Ulcerative Colitis Taboos: Izvo Zvinhu Izvo Pasina Anombotaura Nezvazvo
Zvemukati
Ndave ndichigara neusingaperi ulcerative colitis (UC) kwemakore mapfumbamwe. Ndakaonekwa muna Ndira 2010, gore mushure mekufa kwababa vangu. Mushure mekuve mukuregererwa kwemakore mashanu, UC yangu yakadzoka nekutsiva muna 2016.
Kubva ipapo, ndanga ndichirwira, uye ndichiri kurwa.
Mushure mekunetesa mishonga yese yakabvumidzwa neFDA, ndakanga ndisina imwe sarudzo kunze kwekuvhiyiwa kwangu kwekutanga katatu muna 2017. Ndakanga ndine ileostomy, apo vanovhiya vakabvisa ura hwangu hukuru ndokundipa kabhegi kechinguva kemastomy. Mwedzi mishoma gare gare, chiremba wangu akavhiya rectum yangu ndokugadzira J-pouch iyo yandakanga ndichine bhegi rechinguva reostomy. Kuvhiyiwa kwangu kwekupedzisira kwakaitika musi waNyamavhuvhu 9, 2018, kwandakave nhengo yekirabhu yeJ-pouch.
Rwave rwakareba rwendo, rwakashata, uye rwakakura rwendo rwekutaura zvishoma. Mushure mekuvhiyiwa kwangu kwekutanga, ndakatanga kukurudzira vamwe vangu vane chirwere chinoputira chirwere, ostomate, uye J-pouch varwi.
Ini ndachinja magiya mune rangu basa semufashoni stylist uye ndaisa simba rangu mukusimudzira, kudurura kuziva, uye kudzidzisa nyika nezve ichi autoimmune chirwere kuburikidza neangu Instagram uye blog. Ndicho chishuwo changu chikuru muhupenyu uye sirivheri yakanamatira yechirwere changu. Chinangwa changu kuunza izwi kune ino yakanyarara uye isingaonekwe mamiriro.
Pane zvakawanda zvinoitika zveUC zvausina kuudzwa kana vanhu vanodzivisa kutaura nezvazvo. Kuziva zvimwe zvezvinhu izvi kwaizonditendera kuti ndinzwisise uye nepfungwa kugadzirira rwendo rwangu rwuri pamberi.
Iyi ndiyo taboos yeUC ndinoshuva dai ndaiziva makore mapfumbamwe apfuura.
Mishonga
Chinhu chimwe chandisina kuziva pandakatanga kuongororwa ndechekuti zvaitora nguva kutora chikara ichi pasi pesimba.
Iniwo handina kuziva kuti panogona kuuya nguva yekuti muviri wako unoramba mushonga wese waunoedza. Muviri wangu wakasvika paunogumira, uye ndokumira kupindura chero chinhu chingandibatsira kuti ndiregererwe.
Zvakatora rinenge gore kusvikira ndawana musanganiswa wakakodzera wemishonga yemuviri wangu.
Kuvhiya
Hazvina kumbobvira mumakore emamiriyoni ini ndaifunga kuti ndaizoda kuvhiyiwa, kana kuti UC yaizoita kuti ndide kuvhiyiwa.
Kekutanga nguva pandakanzwa izwi rekuti "kuvhiya" raive makore manomwe mukuva neUC. Nomuzvarirwo, ndakabhowodza maziso angu kunze nekuti ndaisatenda kuti ichi ndicho chokwadi changu. Ichi chaive chimwe chezvisarudzo zvakaoma zvandaifanira kuita.
Ndainzwa ndisina kuona zvachose nechirwere changu nenyika yekurapa. Zvakanga zvakaoma zvakakwana kubvuma chokwadi chekuti chirwere ichi hachina mushonga uye kuti hapana chikonzero chekongiri.
Pakupedzisira, ndaifanira kuvhiyiwa katatu kukuru. Chimwe nechimwe cheizvi chakanditorera panyama nepfungwa.
Hutano hwepfungwa
UC inobata zvinopfuura zvako zvemukati chete. Vanhu vazhinji havataure nezve hutano hwepfungwa mushure mekuongororwa kweUC.Asi huwandu hwekushushikana hwakakwira pakati pevanhu vanorarama neUC vachienzaniswa nedzimwe hosha uye huwandu hwevanhu.
Izvo zvine musoro kwatiri, ivo vari kubata nazvo. Asi ini handina kunzwa nezve hutano hwepfungwa kudzamara makore akati wandei pazasi apo ini ndaifanira kusangana neshanduko huru nechirwere changu.
Ini ndaigara ndichifunganya, asi ndakakwanisa kuzvivhara kusvika 2016 apo chirwere changu chakadzoka zvakare. Ndakanga ndine kutya kwekutya nekuti ini ndaisamboziva kuti zuva rangu richava sei, kana ndaizosvika kuimba yekugezera, uye kuti marwadzo aizogara kwenguva yakareba sei.
Marwadzo atinotsungirira akaipisisa kupfuura marwadzo ekubereka uye anogona kugara nekudzima zuva rese, pamwe nekurasikirwa neropa. Kurwadziwa kusingaperi kuri iko chete kunogona kuisa chero munhu mune yekushushikana uye kushushikana.
Zvakaoma kubata nechirwere chisingaonekwe pamwe nenyaya dzehutano hwepfungwa pamusoro peizvozvo. Asi kuona murapi uye kutora mishonga kubatsira kubata neUC kunogona kubatsira. Izvi hazvisi zvekunyara nazvo.
Kuvhiya haisi mushonga
Vanhu vanogara vachiti kwandiri, "Zvino zvawaive nekuvhiyiwa uku, wakaporeswa, handiti?"
Mhinduro yacho, kwete, ini handisi.
Nehurombo, hapana mushonga weUC parizvino. Nzira chete yandakakwanisa kuisa kuregererwa kwaive kuvhiyiwa kubvisa ura hwangu hukuru (colon) uye rectum.
Nhengo mbiri idzi dzinoita zvinopfuura zvinoita vanhu kufunga. Ura hwangu hudiki ikozvino hwaita basa rese.
Kwete izvozvo chete, asi yangu J-homwe iri pangozi yakakura yepouchitis, iko kuzvimba kweJ-homwe yangu. Kuwana izvi kazhinji kunogona kukonzera kudikanwa kwekusingaperi ostomy bhegi.
Zvimbuzi
Nekuti chirwere ichi hachiwoneki, vanhu vanowanzo shamisika kana ndikavaudza kuti ndine UC. Hongu, ndingaite senge ndine hutano, asi chokwadi ndechekuti vanhu vanotonga bhuku nebutiro rayo.
Sevanhu vanogara neUC, tinoda kupinda mune chimbuzi kazhinji. Ndinoenda kuchimbuzi kanomwe kana kanomwe pazuva. Kana ndiri kunze kuruzhinji uye ndichida imba yekugezera ASAP, ini ndichatsanangura zvine mutsigo kuti ndine UC.
Nguva zhinji, mushandi anondibvumira kushandisa imba yavo yekugezera, asi anozeza zvishoma. Dzimwe nguva, vanobvunza mimwe mibvunzo uye havanditenderi. Izvi zvinonyadzisa. Ini ndave kutorwadziwa, ndobva ndarambwa nekuti handiratidzike sekurwara.
Pane zvekare nyaya yekushaya pekugezera. Pave nenguva apo chirwere ichi chakakonzeresa kuti ndiite tsaona, senge pandinenge ndiri pane zvekufambisa zveveruzhinji.
Ndakanga ndisingazive kuti zvinhu izvi zvaizoitika kwandiri uye ndinoshuva kuti dai ndakapihwa misoro kumusoro, sezvo zvichinyadzisa kwazvo. Ndichine vanhu vanondibvunza nhasi uye zvinonyanya nekuti vanhu havazive nezvechirwere ichi. Nekudaro, ini ndinotora nguva yekudzidzisa vanhu uye nekuunza chirwere chinyararire kumberi.
Zvekudya
Ndisati ndaongororwa, ndaidya chero chinhu. Asi ini ndakanyanya kurasikirwa nehuremu mushure mekuongororwa kwangu nekuti zvimwe zvekudya zvakakonzera kutsamwa uye kuputika. Ikozvino, pasina colon yangu uye rectum, izvo zvikafu zvandinogona kudya zvine mashoma.
Iyi nyaya inonetsa kukurukura nekuti munhu wese ane UC akasiyana. Kwandiri, chikafu changu chaisanganisira bland, dzakaonda, dzakabikwa zvakanaka mapuroteni senge huku uye pasi turkey, chena carbs (senge pasita yakajeka, mupunga, uye chingwa), uye chokoreti Ita shuwa kuti chikafu chinozununguka
Pane imwe nguva ndakapinda kuregererwa, ndakakwanisa kudya zvikafu zvandaifarira zvakare, semichero nemiriwo. Asi mushure mekuvhiyiwa kwangu, high-fiber, zvinonhuwira, zvakakangwa, uye acidic chikafu zvakava zvakaoma kupaza uye kugaya.
Kugadziridza kudya kwako igadziridzo hombe, uye zvinonyanya kukanganisa hupenyu hwako. Zvizhinji zvezvikafu izvi zvaive zvekuyedza-uye-kukanganisa kwandakadzidza ndega. Ehezve, iwe unogona zvakare kuona wezvehutano anonyanya kubatsira vanhu vane UC.
Tora woenda nazvo
Iyo fomula yakakura yekupfuura nemazhinji mataboos uye matambudziko anouya nechirwere ichi ndeichi:
- Tsvaga chiremba mukuru uye timu yemudumbu uye uvake hukama hwakasimba navo.
- Iva wega mumiriri.
- Tsvaga rutsigiro kubva kumhuri neshamwari.
- Batanidza nevamwe vako UC varwi.
Ndave neangu J-homwe kwemwedzi mitanhatu ikozvino, uye ini ndichine akawanda kumusoro nekudzika. Zvinosuruvarisa, chirwere ichi chine misoro yakawanda. Paunobata imwe nyaya, imwe inomuka. Hazvina magumo, asi rwendo rwese rune nzira dzakatsetseka.
Kune vamwe vangu vese varwi veUC, ndapota zivai kuti hausi wega uye kune nyika yedu kunze uko tiri pano nekuda kwako. Iwe wakasimba, uye une izvi!
Moniqua Demetrious mukadzi ane makore makumi matatu nemaviri ekuberekwa uye akakurira muNew Jersey, anga ave akaroora kweanopfuura makore mana. Kuda kwake mafashoni, kuronga zviitiko, kunakidzwa nemhando dzese dzemimhanzi, uye kurwira kwake autoimmune chirwere. Haasi chinhu pasina kutenda kwake, baba vake avo vava ngirozi, murume wavo, mhuri, uye shamwari. Iwe unogona kuverenga zvakawanda nezve rwendo rwake paari blog uye iye Instagram.
Zvazvino Zvazvino
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