Iko Kubatana Pakati peEpocrine Pancreatic Kusakwana uye Cystic Fibrosis

Zvemukati

• Chii chinokonzera cystic fibrosis?
• Ndezvipi zvinokonzeresa cystic fibrosis?
• EPI necystic fibrosis zvakabatana sei?
• Ndeapi marapirwo aripo eEPI?
• Iyo Yekutora

Cystic fibrosis chirwere chinogarwa nhaka chinokonzera kuti mvura yemuviri ive yakasimba uye inonamira pane kuonda nekumhanya. Izvi zvinokanganisa zvakanyanya mapapu uye dhayeti.

Vanhu vane cystic fibrosis vane matambudziko ekufema nekuti mamo anovhara mapapu avo uye anoita kuti vave panjodzi yekutapukirwa. Muchu wakakora unovharawo rwatata uye unodzivirira kuburitswa kwemakemikari ekugaya. Vanenge makumi mapfumbamwe muzana vevanhu vane cystic fibrosis zvakare vanogadzira exocrine pancreatic insufficiency (EPI).

Ramba uchiverenga kuti udzidze zvakawanda nezvehukama pakati pemamiriro maviri aya.

Chii chinokonzera cystic fibrosis?

Cystic fibrosis inokonzerwa nehurema muiyo CFTR geni. Shanduko mune ino geni inokonzeresa maseru kuita akakora, anonamira mvura. Vazhinji vanhu vane cystic fibrosis vanoonekwa vachiri vadiki.

Ndezvipi zvinokonzeresa cystic fibrosis?

Cystic fibrosis chirwere chemajini. Kana vabereki vako vaine chirwere kana vakatakura geni rakaremara, uri panjodzi yekuwedzera chirwere ichi. Munhu ane cystic fibrosis anofanirwa kugara nhaka magene maviri akachinjika, rimwe kubva kumubereki mumwe nemumwe. Kana iwe ukangotakura kopi imwe chete yemajini, unenge usina cystic fibrosis asi uri mutakuri wechirwere. Kana vatakuri vaviri vemajini vane mwana, pane 25 muzana mukana wekuti mwana wavo ave necystic fibrosis. Pane mukana we50 muzana kuti mwana wavo atakure geni asi asina cystic fibrosis.

Cystic fibrosis iri zvakare yakajairika muvanhu vekuNorth Europe vanobva.

EPI necystic fibrosis zvakabatana sei?

EPI chinetso chikuru checystic fibrosis. Cystic fibrosis ndiyo yechipiri inonyanya kukonzera EPI, mushure mekurwara kwepancreatitis. Izvo zvinoitika nekuti mukobvu wakakora uri mupancreas unovharidzira enzyme dzepancreatic kubva pakupinda mudumbu diki.

Iko kushomeka kwepancreatic enzyme zvinoreva kuti yako yekugaya turakiti inofanirwa kupfuudza zvishoma zvisina kugayaniswa chikafu. Mafuta nemapuroteni zvakanyanya kuomera vanhu vane EPI kugaya.

Uku kusarudzika uye kudya kwechikafu kunogona kutungamira ku:

• marwadzo emudumbu
• kuzvimba
• kuvimbiswa
• manyoka
• mafuta uye akasununguka zvituru
• kuonda
• kushaya zvokudya zvinovaka muviri

Kunyangwe iwe ukadya chakajairwa chikafu, cystic fibrosis inogona kuita kuti zviome kuchengetedza uremu hune hutano.

Ndeapi marapirwo aripo eEPI?

Hupenyu hwakanaka uye kudya kwakaringana kunogona kukubatsira kubata yako EPI. Izvi zvinoreva kudzora kunwa doro, kudzivirira kuputa, uye kudya chikafu chinovaka muviri nemiriwo yakawanda uye zviyo zvakakwana. Vazhinji vanhu vane cystic fibrosis vanokwanisa kudya zvakajairika kudya uko makumi matatu kusvika makumi mana muzana muzana yemakoriori anouya kubva kumafuta.

Iwe unofanirwa zvakare kutora enzyme kutsiva nezvose zvako zvekudya uye zvinwiwa zvekuvandudza kugaya. Kuwedzeredza kushandiswa kunogona kubatsira kugadzira mavitamini ayo EPI inodzivirira muviri wako kuti usatore.

Kana iwe usingakwanise kuchengetedza huremu hune hutano, chiremba wako anogona kupa zano rekushandisa chubhu yekudyisa husiku kudzivirira hutachiona kubva ku EPI.

Izvo zvakakosha kuti chiremba wako atarise yako pancreatic basa, kunyangwe kana parizvino usina kuderera basa nekuti inogona kuderera mune ramangwana. Kuita izvi kuchaita kuti mamiriro ako awedzere uye zvinogona kudzikisira mikana yako yekuwedzera kukuvara kwepancreas yako.

Iyo Yekutora

Munguva yakapfuura, vanhu vane cystic fibrosis vaive nehupenyu hupfupi tarisiro. Nhasi, makumi masere muzana yevanhu vane cystic fibrosis vanosvika kuva vanhu vakuru. Izvi zvinodaro nekuda kwekufambira mberi kukuru mukurapa uye manejimendi echiratidzo. Saka apo pachinenge pasina mushonga wecystic fibrosis, pane tariro yakawanda.