Hailey Bieber Akafumura Kuti Ane Genetic Condition Inonzi Ectrodactyly-Asi Chii Icho?

Zvemukati

• Chii chinonzi ectrodactyly?
• Chii chinokonzera ectrodactyly?
• Ongororo ye

MaTroll troll anowana chero nzira yavanogona kutsoropodza nayo miviri yevakakurumbira — ndicho chimwe chezvinhu zvine chepfu pane vezvenhau. Hailey Bieber, aimbove akavhurika nezvekuti social media inokanganisa sei hutano hwake hwepfungwa, nguva pfupi yadarika akabvunza Instagram troll kuti arege "kugocha" chikamu chechitarisiko chake chaungasatarisira kuongororwa pakutanga: mapinki ake.

"Ok ngatipindei munhaurwa yepinky .. nekuti ndazviseka pamusoro peizvi nekusingaperi saka ndinogona kungo taurira munhu wese kuti nei [mapinki angu] akaminama uye achityisa," Bieber akanyora muNyaya ye Instagram iyo. yakaratidza mufananidzo wake pinky akatarisa, zvinobvumwa, akakombama zvishoma.

Iyo modhi yakabva yagovera ikozvino-yakadzimwa skrini yeWikipedia peji yemamiriro anonzi ectrodactyly, maererano Daily Mail. "Ndine chinhu ichi chinonzi ectrodactyly uye chinoita kuti zvigunwe zvangu zvitaridzike sezvavanoita," Bieber anonzi akanyora padivi pe Wikipedia screenshot, kuUK nhau yekubuda. "It's genetic, ndave ndiine hupenyu hwangu hwose. Saka vanhu vanogona kurega kundibvunza kuti 'wtf yakashata neminwe yake pinky.' " (Related: Aya Mamiriro Ezvemagariro Evanhu Anoita Kuti Zvive Nyore Kudzivirira Kupesana Nemashoko Anovenga uye Kukurudzira Mutsa)

Chii chinonzi ectrodactyly?

Ectrodactyly inzira yekuparadzanisa ruoko / kupatsanura tsoka kusagadzikana (SHFM), chirwere chemajini "chinozivikanwa nekushayikwa kwakakwana kana kusarongeka kwemimwe minwe kana zvigunwe, zvinowanzo kuve zvakasanganiswa nemabhande mumaoko kana mutsoka," sekureva kweNational Organisation yeRare Kushungurudzika (NORD). Mamiriro acho anogona kupa maoko nemakumbo "claw-like" chitarisiko, uye mune zvimwe zviitiko, zvinogona kukonzera kutaridzika kwekubata pakati peminwe kana zvigunwe (kunozivikanwa senge syndactyly), paNORD.

Kunyangwe SHFM ichigona kupa nenzira dzakasiyana siyana, kune maviri makuru mafomu. Yokutanga inonzi "lobster claw" yakasiyana-siyana, umo mune "kazhinji kusavapo" kwemunwe wepakati; "cone-shaped cleft" panzvimbo yemunwe inokamura ruoko kuita zvidimbu zviviri (kuita kuti ruoko rutaridzike serukoni saka zita racho), maererano neNORD. Iyi fomu yeSHFM inowanzoitika mumaoko maviri, uye inogona kukanganisa tsoka, pasangano. Monodactyly, iyo imwe fomu hombe yeSHFM, inoreva kusavapo kweminwe yese kunze kwepinki, sekureva kweNORD.

Hazvizivikanwe chaizvo kuti ndeupi rudzi rweSHFM Bieber anoti anayo - zviri pachena kuti ane zvigunwe gumi zvese pamaoko ake - asi sekutaura kweNORD, kune akati wandei "marudzi uye kusanganisa kwekuremara" kunogona kuitika neSHFM, uye mamiriro "renji zvakanyanya mukuomarara. " (Yakabatana: Uyu Muenzaniso une Genetic Dambudziko Iri Kuputsa Pasi Stereotypes)

Chii chinokonzera ectrodactyly?

Sezvakataurwa naBieber mu Instagram Nhau dzake, ectrodactyly igenetic condition, zvichireva kuti avo vanayo vanozvarwa nayo (zvichida nekuda kwemajini ekugadzira kana kusarudzika gene mutation), maererano neGenetic uye Rare Diseases Information Center (GARD). SHFM, kazhinji, inogona kubata vacheche vechirume nevakadzi zvakaenzana. Anenge mumwe chete pavane gumi nevasere vacheche vanozvarwa vane imwe chimiro chechimiro, pane iyo NORD. Nepo SHFM ichikanganisa nhengo dzemhuri imwechete, mamiriro acho anogona kuunza zvakasiyana mumunhu wega wega. Inoonekwa zvichienderana ne "chimiro chemuviri chiripo pakuzvarwa" uye skeletal anomalies inowonekwa neX-ray scans, inodaro NORD.

Kune chikamu chikuru, vanhu vane chimiro cheSHFM kazhinji vanorarama hupenyu hwakajairika, asi vamwe vanogona kunge vaine "matambudziko mukushanda kwemuviri," zvichienderana nekuti malformation yavo yakanyanya sei, sekureva kweNORD. Kune zvakare "zvishoma zviitiko zveSHFM" izvo dzimwe nguva zvinoperekedzwa nematsi, maererano neongororo ye2015 yakabudiswa mu CHRISMED Chinyorwa cheHutano nekutsvaga.

Kunze kwaBieber, hapana huwandu hweveruzhinji vane imwe mhando yeSHFM (kana vangangoita vashoma vanga vakasununguka nezve kuva nemamiriro ezvinhu). Nhau anchor uye hurukuro inoratidzira inomiririra, Bree Walker akazoenda kuruzhinji neayo syndactyly diagnostic (inozivikanwa nemaviri kana anopfuura webhu kana zvigunwe zvakabatana) mushure memakore ekuvanza maoko ake mukati megurovhosi. Kudzoka muma80s, Walker akaudza Vanhu aigara achiitirwa hutsinye sekutarisa uye asina kukumbirwa kutaura kubva kune vaasingazive nezvekutaridzika kwemaoko netsoka. Walker atove murwiri wekodzero dzevakaremara kune avo vane mamiriro akafanana. (Zvakabatana: Jameela Jamil Achangoburitsa Kuti Ane Ehlers-Danlos Syndrome)

Kune chikamu chaBieber, haana kutsanangura kuti sei, ectrodactyly zvakakanganisa hupenyu hwake, uye haana kutaura kuti ane zvimwe zvinokanganisa kunze kwekuonekwa kwemunwe wake wepinki.

Izvo zvakati, zvinogara zvakakodzera kuyeuka kuti kutsinhira pamusoro pemumwe munhu muviri hakumbofi kwakanakisa-kuzara.

Ongororo ye