Pana 32, Ndakaona Kuti Ndine MS. Izvi ndizvo zvandakaita mumazuva akatevera.

Zvemukati

• Wakatanga sei kudzidza kuti une MS?
• Ndeapi matanho akatevera?
• Wanga uchiziva nezve MS pawakagashira kuongororwa kwako?
• Ndeapi akanyanya kuve matambudziko pakutanga, uye wakaakunda sei?
• Wainzwa kunge iwe uine zviwanikwa zvakakwana zvekubata nazvo MS, zvese mumuviri nepfungwa?
• Ndedzipi dzaive nzvimbo dzako huru dzekutungamira nerutsigiro mumazuva ekutanga iwayo?
• Pawakakumbirwa kuti ubvunze paMS Buddy app, ndezvipi zvinhu zvaunofunga kuti zvainyanya kukosha kuti ivo vagadziri vawane zvakanaka?
• Pave nemakore anopfuura gumi kubva pawakaongororwa. Chii chinokukurudzira kuti urwe iyo MS kurwa?
• Ndechipi chinhu chimwe nezve MS chaunoshuvira kuti vamwe vanhu vanzwisise?

Vanopfuura mamirioni e2.3 vanhu kutenderera pasirese vari kurarama neakawanda sclerosis. Uye vazhinji vavo vakagashirwa chirwere vari pakati pemakore makumi maviri kusvika makumi mana. Saka, zvakamira sei kuwana kuongororwa vachiri vadiki apo vanhu vazhinji vari kutanga mabasa, kuroora, uye kutanga mhuri?

Kune vazhinji, mazuva ekutanga uye vhiki mushure mekuongororwa kweMS hakusi kungovhundutsa sisitimu, asi kosi yekuparara nezve mamiriro uye nyika yavaisaziva kuti yaivapo.

Ray Walker anoziva izvi ega. Ray akagashirwa chirwere cheMS chakadzokororazve muna 2004 aine makore makumi matatu nemaviri. Iye zvakare anova maneja wechigadzirwa pano kuHealthline uye akaita basa rakakura mukubvunza MS Buddy, iPhone neApple app inobatanidza vanhu vane MS mumwe kune mumwe kune vezano, rutsigiro, uye nezvimwe.

Takagara pasi kuti titaure naRay nezve zvakaitika kwaari mumwedzi mishoma yekutanga achitevera kuongororwa kwake uye kuti sei kutsigirwa nevezera rako kuchikosha kune chero munhu anorarama aine chirwere chisingaperi.

Wakatanga sei kudzidza kuti une MS?

Ini ndaive ndiri munzira yegorofu pandakafonerwa ndichibva kuhofisi kwachiremba wangu. Mukoti akati, “Hesi Raymond, ndiri kukufonera kuti uronge nezve musana wako.” Izvi zvisati zvaitika, ini ndanga ndangoenda kwachiremba nekuti ndaive nekugwinha chiveve mumaoko nemakumbo kwemazuva mashoma. Chiremba akandipa iyo kamwechete uye ini hapana chandakanzwa kusvika pombi yemuzongoza. Zvinhu zvinotyisa.

Ndeapi matanho akatevera?

Iko hakuna bvunzo imwe yeMS. Iwe unopfuura nemuhuwandu hwakazara hweyedzo uye, kana akati wandei acho aine chokwadi, chiremba wako anogona kusimbisa kuongororwa. Nekuti hapana bvunzo imwe inoti, "Hongu, une MS," vanachiremba vanozvitora zvishoma.

Zvichida aive mavhiki mashoma chiremba asati ati ndaive neMS. Ndakaita matepi maviri emuzongoza, iyo yakaburitsa mukana wekuyedzwa kwemaziso (ayo anoyera nekukurumidza izvo zvaunoona zviri kuzviita kuuropi hwako), uyezve gore rega MRIs.

Wanga uchiziva nezve MS pawakagashira kuongororwa kwako?

Ini ndakanga ndisiri zvachose. Ini ndaingoziva chinhu chimwe chete, kuti Annette Funicello (mutambi kubva kuma50s) aive neMMS. Ndakatoshaya kuti zvairevei MS. Mushure mekunge ndanzwa kuti zvaive mukana, ndakabva ndatanga kuverenga. Nehurombo, iwe unongowana chete akaipisisa zviratidzo uye mikana.

Ndeapi akanyanya kuve matambudziko pakutanga, uye wakaakunda sei?

Imwe yedambudziko hombe pandakatanga kuongororwa yaive yekugadzirisa kuburikidza neruzivo rwese rwuripo. Pane zvakawanda zvinotyisa zvekuverengera mamiriro akaita seMS. Iwe haugone kufanotaura mafambiro ayo, uye haigone kurapwa.

Wainzwa kunge iwe uine zviwanikwa zvakakwana zvekubata nazvo MS, zvese mumuviri nepfungwa?

Ndakanga ndisina chaizvo sarudzo, ndaifanira kungoita. Ini ndaive ndichangobva kuroora, ndakavhiringika, uye kutaura chokwadi, zvishoma kutya. Pakutanga, kwese kurwadziwa, kurwadziwa, kana kunzwa ndeye MS. Zvino, kwemakore mashoma, hapana chinhu MS. Iko kushushikana kwepfungwa.

Ndedzipi dzaive nzvimbo dzako huru dzekutungamira nerutsigiro mumazuva ekutanga iwayo?

Mukadzi wangu mutsva anga aripo kwandiri. Mabhuku neinternet zvaive zvakare sosi huru yeruzivo. Ndakazendamira paNational Multiple Sclerosis Society pakutanga.

Zvemabhuku, ndakatanga kuverenga nhoroondo pamusoro penzendo dzevanhu. Ndakazendamira kune nyeredzi pakutanga: Richard Cohen (murume waMeredith Vieira), Montel Williams, naDavid Lander vese vakaonekwa nguva iyoyo. Ndakanga ndichida kuziva nezvekuti MS yaivabata sei uye nzendo dzavo.

Pawakakumbirwa kuti ubvunze paMS Buddy app, ndezvipi zvinhu zvaunofunga kuti zvainyanya kukosha kuti ivo vagadziri vawane zvakanaka?

Izvo zvaive zvakakosha kwandiri kuti ivo vaikurudzira hukama hweyemhando-yerudzi. Paunotanga kuongororwa, wakarasika uye wakavhiringidzika. Sezvandambotaura kare, kune ruzivo rwakawanda kunze uko, unopedzisira wanyura.

Ini pachangu ndingadai ndakada kuti MS veteran andiudze zvese zvaizove zvakanaka. Uye vekare veMS vane ruzivo rwakawanda kwazvo rwekugovana.

Pave nemakore anopfuura gumi kubva pawakaongororwa. Chii chinokukurudzira kuti urwe iyo MS kurwa?

Zvinoita kunge zvinonzwika, asi vana vangu.

Ndechipi chinhu chimwe nezve MS chaunoshuvira kuti vamwe vanhu vanzwisise?

Kungoti ini ndinoshaya simba dzimwe nguva, hazvireve kuti neniwo handikwanise kusimba.

Vanenge mazana maviri vanhu vanoonekwa vaine MS vhiki rega rega muUnited States moga. Zvirongwa, maforamu, zviitiko, uye mapoka enhau anobatanidza vanhu vane MS pamwe chete anogona kuve akakosha kune chero munhu arikutsvaga mhinduro, kurairwa, kana mumwe munhu wekutaura naye.

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