Ungaziva sei cystic fibrosis mumucheche uye marapirwo anofanira kuve

Zvemukati

• Zviratidzo zvecystic fibrosis
• Maitiro ekusimbisa kuongororwa
• Kurapa kwecystic fibrosis
• Zvinogona kuitika
• Makore ekurarama

Imwe yenzira dzekufungidzira kana mwana ane cystic fibrosis ndeyekutarisa kana ziya rake riine munyu kupfuura zvakajairwa, izvi imhaka yekuti hunhu uhu hwakajairika muchirwere ichi. Kunyangwe dikita rine munyu richiratidza cystic fibrosis, kuongororwa kwacho kunoitwa chete kuburikidza nesheel prick test, iyo inofanirwa kuitwa mumwedzi wekutanga wehupenyu. Kana paine mhedzisiro yakanaka, kuongororwa kunosimbiswa nemuedzo weziya.

Cystic fibrosis chirwere chekuzvarwa nacho chisina mushonga, mune mamwe magonyeti anoburitsa zvakavanzika zvisina kujairika izvo zvinonyanya kukanganisa kugaya uye kufema maturakiti. Kurapa kwayo kunosanganisira mishonga, kudya, kurapwa kwepanyama uye, mune dzimwe nguva, kuvhiyiwa. Hupenyu hunotarisirwa hwevarwere huri kuwedzera nekuda kwekufambira mberi kwekurapa uye nepamusoro mwero wekutevedzera, neavhareji munhu anosvika makore makumi mana ekuberekwa. Dzidza zvakawanda nezve cystic fibrosis.

Zviratidzo zvecystic fibrosis

Chiratidzo chekutanga checystic fibrosis ndipo apo mwana paanotadza kubvisa meconium, inoenderana netsvina yekutanga yemwana achangoberekwa, pazuva rekutanga kana rechipiri rehupenyu. Dzimwe nguva kurapwa kwemishonga kunokundikana kuputsa zvituru izvi uye zvinofanirwa kubviswa kuburikidza nekuvhiyiwa. Zvimwe zviratidzo zvinoratidza cystic fibrosis ndeiyi:

• Dikita rine munyu;
• Kuramba uchikosora kusingaperi, kukanganisa kudya uye kurara;
• Phlegm gobvu;
• Yakadzokororwa bronchiolitis, kunova iko kuramba uchizvimba bronchi;
• Kufema kweutachiona hutachiona hunodzokororwa, senge pneumonia;
• Kunetseka kufema;
• Kuneta;
• Chirwere chisingaperi kana kuvimbiswa kwakanyanya;
• Kurasikirwa nechido;
• Magasi;
• Girisi, zvituru zvakachenuruka;
• Zvakaoma kuwana huremu uye kudzikira kukura.

Zviratidzo izvi zvinotanga kuzviratidza mumavhiki ekutanga ehupenyu uye mwana anofanira kupihwa kurapwa kwakakodzera kuti arege kuwedzera mamiriro acho ezvinhu. Zvisinei, zvinogona kuitika kuti cystic fibrosis iri munyoro uye zviratidzo zvinongoonekwa mukuyaruka kana mukukura.

Maitiro ekusimbisa kuongororwa

Kuongororwa kwecystic fibrosis kunoitwa kuburikidza nesheel prick test, iyo inosungirwa kune vese vacheche uye inofanirwa kuitwa kusvika mwedzi wekutanga wehupenyu. Mune zviitiko zvemhedzisiro, iyo ziya bvunzo inozoitwa kusimbisa kuongororwa. Mumuedzo uyu, dikita dikidiki kubva kumwana rinounganidzwa uye kuongororwa, sekumwe kushanduka ziya ziya rinoratidza kuvepo kwecystic fibrosis.

Kunyangwe iine mhedzisiro yakanaka yemiedzo miviri, muyedzo wezve ziya unowanzo dzokororwa kuve nechokwadi chekuongororwa kwekupedzisira, pamusoro pazvo zvichikosha kucherechedza zviratidzo zvinoratidzwa nemucheche. Vana vakura vane zviratidzo zvecystic fibrosis vanofanirwa kuve nemuedzo weziya kutsigira kuongororwa.

Uye zvakare, zvakakosha kuti uongorore genetic kuti uone kuti chinjoi chine chekuita necystic fibrosis iyo mwana anayo, nekuti zvichienderana neshanduko, chirwere ichi chinogona kuve nekufambira mberi kwakanyanya kana kwakanyanya, izvo zvinogona kuratidza nzira yekurapa yakanaka inoteverwa. yakasimbiswa nachiremba wevana.

Ziva zvimwe zvirwere zvinogona kuzivikanwa neheel prick test.

Kurapa kwecystic fibrosis

Kurapa kwecystic fibrosis kunofanira kutanga nekukurumidza apo kuongororwa kwacho kunoitwa, kunyangwe kana pasina zviratidzo, sezvo zvinangwa zviri zvekumisa hutachiona hwemapapu uye kudzivirira kushaya chikafu zvinovaka muviri uye kudzikira kwekukura.Nekudaro, kushandiswa kwemishonga inorwisa mabhakitiriya kurwisa uye kudzivirira hutachiona hunogona kuratidzirwa nachiremba, pamwe nekushandiswa kwemishonga inorwisa-kupisa kubatsira kubvisa zviratidzo zvine chekuita nekuzvimba kwemapapu.

Izvo zvinoratidzwa zvakare kushandisa bronchodilator zvinodhaka kuita kufema uye mucolytics kubatsira kudzikisira phlegm uye kugonesa kubviswa. Chiremba wevana anogona zvakare kukurudzira kushandiswa kwezvakawedzerwa zvevhitamini A, E K uye D, mukuwedzera kune enzyme enzyme kubatsira kugaya chikafu.

Iyo yekurapa inosanganisira akati wandei nyanzvi, nekuti pamusoro pekushandisa kwemishonga, kufema physiotherapy, hutano uye kuongorora kwepfungwa, oksijeni kurapa kunatsiridza kufema uye, mune dzimwe nguva, kuvhiya kunatsiridza mapapu mashandiro kana kuisirwa kwemapapu kunodiwa zvakare Ona kuti chikafu chingabatsira sei kurapa cystic fibrosis.

Zvinogona kuitika

Cystic fibrosis inokonzeresa kusagadzikana munhengo zhinji dzemuviri, dzinogona kukonzera:

• Chirwere chebronchitis, icho chinowanzo kunetsa kudzora;
• Pancreatic insufficiency, iyo inogona kutungamirira kukusagadzikana kwechikafu chakadyiwa uye kushaya zvinovaka muviri;
• Chirwere cheshuga;
• Zvirwere zvechiropa, senge kuzvimba uye cirrhosis;
• Kusabereka;
• Distal intestinal obstruction syndrome (DIOS), uko kunoitika kuvhara kwemukati, zvichikonzera kurwadza, kurwadziwa uye kuzvimba mudumbu;
• Dombo rematombo;
• Chirwere chepfupa, chinotungamira mukureruka kukuru kwekupwanya kwemapfupa;
• Kushaya zvokudya zvinovaka muviri.

Mamwe matambudziko ecystic fibrosis anonetsa kudzora, asi kurapwa kwekutanga ndiyo nzira yakanyanya kuwedzera hupenyu hwehupenyu nekufarira kukura kwakakodzera kwemwana. Kunyangwe paine matambudziko mazhinji, vanhu vane cystic fibrosis vanowanzo gona kuenda kuchikoro nekushanda.

Makore ekurarama

Hupenyu hunotarisirwa hwevanhu vane cystic fibrosis inosiyana kubva pamunhu kuenda kune mumwe munhu maererano neshanduko, bonde, kurapwa kurapwa, kuomarara kwechirwere, zera pakuongororwa uye kuchipatara kufema, kugaya uye pancreatic kuratidzwa. Kufungidzira kunowanzo kuve kwakanyanya kune vanhu vasina kurapwa zvakanaka, vanononoka kuongororwa chirwere kana vane pancreatic kusakwana.

Mune vanhu vakaonekwa kuti vakurumidza, kunyanya achangozvarwa, zvinokwanisika kuti munhu asvike makore makumi mana ekuberekwa, asi izvo zvinofanirwa kuita kurapwa nenzira kwayo. Tsvaga kuti kurapwa kwecystic fibrosis kunofanira kuitwa sei.

Parizvino, vangangoita 75% yevanhu vanotevera kurapwa kwecystic fibrosis sezvakakurudzirwa vanosvika kumagumo ekuyaruka uye vangangoita makumi mashanu muzana vanosvika gumi rechitatu rehupenyu, iyo yaingova gumi muzana zvisati zvaitika.

Kunyangwe kana kurapwa kwacho kukaitwa nemazvo, zvinosuruvarisa kuti zvakaoma kuti munhu anowanikwa aine cystic fibrosis asvike makore makumi manomwe, semuenzaniso. Izvi zvinodaro nekuti kunyangwe nekurapwa kwakakodzera, kune kufambira mberi kubatanidzwa kwenhengo, izvo zvinoita kuti zvive zvisina kusimba, kushaya simba uye kurasikirwa nebasa razvo mukati memakore, zvichikonzeresa, kazhinji, mukutadza kufema.

Pamusoro pezvo, kutapukirwa nema microorganisms kwakajairika muvanhu vane cystic fibrosis uye kugara vachirapwa nemishonga inorwisa mabhakitiriya kunogona kukonzera kuti mabhakitiriya ave anopikisa, izvo zvinogona kuwedzera kuomesa mamiriro emakiriniki emurwere.