Healthline's New App Inobatsira Kubatanidza Avo vane IBD

Zvemukati

• Iva chikamu chemunharaunda
• Tsvaga nyaradzo muhuwandu uye mapoka
• Mienzaniso yemagariro ehurukuro hurukuro
  
• Tsvaga zvinodzidzisa uye zvine mbiri zvinyorwa
• Nzvimbo yekuva netariro uye tariro

IBD Healthline chirongwa chemahara chevanhu vanorarama nechirwere cheCrohn kana ulcerative colitis. Iyo app inowanikwa paApp Store neGoogle Play.

Kutsvaga shamwari nemhuri vanonzwisisa uye vanotsigira IBD yako ipfuma. Kubatana neavo vanozvionera vega hakugone kutsiviwa.

Chinangwa cheHealthline's IBD app nyowani kupa nzvimbo yekubatana kwakadaro.

Yakagadzirirwa vanhu vanorarama nechirwere cheCrohn kana ulcerative colitis (UC), iyo yemahara app inopa rutsigiro rweumwe-neumwe uye mazano eboka kubva kuvanhu vanonzwisisa zvauri kusangana nazvo, kunyangwe iwe uchangobva kuongororwa kana akagwinya vet.

"Zvinoreva nyika kwandiri kuti ndikwanise kubatana nemunhu" anohuwana, "anodaro Natalie Hayden, akawanikwa aine chirwere cheCrohn aine makore makumi maviri nerimwe.

"Pandakabatwa neCrohn's muna 2005, ndakanzwa kusurukirwa uye kusurukirwa," anodaro. "Ndingadai ndakapa chero chinhu kuti ndive nekwaniso yekusvikira akananga kune vanhu vane IBD uye ndigovane zvandinotya, zvinondinetsa, uye kurwira kwangu ndoga ndisingatyi kutongwa." "Zviwanikwa zvakaita seiyi [app] zvinotipa simba sevarwere uye zvinotiratidza mafambiro anoita hupenyu, kunyangwe uine chirwere chisingaperi."

Iva chikamu chemunharaunda

Iyo IBD app inoenderana newe nenhengo dzinobva munharaunda mazuva ese na12 masikati. Pacific Yenguva Yakavakirwa pane yako:

• IBD mhando
• kurapwa
• mararamiro anofarira

Iwe unogona zvakare kutarisa nhengo dzemaprofile uye kukumbira kubatana pakarepo nemumwe munhu. Kana mumwe munhu achida kufanana newe, unoziviswa ipapo ipapo. Pane imwe nguva yakabatana, nhengo dzinogona kutumira mameseji kune mumwe nemumwe uye kugovana mifananidzo.

"Mutambo wezuva nezuva unondikurudzira kuti ndisvike kune vanhu vandaisazopindirana navo, kunyangwe ndikaona ma profiles avo pane chikafu," anodaro Alexa Federico, anga achigara nechirwere cheCrohn kubvira aine makore gumi nemaviri. “Kugona kutaura nemumwe munhu ipapo ipapo kwakanakira chero munhu anoda zano ASAP. Inowedzera [pfungwa ye] nyaradzo kuziva [kune] netiweki yevanhu yekutaura navo. "

Natalie Kelley, uyo akaonekwa aine UC muna 2015, anoti zvinofadza kuziva kuti achawana mutambo mutsva mazuva ese.

"Zviri nyore kunzwa sekuti hapana munhu anonzwisisa zvauri kutarisana nazvo, asi wozoona kuti zuva rega rega iwe unowana 'kusangana' nemunhu anoita chiitiko chakasarudzika," Kelley anodaro. “Iyo nguva yaunokurukura nemumwe murwi weIBD uye uine iyo 'Unondibata!' Inguva mashiripiti. Kuva nemunhu wekutumira meseji kana kutumira mameseji paunenge wakarara wakarara husiku uchizvidya mwoyo nezveBD kana kunzwa zvakashata nekuda kwekushayikwa kwekufambidzana nekuda kweBD zvinonyaradza. "

Paunowana mutambo wakanaka, iyo IBD app inopwanya chando nekuita kuti munhu wega wega apindure mibvunzo kubatsira kuti hurukuro ienderere mberi.

Hayden anoti izvi zvakaitwa pabhodhi inonzwisisika uye inogamuchirwa.

"Chikamu changu chandaida chaive mubvunzo wekuvhuvhuta chando, nekuti chakandiita kuti ndimbomira ndimbofunga nezverwendo rwangu rwekushivirira uye nekubatsira kwandinoita vamwe," anodaro.

Tsvaga nyaradzo muhuwandu uye mapoka

Kana iwe uri kunyanya mukukurukura nevanhu vanoverengeka panguva imwe chete pane kuita-ne-one kudyidzana, iyo app inopa inorarama yeboka hurukuro zuva rega revhiki. Yakatungamirwa negwara reBD, hurukuro dzeboka dzinovakirwa pane dzakananga misoro.

Mienzaniso yemagariro ehurukuro hurukuro

• kurapwa uye mhedzisiro
• mararamiro
• basa
• hukama nemhuri uye shamwari
• kuva achangobva kuongororwa
• kudya
• manzwiro uye hutano hwepfungwa
• kufamba pahutano
• kurudziro

"Iyo 'Mapoka' chimiro chimwe chezvikamu zvakakosha zveapp. Kusiyana neboka reFacebook uko chero munhu achigona kubvunza mubvunzo nezve chero chinhu, iwo [magaidhi] anochengeta nhaurwa pamusoro wenyaya, uye misoro inoburitsa zvakasiyana siyana, ”Federico anodaro.

Hayden anobvumirana. Iye anozviona izvo zvinowanisa ruzivo rweapp nekuti unogona kukanda mumusoro unoenderana nezvinodiwa nezvido zvako. Iye anowana "Akazvimirira Nharaunda" uye "Kufuridzirwa" mapoka anonyanya kutaurwa.

"Ndine mwana ane makore maviri uye ane mwedzi mina, saka ndinogara ndichiona zvichibatsira kubatana nevamwe vabereki veBD vanonzwisisa chokwadi changu chezuva nezuva." Ndine rutsigiro rwakakura rwemhuri neshamwari, asi kuva nenharaunda ino kunoita kuti ndikwanise kusvika kuvanhu vanoziva zvechokwadi kuti zvakaita sei kurarama nechirwere ichi chisingaperi, ”anodaro Hayden.

Kuna Kelley, mapoka ezvikafu nemimwe mishonga, hutano hwepfungwa uye hwepamoyo, uye kurudziro yakawedzera zvakanyanya.

“Kuva murairidzi wezvehutano wakakwana, ndinoziva simba rekudya uye ndaona kuwanda kwazvakaita kuchikafu kwakabatsira zviratidzo zvangu zve ulcerative colitis, saka ndinoda kunakidzwa nekugovana ruzivo irworwo nevamwe. Ini zvakare ndinofunga iyo yepfungwa uye yemanzwiro hutano divi reIBD inyaya isina kukurukurwa zvakakwana.

"Ndinoziva kuti ndakave nenguva yakaoma kuvhura nezve hutano hwangu hwepfungwa mushure mekuongororwa kwangu neBD. Asi nekuziva kuti vakabatana sei uye vanonzwa kugoneswa kutaura pamusoro pazvo, uye kuratidza vamwe kuti havasi vega kana vari kunzwa saizvozvo chikamu chakakura chebasa rangu, "Kelley anodaro.

Anowedzera kuti seblogger yehutano, chinangwa chake chezuva nezuva kukurudzira vamwe.

“Kunyanya avo vane IBD. Kuva neboka rose [muapp] rakazvipira kukurudziro zvinokurudzira zvinoshamisa, ”anodaro.

Tsvaga zvinodzidzisa uye zvine mbiri zvinyorwa

Paunenge uri mumamiriro ekuverenga nekudzidza pane kukurukura nekukurukura, unogona kuwana hutano hwakasarudzwa uye nhau dzenyaya pamusoro peBD yakaongororwa neboka reHealthline revashandi vezvehutano.

Mune yakasarudzika tebhu, iwe unogona kufamba nezvinyorwa nezve kuongororwa, kurapwa, hutano, kuzvitarisira, hutano hwepfungwa, uye nezvimwe, pamwe nenyaya dzemunhu uye zvipupuriro kubva kuvanhu vanogara neBD. Iwe unogona zvakare kuongorora zvemakiriniki miedzo uye yazvino IBD tsvagiridzo.

"Chikamu che 'Zivisa' chakanak nekuti inyaya dzechokwadi dzaungashandisa. Zvakafanana nenhepfenyuro yakanangana neBD, "anodaro Hayden. "Ndiri kugara ndichiedza kuzvidzidzisa nezvekurwara kwangu uye nevamwe (vanhu) zviitiko kuitira kuti ndive murwere ari nani anondimiririra ini uye nevamwe munharaunda."

Kelley anonzwa zvakafanana.

"Ndiri kugara ndichiita tsvagiridzo pamusoro peBD uye gut gut hutano nekuda kwangu uye nekuda kwevatengi vangu nenharaunda pa Instagram uye webhusaiti yangu," anodaro. "Kugona kungobaya pane 'Tsvaga' uye uwane zvese zvinovimbika zvine chekuita neBD zvinoita kuti maitiro aya ave nyore.

“Ndinofunga kuti dzidzo kupa masimba, zvikuru kana zvasvika pakurarama nechirwere chisingaperi. Ndanga ndisingambo tsvagise nekuti zvaindiita kuti ndinzwe kuremerwa, asi ikozvino ndave kuona kuti pandinoziva zvakawanda pamusoro pechirwere changu, ndiri nane. ”

Nzvimbo yekuva netariro uye tariro

Basa reBD Healthline nderekupa simba vanhu kuti vararame kupfuura kwavo IBD kuburikidza netsitsi, rutsigiro uye ruzivo. Zvakare, zvinotaridzika kupa nzvimbo yakachengeteka kuti uwane uye ugamuchire mazano, tsvaga uye upe rutsigiro, uye uwane yazvino IBD nhau uye nekutsvagisa kwakagadzirirwa iwe chete.

“Ndinoda kutsigira kwenharaunda kwatova. Ndakaedza kujoina mamwe mapoka ekutsigira kana mabhodhi ekukurukura kare uye ndainzwa sekunge vatendeukira kunzvimbo isina kunaka nekukurumidza, "anodaro Kelley.

“Wese munhu ari muapp iyi anosimudzira uye ane hanya zvechokwadi nezvatiri kugovana tese. Kugona kudzikamisana munzendo dzedu dzeBD kunoita kuti moyo wangu ufare kwazvo, ”anowedzera.

Cathy Cassata munyori akazvimiririra uyo anonyanya kugadzirisa nyaya dzakakomberedza hutano, hutano hwepfungwa, uye hunhu hwevanhu. Ane hunyanzvi hwekunyora nemanzwiro uye nekubatana nevaverengi nenzira inonzwisisika uye inobata. Verenga zvimwe zvebasa rake pano.