Gore Rangu Rokutanga neMS

Zvemukati

• Marie Robidoux
• Janet Perry
• Doug Ankerman
• Kutora

Kudzidza uine multiple sclerosis (MS) kunogona kukonzera mafungu emanzwiro. Pakutanga, unogona kusununguka kuti iwe unoziva chiri kukonzera zviratidzo zvako. Asi zvadaro, pfungwa dzekuremara uye kushandisa wiricheya zvinogona kuita kuti iwe uvhunduke nezve zviri pamberi.

Verenga kuti vanhu vatatu vane MS vakapfuura sei mugore ravo rekutanga uye vachiri kurarama hupenyu hune hutano, hune zvibereko.

Marie Robidoux

Marie Robidoux aive nemakore gumi nemanomwe paakaonekwa aine MS, asi vabereki vake nachiremba vakazvichengeta zvakavanzika kusvika pagumi nemana ekuberekwa kwake. Akanga akatsamwa uye akaora mwoyo.

"Ndakarwadziwa pandakaziva kuti ndaive neMS," anodaro. “Zvakanditorera makore kuti ndinzwe kugadzikana zvakakwana kuti ndiudze chero munhu kuti ndine MS. Zvaiita kunge kushorwa. [Zvaiita kunge ndiri pariah, munhu wekugara kure naye, wandinodzivirira. ”

Kufanana nevamwe, gore rake rekutanga rakanga rakaoma.

"Ndakapedza mwedzi ndichiona zvakapetwa, kazhinji ndakarasikirwa nemakumbo angu, ndaive nenyaya dzebhalansi, zvese izvi ndichiyedza kuenda kukoreji," anodaro.

Nekuti Robidoux akange asina tarisiro yechirwere, akafunga kuti yaive "mutongo werufu." Akafunga kuti, zvirinani, anozopedzisira ave munzvimbo inochengetwa, achishandisa wiricheya, uye kuvimba zvizere nevamwe.

Anoshuva dai aiziva kuti MS inobata munhu wese zvakasiyana. Nhasi, iye anongo ganhurirwa nekufamba kwake, achishandisa tsvimbo kana chishongo kumubatsira kufamba, uye anoramba achishanda nguva yakazara.

"Ndakakwanisa kuchinjika, dzimwe nguva kunyangwe ini, kune ese mabhora emakakandirwa kwandiri neMS," anodaro. "Ndinonakidzwa noupenyu uye ndinofarira zvandinokwanisa pandinogona."

Janet Perry

"Kune vanhu vazhinji vane MS, pane zviratidzo, kazhinji zvinofuratirwa, asi zviratidzo zvisati zvaitika," Janet Perry anodaro. "Kwandiri, rimwe zuva ndaive ndakapora, ipapo ndaive ndakashata, ndichiwedzera kuipa, uye muchipatara mukati memazuva mashanu."

Chiratidzo chake chekutanga chaive kutemwa nemusoro, kuchiteverwa nedzungu. Akatanga kumhanyira mumadziro, uye akasangana nekuona zvakapetwa, kusarongeka, uye kushaya ruoko kuruboshwe. Akazviwana achichema uye ari munzvimbo yekushushikana pasina chikonzero.

Zvakadaro, paakabatwa chirwere, kunzwa kwake kwekutanga kwaive kunzwa kwekusununguka. Vanachiremba vaive vambofunga kuti yake yekutanga MS kurwisa kwaive sitiroko.

"Yakanga isiri mutongo werufu," anodaro. “Inogona kurapwa. Ini ndaigona kurarama ndisina kutyisidzirwa pamusoro pangu. ”

Chokwadi, mugwagwa kumberi waisave nyore. Perry aifanira kudzidzira mafambiro, kukwira masitepisi, uye nemusoro wekutenderedza musoro wake asinganzwe kureruka.

"Ndakanga ndakaneta kupfuura chero chinhu chipi zvacho nekugara ndichiedza kwese," anodaro. "Iwe haugone kufuratira zvinhu zvisingashande kana izvo zvinongoshanda chete kana iwe uchifunga nezvazvo. Izvi zvinokumanikidza kuti uzive uye munguva pfupi. ”

Iye akadzidziswa kuve anonyanya kufunga, achifunga nezve izvo muviri wake panyama zvinogona uye zvaasingagone kuita.

"MS chirwere chechipupurika uye nekuti kurwisa hakugone kufungidzirwa, zvine musoro kuronga kumberi," anodaro.

Doug Ankerman

"Pfungwa yeMS yakandidya," anodaro Doug Ankerman. "Kwandiri, MS yakanga yakanyanya kukuvadza musoro wangu kupfuura muviri wangu."

Chiremba wekutanga waAnnerman akafungira MS mushure mekunyunyuta kwekugwinha muruoko rwake rweruboshwe uye kuomarara kwegumbo rerudyi. Pakazara, zviratidzo izvi zvakaramba zvakaenzana mukati megore rake rekutanga, izvo zvakamutendera kuti ahwande kubva kuchirwere.

"Handina kuudza vabereki vangu kwemwedzi inenge mitanhatu," anodaro. “Pandaivashanyira, ndaipinda muchivande muimba yekugezera kuti ndipfure kamwe chete pavhiki. Ndaiita sendine hutano, saka sei uchiudza vamwe nhau idzi? ”

Achitarisa kumashure, Ankerman anoziva kuti kuramba kwake kuongororwa, uye "kuisundira zvakadzika muwadhiropu," yaive mhosho.

"Ndinonzwa kuti ndakarasikirwa nemakore mashanu kana matanhatu ehupenyu hwangu ndichitamba mutambo wekuramba," anodaro.

Mumakore gumi nemasere apfuura, hutano hwake hwakadzikira zvishoma nezvishoma. Iye anoshandisa zvinoverengeka zvinoyamura zvekufambisa, zvinosanganisira tsvimbo, kudzora ruoko, uye wiricheya kutenderera. Asi haaregerere ma hang-ups aya achimudzikisira.

"Ndiri parizvino neMS yangu yakandityisa pandakatanga kuongororwa, uye ndinoona kuti haina kunyanya kushata," anodaro. "Ndiri nani kupfuura vazhinji vane MS uye ndinotenda."

Kutora

Kunyange MS ichibata munhu wese zvakasiyana, vazhinji vanoona kurwa kwakafanana uye kutya mugore rekutanga mushure mekuongororwa. Zvinogona kuve zvakaoma kusvika pakubvumirana nehutachiona hwako uye kudzidza maitiro ekugadzirisa hupenyu neMS. Asi vanhu vatatu ava vanoratidza kuti iwe unogona kupfuura izvo kusava nechokwadi kwekutanga uye kunetseka, uye kupfuura zvaunotarisira mune ramangwana.