Achionekwa seMwana, Ashley Boynes-Shuck Zvino Anoshandisa Simba Rake Mukurudzira Vamwe Vanogara neRA

Zvemukati

• Kufona kuti ubatsire vamwe
• Kubatanidza kuburikidza neRA Healthline app

Rheumatoid arthritis mumiriri Ashley Boynes-Shuck akabatana nesu kuti titaure nezverwendo rwake uye nezvechirongwa chitsva cheHealthline cheavo vanogara neRA.

Kufona kuti ubatsire vamwe

Muna 2009, Boynes-Shuck akatanga kushanda semutungamiri wekusimudzira nharaunda uye peer-to-peer mutsigiri pamwe neArthritis Foundation.

"Ndakaona zvichibatsira kuva nechimwe chinhu chakanaka uye chinobudirira kutarisisa, uye ndakawana mufaro nekutenda mukubatsira nekushandira vamwe, kuparadzira ruzivo, kudzidzisa nezvehutano, uye kukurudzira," anodaro.

"Izvi zvinhu zvandainzwa kudaidzwa kuti ndiite, nguva yese iyi ndichichinja mamiriro angu asina kunaka kuita chinhu chinobatsira uye chakanaka."

Akavhurawo blog Arthritis Ashley uye akaburitsa mabhuku maviri nezverwendo rwake neRA.

Kubatanidza kuburikidza neRA Healthline app

Zvekupedzisira zveBoynes-Shuck zviri kubatana neHealthline semutungamiri wenharaunda yeayo yemahara RA Healthline app.

Iyo app inobatanidza avo vane RA zvichibva pahupenyu hwavo zvido. Vashandisi vanogona kutarisa maprofayiri enhengo uye kukumbira kufananidza nechero nhengo iri munharaunda.

Mazuva ese, iyo app inowirirana nhengo kubva munharaunda, ichivabvumidza kuti vatange kubatana. Boynes-Shuck anoti mutambo wemutambo ndewe-imwe-we-mutsa.

"Zvakafanana neanowana 'RA-Buddy'," anodaro.

Segwara renharaunda, Boynes-Shuck pamwe nevamwe vamiririri veapp RA vamiriri vanozotungamira hurukuro yekurarama inoitwa zuva nezuva. Vashandisi vanogona kujoina kutora chikamu munhaurirano pamusoro penyaya dzakadai sekudya uye kudya kunovaka muviri, kurovedza muviri, hutano, zvinokonzeresa, kurapwa kwekurwadziwa, kurapwa, kumwe kurapa, matambudziko, hukama, kufamba, hutano hwepfungwa, nezvimwe.

"Ndiri kufara kwazvo kuve mutungamiri wenzvimbo yeRA Healthline. Ndinonzwa kuda varwere veRheum vane nzvimbo yakachengeteka uye vasinganzwi kusurukirwa, uye zvinondikurudzira kushandisa izwi rangu zvakanaka nekubatsira vamwe vari mumamiriro ezvinhu akafanana neni, ”anodaro. "Zvakare, ndezvekuita zvakanakisa kubva muruoko rwandakaitirwa."

Kunyangwe iye achishandisa Facebook, Twitter, uye mamwe mawebhusaiti uye enhau enhau mapuratifomu kutsvaga ruzivo rweRA, anoti RA Healthline ndiyo yega chishandiso chedigital chaakashandisa icho chakatsaurirwa kune vanhu vanogara neRA.

"Inzvimbo inogamuchirwa uye yakanaka kune vanhu vane pfungwa dzakafanana avo vari kugara uye kubudirira neRA," anodaro.

Kune vashandisi vanoda kuverenga ruzivo rwakanangana neRA, iyo purogiramu inopa chikamu chekutsvaga, icho chinosanganisira mararamiro uye zvinyorwa zvemashoko zvakaongororwa neHealthline vashandi vezvehutano pamusoro pezvinyorwa zvine chokuita nekuongororwa, kurapwa, kutsvakurudza, kudya kunovaka muviri, kuzvitarisira, hutano hwepfungwa, nezvimwe . Iwe unogona zvakare kuverenga zvemunhu nyaya kubva kune avo vanogara neRA.

“Chikamu cheDiscover inzira yakanaka chaizvo yekuwana ruzivo rwakakosha munzvimbo imwe. Ndanga ndichichitsvaga zvakanyanya, "anodaro Boynes-Shuck.

Iye ari zvakare kuwana ruzivo uye njere kubva kunharaunda dzemunharaunda.

"Kutaura chokwadi, munhu wese anoti ndinovakurudzira, asi ndinonzwa zvakaenzana nekufemerwa uye nekutenda kune vamwe varwere veRA. Ndakadzidza zvakawanda uye ndakafemerwa nevezera rangu, ”anodaro. "Chave chiri kupa mubayiro pachangu uye nehunyanzvi, asi zvave zvakare sosi huru yerutsigiro kwandiri kudzidza kubva nekutsamira pane vamwe varwere."

Dhawunirodha app apa.

Cathy Cassata munyori akazvimiririra uyo anonyanya kugadzirisa nyaya dzehutano, hutano hwepfungwa, uye hunhu hwevanhu. Ane hunyanzvi hwekunyora nemanzwiro uye nekubatana nevaverengi nenzira inonzwisisika uye inobata. Verenga zvimwe zvebasa rake pano.