vanhu vanga vachibuda mudzimba dzavo kuzonditsigira uye zvakaita kuti ndinzwe senge ndisiri ndega. Kuziva kukuru kwaive kuti kunyangwe ini Ndakanga ndiri pamadondoro angu uye ndakanga ndisiri mumhanyi, ndakatanga ndokupedza pamwe chete navanhu vakawanda. Ndakaona kuti hurema hwangu hwaisafanira kundidzora shure. Ndaigona kuita chinhu chipi nechipi chandaiisa ndangariro yangu kwachiri. (Related: Pro Adaptive Climber Maureen Beck Anokunda Makwikwi neRuoko Rumwe)

Kubva ipapo zvichienda mberi, Diaz akatanga kusaina ma5Ks akawanda sezvaaigona uye akatanga kuvandudza zvinotevera. “Vanhu vakatorwa kunyaya yangu,” anodaro. "Vaida kuziva kuti chii chakandikurudzira kuti ndimhanye uye kuti ndakakwanisa sei, kupihwa hurema hwangu."

Zvishoma nezvishoma asi chokwadi, masangano akatanga kutora Diaz kuti ataure pazviitiko zveveruzhinji uye nekugovana zvakawanda nezve hupenyu hwake. Zvichakadaro, akaramba achimhanya achienda kure, achizopedzisa hafu yemarathoni munyika yose. "Pane imwe nguva ndakaita ma5Ks akati wandei pasi pebhandi rangu, ndaive nenzara yezvakawanda," anodaro. "Ndaida kuziva kuti muviri wangu waigona kuita zvakawanda sei kana ndikausundira zvakasimba."

Mushure memakore maviri achitarisa kumhanya, Diaz akaziva kuti akagadzirira kutora zvinhu nhanho kumberi. “Mumwe wevarairidzi vangu akabva kuhalf marathon kuNew York akati aidzidzisawo vanhu kumijaho yeSpartan, uye ndakaratidza chido chekukwikwidza mumutambo uyu,” anodaro. "Akataura kuti akanga asati ambodzidzisa munhu akaremara kuSpartan kare, asi kuti kana paine aigona kuzviita, ndini."

Diaz akapedza mujaho wake wekutanga weSpartan muna Zvita 2014-asi zvaive kure nekukwana. “Pandakazopedza mijaho mishoma yeSpartan ndipo pandakanyatsonzwisisa kuti muviri wangu waigona sei kujairana nezvimwe zvipingamupinyi,” anodaro. "Ini ndinofunga kuti ndipo panoodzwa mwoyo vanhu vakaremara. Asi ndinoda kuti vazive kuti zvinotora nguva yakawanda uye kudzidzira kudzidza tambo. Ndaifanira kuita zvakawanda zvekufamba mumigwagwa, kurovedza muviri, uye kudzidza kutakura. uremu pamapfudzi angu ndisati ndasvika panguva yokuti ndakanga ndisiri munhu wokupedzisira pachikoro. Asi kana ukashingirira, unogona kusvika ikoko zvechokwadi." (PS Iyi yekumisidzana kosi yekurovedza muviri ichakubatsira iwe kudzidzira chero chiitiko.)

Nhasi, Diaz apedza 200 5Ks, hafu yemarathoni, uye zvipingamupinyi-kosi zviitiko kutenderera pasirese-uye anogara akadzika pasi kune rimwe dambudziko. Munguva pfupi yapfuura, akatora chikamu muRed Bull 400, mujaho wepasi rose wemamita mazana mana. "Ndakaenda kumusoro sezvandaigona pamadondoro angu, ndikabva ndadhonza muviri wangu (sekukwasva) ndisina kumbocheuka kana kamwe chete," anodaro. Diaz akapedza mujaho uyu mune inonakidza maminetsi makumi maviri nemashanu.

Kutarisa kumberi, Diaz anogara achitsvaga nzira nyowani dzekuzvipikisa iye achikurudzira vamwe mukuita. “Pane imwe nguva yandakambofunga kuti handifi ndakakwanisa kukwegura,” anodaro. "Zvino, ini ndiri muchimiro chakanakisa chehupenyu hwangu uye ndinotarisira kupwanya zvakatowanda zvidzidziso nezvipingaidzo kuvanhu vane musana bifida."

Diaz auya kuzotarisa kuve nehurema semunhu anoshamisa kugona. "Unogona kuita chero chaunoda kana ukaisa pfungwa dzako pazviri," anodaro. "Kana ukatadza, dzokera kumusoro. Ramba uchienderera kumberi. Uye zvinonyanya kukosha, fara nezvauinazvo panguva ino uye bvumira izvo kuti zvikupe simba, nekuti hauzive kuti hupenyu hunokanda nzira yako sei."

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