Nhungamiro yeKubatsira Kuremara uye Multiple Sclerosis

Zvemukati

• Iyo MS inokodzera sei kuremara mabhenefiti
• Kuwana mapepa ako munzvimbo
• Kutora

Nekuti multiple sclerosis (MS) iri chirwere chisingaperi chingave chisingatarisirwe nezviratidzo zvinogona kubuda nekukasira, chirwere ichi chinogona kunetsa kana zvasvika pakushanda.

Zviratidzo sekutadza kuona, kuneta, kurwadziwa, matambudziko ekudzikama, uye kunetsekana kwekudzora tsandanyama kunogona kutora nguva yakareba kure nebasa, kana kukanganisa kugona kwako kutsvaga basa.

Neraki, inishuwarenzi yekuremara inogona kutsiva imwe yemari yaunowana.

Sekureva kweNational Multiple Sclerosis Society, vangangoita makumi mana muzana yevanhu vese vane MS muUnited States vanovimba neimwe nzira yeinishuwarenzi yekuremara, kungave kuburikidza neinishuwarenzi yakazvimiririra kana kuburikidza neSocial Security Administration (SSA).

Iyo MS inokodzera sei kuremara mabhenefiti

Social Security Disability Income (SSDI) ndeye federal hurema inishuwarenzi kubatsirwa kune avo vakashanda uye vakabhadhara mukuchengetedza munharaunda.

Ramba uchifunga kuti SSDI yakasiyana neyekuwedzera mari yekuchengetedza (SSI). Chirongwa ichocho ndechevanhu vanotambira mari shoma vasina kubhadhara zvakakwana mukuchengetedzwa kwevanhu mukati memakore avo ekushanda kuti vakwanise SSDI. Saka, kana izvo zvichikutsanangura, funga kutarisa muSSI senzira yekutanga.

Chero zvazvingaitika, mabhenefiti akaganhurirwa kune avo vasingakwanise "kuita zvihombe zviwanikwa," sekureva kwaLiz Supinski, director wedata sainzi kuSosaiti yeHuman Resource Management.

Kune miganho pane yakawanda sei munhu yaanogona kuwana uye achiri kuunganidza, anodaro, uye ingangoita madhora chiuru nemazana maviri kuvanhu vazhinji, kana kutenderera madhora zviuru zviviri pamwedzi kune avo vari mapofu.

"Izvi zvinoreva kuti vanhu vazhinji vanokwanisa kuwana rubatsiro rwehurema havasi kushandira vamwe," anodaro Supinski. "Kuzvishandira kunozivikanwa pakati pevashandi vakaremara nevaya vakaremara zvakanyanya kuti vakwanise kuwana mabhenefiti."

Kumwe kufunga ndekwekuti kunyangwe iwe uchigona kunge uine yakavanzika inishuwarenzi yekuremara, iyo inowanzo kuwanikwa sechikamu chebasa rekubatsirwa, hazvireve kuti haugone kunyorera SSDI, Supinski anodaro.

Yakavanzika inishuwarenzi inowanzo kuve kwenguva pfupi kubatsirwa uye kazhinji inopa zvidiki zvidiki kutsiva mari, anodaro. Vanhu vazhinji vanoshandisa iyo mhando yeinishuwarenzi sezvo ivo vari kunyorera SSDI uye vakamirira kuti zvavanoda zvitenderwe.

Zviratidzo zvakajairika zveMS zvinogona kukanganisa kugona kwako kushanda zvakafukidzwa pasi pezvikamu zvitatu zvakasiyana zveSSA zvirevo zvekurapa:

• neurological: inosanganisira nyaya dzine chekuita nekudzora tsandanyama, kufamba, kuenzanisa, nekubatana
• pfungwa dzakakosha uye kutaura: inosanganisira kuona uye kutaura nyaya, izvo zvakajairika muMS
• kusagadzikana kwepfungwa: inosanganisira mhando yemafungidziro uye nyaya dzekuziva dzinogona kuitika neMS, sekushushikana nekushungurudzika, ndangariro, kutarisisa, kugadzirisa matambudziko, uye kugadzirisa ruzivo

Kuwana mapepa ako munzvimbo

Kuti uve nechokwadi chekuti maitiro acho akarongedzwa, zvinobatsira kunyora mapepa ekurapa, kusanganisira zuva rekutanga kuongororwa, kutsanangurwa kwekuremara, nhoroondo yebasa, uye marapiro ane chekuita neMS yako, anodaro Sophie Summers, maneja wevashandi pasoftware firm RapidAPI.

"Kuva neruzivo rwako munzvimbo imwechete kuchakubatsira kugadzirira kunyorera, uye zvakare kunogona kuratidza kuti ndeipi mhando yeruzivo iwe yauchiri kuda kuwana kubva kune wako mupi wezvehutano," anodaro.

Zvakare, rega vanachiremba vako, vaunoshanda navo, uye mhuri vazive kuti unenge uchifamba nenzira yekunyorera, Summers inowedzera.

Iyo SSA inounganidza zvinopihwa kubva kune vanopa zvehutano pamwe neanokumbira, uye dzimwe nguva vanokumbira rumwe ruzivo kubva kunhengo dzemhuri uye vashandi pamwe navo kuti vaone kana iwe uchikodzera kunge wakaremara zvichibva nemaitiro eSSA.

Kutora

Kukumbira kubatsirwa kwehurema kunogona kuve kwakaomarara uye kwakareba maitiro, asi kutora nguva yekunzwisisa nzira dzinoshandiswa neSSA kunogona kukubatsira kuti uswedere padyo nekuwana gwaro rinotenderwa.

Funga kusvika kune vamiriri kuhofisi yemunda weSSA yako, nekuti ivo vanogona kukubatsira kunyorera SSDI uye SSI mabhenefiti. Ita musangano nekudana 800-772-1213, kana iwe unogona zvakare kuzadza kunyorera online pawebhu yeSSA.

Uyezve inobatsira ndeye National Multiple Sclerosis Society gwara reSocial Security mabhenefiti, ayo anogona kutorwa mahara pawebhusaiti yavo.

Elizabeth Millard anogara muMinnesota nemumwe wake, Karla, uye nevakuru vavo vemhuka dzekurima. Basa rake rakaonekwa mune akasiyana mabhuku, anosanganisira SELF, Mazuva ese Hutano, HealthCentral, Runner's World, Kudzivirira, Livestrong, Medscape, nevamwe vazhinji. Iwe unogona kumuwana uye nenzira yakawandisa katsi mapikicha paari Instagram.