Munyori: Randy Alexander
Zuva Rekusika: 24 Kubvumbi 2021
Gadziridza Zuva: 19 Mbudzi 2024
Anonim
Maitiro Ekutora Wiricheya Yechirwere Changu Chisingaperi Kuchinja Hupenyu Hwangu - Utano
Maitiro Ekutora Wiricheya Yechirwere Changu Chisingaperi Kuchinja Hupenyu Hwangu - Utano

Zvemukati

Pakupedzisira kubvuma kuti ndaigona kushandisa rumwe rubatsiro kwakandipa rusununguko rwakawanda kupfuura zvandaifungidzira.

Hutano uye hutano zvinobata mumwe nemumwe wedu zvakasiyana. Iyi inyaya yemunhu mumwe.

"You are stubborn zvekuti unopedzisira wave pawiricheya."

Ndo izvo nyanzvi physiotherapist mune yangu mamiriro, Ehlers-Danlos syndrome (EDS), akandiudza ini pandakanga ndiri mumakore angu ekutanga makumi maviri.

EDS chirwere chinobatanidza matishu chinokanganisa zvakanyanya chikamu chemuviri wangu. Chinhu chakaomesesa kuve nacho ndechekuti muviri wangu unogara uchikuvara. Majoini angu anogona sublux uye mhasuru dzangu dzinogona kudhonza, kupwanya, kana kubvarura mazana kazana pasvondo. Ndakagara neEDS kubvira ndaive nemakore 9 ekuberekwa.

Paive nenguva pandakapedza nguva yakawanda ndichifunga nezvemubvunzo, Chii chinonzi kuremara? Ndaifunga shamwari dzangu nehurema hunoonekwa, hwetsika nemagariro kuti "Vanhu Vakaremara Chaiwo."


Ini handina kukwanisa kuzviunza kuti ndizivise semunhu akaremara, apo - kubva kunze - muviri wangu waigona kupfuura uine hutano. Ndaiona hutano hwangu sehunogara huchichinja, uye ndaingofunga nezvehurema sechinhu chakagadziriswa uye chisingachinjiki. Ndakanga ndichirwara, ndisina kuremara, uye kushandisa wiricheya chaingova chimwe chinhu icho "Chaizvo Vakaremara Vanhu" vaigona kuita, ndakazviudza kudaro.

Kubva makore ndichiita kunge paive pasina chakaipa pandiri kusvika panguva yandakapedzera ndichisunda nemarwadzo, hupenyu hwangu hwese neEDS yanga iri nyaya yekuramba.

Mumakore angu ekuyaruka uye ekutanga makumi maviri, ini handina kukwanisa kugamuchira chokwadi chehutano hwangu husina kunaka. Mhedzisiro yekushaya kwangu kwekuzvinzwira tsitsi yaive mwedzi yekupedzisira yaishandiswa pamubhedha - isingakwanise kushanda semhedzisiro yekusundira muviri wangu zvakanyanya kuti ndiedze kuenderera pamwe neangu "akajairika" vezera rangu vane hutano.

Kumanikidza kuti ndiite 'zvakanaka'

Nguva yekutanga yandakamboshandisa wiricheya yaive paairport. Handina kumbobvira ndafunga kushandisa wiricheya kare, asi ndaibvisa bvi rangu ndisati ndaenda kuzororo uye ndaida rubatsiro kuti ndipfuure nepanogumira.


Yakanga iri simba rinoshamisa- neruzivo rwekuchengetedza-kurwadziwa. Handina kufunga nezvazvo sechimwe chinhu chakakosha pane kundipfuura nendege, asi yaive danho rekutanga rakakosha mukundidzidzisa kuti chigaro chingashandure sei hupenyu hwangu.

Kana ndiri kuva akatendeseka, ini nguva dzose ndainzwa senge ndaigona kupfuudza muviri wangu - kunyangwe mushure mekurarama neakawanda mamiriro asingagumi kweanoda kusvika makore makumi maviri.

Ndakafunga kuti ndikangoyedza nepese pandinogona uye nekusundira mukati, ndinenge ndagarika - kana kutomboita nani.

Zvigadzirwa zvekubatsira, zvikuru madondoro, zvaive zvekukuvara kwakanyanya, uye nyanzvi dzese dzekurapa dzandakaona dzakandiudza kuti kana ndikashanda nesimba zvakakwana, saka ndinenge "ndakanaka" - pakupedzisira.

Ndakanga ndisiri.

Ndingangopunzika kwemazuva, vhiki, kana kunyange mwedzi kubva kuzvisundira kure zvakanyanya. Uye zvakanyanya kure kwandiri kazhinji zvinowanzoonekwa nevanhu vane hutano sehusimbe. Kwemakore, hutano hwangu hwakaramba huchienderera mberi, uye zvakanzwa zvisingaite kusimuka pamubhedha. Kufamba kupfuura nhanho shomanana kwakandikonzera kurwadziwa kwakanyanya uye kuneta zvekuti ndaigona kuchema mukati meminiti yekusiya furati rangu. Asi ndakanga ndisingazivi zvekuita nezvazvo.


Munguva dzakaipisisa nguva - apo pandainzwa kunge ndakanga ndisina simba rekuvapo - amai vangu vaizouya newiricheya yaambuya vangu, kungoita kuti ndibude pamubhedha.

Ndaienda pasi uye ainditora kundotarisa kuzvitoro kana kungowana mweya wakanaka. Ndakatanga kuishandisa zvakanyanya nguva dzekushamwaridzana apo ini ndaive nemumwe munhu anondisundidzira, uye zvakandipa iwo mukana wekusiya mubhedha wangu uye ndive nechimiro chehupenyu.

Zvino gore rapfuura, ndakawana basa rangu reroto. Izvi zvaireva kuti ndaifanira kufunga kuti ndoita sei kubva pakuita padhuze nepadiki kusiya imba ndichishanda kwemaawa mashoma kubva kuhofisi. Hupenyu hwangu hwemagariro hwakatangawo, uye ndaishuva rusununguko. Asi, zvekare, muviri wangu wanga uchinetseka kuti urambe wakamira.

Kunzwa kunakisa mune yangu simba cheya

Kubudikidza nedzidzo uye kusangana nevamwe vanhu online, ndakadzidza kuti maonero andaiita mawiricheya nekuremara seyese aive asina kuziviswa zvisirizvo, nekuda kwekuratidzwa kushoma kwekuremara kwandakaona munhau uye tsika dzakakurumbira kukura.

Ndakatanga kuona sevakaremara (hongu, kuremara kusingaonekwe chinhu!) Uye ndakaona kuti "kuyedza nesimba" kuramba ndichienda kwanga kusiri iko kurwisa kwakanaka nemuviri wangu. Nezvose zvinodiwa munyika, handina kukwanisa kugadzirisa nyama yangu inobatanidza.

Yakanga yave nguva yekuwana chigaro chemagetsi.

Kutsvaga iyo chaiyo kwandiri kwaive kwakakosha. Mushure mekutenga-tarisa, ndakawana cheya chezizi yakanakisa zvisingaite uye inoita kuti ndinzwe kunakisa. Izvo zvakangotora maawa mashoma ekushandisa kwesimba rangu chigaro kuti ndinzwe sechikamu changu. Mwedzi mitanhatu gare gare, ndinotochema misodzi mumaziso angu pandinofunga nezve madiro andinoita.

Ndakaenda kuchitoro chikuru kwenguva yekutanga mumakore mashanu. Ini ndinogona kuenda kunze kunze kwekuti ndive chete chiitiko chandinoita vhiki iyoyo. Ini ndinogona kuve ndakatarisana nevanhu ndisingatyi kutya kupedzisira ndopinda muchipatara mukamuri. Sachigaro wangu wesimba akandipa rusununguko rwandisingarangariri ndakambove narwo.

Kune vanhu vakaremara, hurukuro zhinji dzakapoteredza mawiricheya ndedzekuti vanounza sei rusununguko - uye vanoita chaizvo. Chigaro changu chachinja hupenyu hwangu.

Asi zvakakoshawo kuziva kuti pakutanga, wiricheya inogona kunzwa kunge mutoro. Kwandiri, kusvika pakubvuma kushandisa wiricheya yaive nzira yakatora makore akati wandei. Shanduko kubva pakukwanisa kufamba famba (kunyangwe uchirwadziwa) kuenda mukugara uri wega pamba yaive yekushungurudza uye kudzidza zvakare.

Pandaive mudiki, iyo pfungwa yeku "kunamirwa" muwiricheya yaityisa, nekuti ndaibatanidza nekurasika kwakawanda kwekugona kwangu kufamba. Kamwe iko kugona kwacho kwainge kwaenda uye cheya yangu ikandipa rusununguko pachinzvimbo, ini ndakazviona zvakasiyana zvachose.

Pfungwa dzangu parusununguko rwekushandisa wiricheya inopesana netsitsi dzevashandisi vewiricheya vanowanzowana kubva kuvanhu. Vechidiki avo "vanotaridzika zvakanaka" asi vanoshandisa chigaro vanoona iyi tsitsi zvakanyanya.

Asi hechino chinhu: Hatidi tsitsi dzako.

Ndakapedza nguva yakareba ndichiitwa kuti nditende nevanoona nezvekurapa zvekuti dai ndaishandisa chigaro, ndinenge ndakundikana kana kurega neimwe nzira. Asi zvinopesana ndezvechokwadi.

Sachigaro wangu wesimba ndiko kuziva kuti ini handidi kuzvimanikidza kuburikidza neyakaipisisa marwadzo yezvinhu zvidiki. Ini ndinokodzera mukana wekurarama zvechokwadi. Uye ndinofara kuita kudaro ndiri muwiricheya yangu.

Natasha Lipman chirwere chisingaperi uye chakaremara blogger kubva kuLondon. Iye zvakare Global Changemaker, Rhize Emerging Catalyst, uye Virgin Media Pioneer. Unogona kumuwana pa Instagram, Twitter uye rake blog.

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