Nhau dzechokwadi: Kurarama neUlcerative Colitis

Ulcerative colitis (UC) inokanganisa vanhu mazana mapfumbamwe ezviuru muUnited States. Mune chero gore rimwe chete, vangangoita makumi maviri muzana yevanhu ava vane chirwere chepakati nepakati uye 1 kusvika 2 muzana vane chirwere chakakomba, maererano neCrohn's neColitis Foundation yeAmerica.

Icho chirwere chisingafungidzirwe. Zviratidzo zvinowanzo kuuya uye kuenda, uye dzimwe nguva zvinofambira mberi nekufamba kwenguva. Vamwe varwere vanoenda kwemakore vasina zviratidzo, nepo vamwe vachisangana nemabara-ups. Zviratidzo zvinosiyana zvichienderana nehukuru hwekuputika, zvakare. Nekuda kweizvi, zvakakosha kuti vanhu vane UC vachengete maitiro ekuvabata kwavo nguva dzese.

Heano nyaya dzezviitiko zvevanhu vana neUC.

Wakaonekwa riinhi?

[Makore manomwe] apfuura.

Iwe unogadzirisa sei zviratidzo zvako?

Mushonga wangu wekutanga waive nema suppositories, ayo andakawana asinganetsi zvakanyanya, akaoma kuisa mukati, uye akaoma kubata. Kwegore rinotevera nehafu kana zvakadaro ndakarapwa nekutenderera kwe prednisone uye mesalamine (Asacol). Izvi zvaityisa. Ndakanga ndiine zvinotyisa uye zvakaderera ne prednisone, uye nguva dzose pandakatanga kunzwa zviri nani ndaizonzwa kurwara zvakare. Ini pakupedzisira ndakachinjisa vanachiremba kuna Dr. Picha Moolsintong muSt. Louis, avo vakanyatsonditeerera uye ndokurapa nyaya yangu uye kwete chete chirwere changu. Ndichiri paazathioprine uye escitalopram (Lexapro), yanga ichishanda nemazvo.

Ndeapi mamwe marapirwo akakushandira?

Ini ndakaedzawo akateedzana ekurapwa kwehomeopathic, kusanganisira isina-gluten, isina starch kudya. Hapana chimwe cheicho chakanyatsondishandira kunze kwekufungisisa neyoga. UC inogona kushushikana-zvine chekuita nekushushikana, zvine chekudya, kana zvese zviri zviviri, uye yangu kesi yakanyanya kunetsekana.Kunyange zvakadaro, kuchengetedza kudya kunovaka muviri kwakakoshawo. Kana ndikadya chikafu chakagadzirwa, pasita, nyama yemombe, kana nyama yenguruve, ndinozvibhadhara.

Izvo zvakakosha nechero autoimmune chirwere chekurovedza muviri nguva dzose, asi ini ndaizopokana kuti zvakatonyanya kudaro kuzvirwere zvekudya. Kana ndikasachengeta metabolism yangu yakakwira uye moyo wangu uchikwira kumusoro, ndinozviona zvakaoma kuwana simba rekuita chero chinhu.

Ndeapi mazano aungapa kune vamwe vanhu vane UC?

Edza kusanyara kana kushushikana nezviratidzo zvako. Pandakatanga kurwara, ndakaedza kuviga zviratidzo zvangu zvese kubva kushamwari dzangu uye nemhuri, izvo zvakangokonzera kukanganisika, kushushikana, uye kurwadziwa. Zvakare, usarase tariro. Kune mishonga yakawanda kwazvo. Kuwana yako yega muyero wekurapa sarudzo kwakakosha, uye kushivirira uye vanachiremba vakanaka vanokuendesa iwe ipapo.

Yakareba sei nguva yawakabatwa?

Pakutanga ndaka [vaongororwa] ndiine UC pa18. Ipapo ndakabatwa chirwere cheCrohn makore mashanu apfuura.

Zvave zvakaoma sei kugara neUC?

Iko kukanganisa kukuru kwave kwehukama. Pandaive mudiki, ndainyara zvakanyanya nechirwere ichi. Ini ndine hushamwari kwazvo asi panguva iyoyo, uye kunyangwe nanhasi, ndaizodzivirira mapoka makuru kana mamiriro enharaunda nekuda kweUC yangu. Zvino zvandakura uye ndavhiyiwa, ndinofanira kungwarira nezve nzvimbo dzakazara. Ini ndinosarudza kusaita zvinhu zveboka pane dzimwe nguva nekuda kwemhedzisiro yekuvhiya. Zvakare, kumashure pandakanga ndiine UC, iyo prednisone dosage yaizondibata panyama uye nepfungwa.

Chero chikafu, mishonga, kana marongero ehupenyu?

Ramba uchishanda! Ndicho chete chinhu chaizove nepakati kudzora angu flare-ups. Kupfuura izvozvo, kusarudzwa kwekudya ndicho chinhu chinonyanya kukosha kwandiri. Gara kure nezvikafu zvakakangwa uye yakanyanyisa chizi.

Iye zvino ndinoedza kugara padyo nePaleo chikafu, icho chinoita kunge chinondibatsira kubuda. Kunyanya kuvarwere vadiki, ini ndingati usanyare, iwe unogona achiri kurarama hupenyu hunoshanda. Ndamhanya matatuatatu, uye ikozvino ndiri anoshanda CrossFitter. Haisi kuguma kwenyika.

Ndeapi marapirwo awakambove nawo?

Ini ndaive pane prednisone kwemakore ndisati ndaitwa ileoanal anastomosis kuvhiyiwa, kana J-pouch. Iye zvino ndiri pane certolizumab pegol (Cimzia), iyo inochengeta maCrohn angu achitarisa.

Inguvai yapfuura iwe wakaonekwa?

Ndakaonekwa ndiine UC muna 1998, nguva pfupi mushure mekuberekwa kwemapatya angu, wangu wechitatu newechina. Ndakaenda kubva pakurarama zvine hushamwari kusvika pakuve asingakwanise kusiya imba yangu.

Ndeapi mishonga awatora?

Chiremba wangu weGI akabva andiisa pamishonga, iyo yanga isingashande, saka akazogadza prednisone, iyo yaingovhara zviratidzo. Chiremba akatevera akandibvisa pa prednisone asi akandiisa pa6-MP (mercaptopurine). Iyo mhedzisiro yacho yaityisa, kunyanya mhedzisiro pane yangu chena masero eropa. Akandipawo kufungidzira uye kwakadzika kudzikira kwehupenyu hwangu hwese. Ndakanga ndakaora mwoyo zvikuru uye ndainetseka kuti ndaisazokwanisa kurera vana vangu vana.

Chii chakakubatsira?

Ndakaita tsvagiridzo yakawanda, uye nerubatsiro ndakachinja chikafu changu uye pakupedzisira ndakakwanisa kuzvirumura kubva pane ese medhi. Ini zvino ndisisina gluten-uye ndinodya chinonyanya kudyiwa-chinodyiwa, kunyangwe ini ndichidya imwe organic huku uye hove dzemusango. Ndanga ndiri chiratidzo- uye isina zvinodhaka kwemakore akati wandei. Pamusoro pekuchinja kwekudya, kuzorora zvakakwana uye kurovedza muviri kwakakosha, pamwe nekuchengetedza kushushikana pasi pesimba. Ndakadzokera kuchikoro kunodzidzira kudya kunovaka muviri kuti ndikwanise kubatsira vamwe.

Wakaonekwa riinhi?

Ndakaongororwa makore 18 apfuura, uye dzimwe nguva zvainetsa. Iko kuoma kunouya kana chirwere chiri kushanda uye chinokanganisa hupenyu hwezuva nezuva. Kunyangwe iwo akareruka mabasa anova chigadzirwa. Kuita shuwa kuti kune imba yekugezera inowanikwa inogara iri kumberi kwepfungwa dzangu.

Unoita sei neUC yako?

Ndiri pachiyero chekuchengetedza chemushonga, asi ini handina hutachiona pane dzimwe nguva kuputika. Ini ndangodzidza "kuita." Ini ndinotevera chirongwa chakasimba kwazvo chekudya, icho chakandibatsira zvikuru. Zvisinei, ini ndinodya zvinhu izvo vanhu vazhinji vane UC vanoti havagone kudya, senge nzungu nemaorivhi. Ndinoedza kubvisa kushushikana zvakanyanya sezvinobvira uye kuwana kurara kwakaringana zuva rega rega, izvo zvisingaite dzimwe nguva munyika yedu yakapusa yezana ramakumi maviri nemasere!

Iwe une zano kune vamwe vanhu vane UC?

Zano rangu guru nderiri: Verenga makomborero ako! Hazvina mhosva kuti zvinhu zvinotadza kuona sei kana kunzwa dzimwe nguva, ndinogona kugara ndichiwana chimwe chinhu chekutenda. Izvi zvinoita kuti pfungwa dzangu nemuviri zvirambe zvakanaka.