Heano Maitiro eBlogging Akandipa Ini Inzwi Mushure MeUlcerative Colitis Kuziva

Zvemukati

• Kugadzira chikuva chekukurudzira vamwe
• Kudzidza kutsigira hutano hwako
• Kuchinja maonero uye kuparadzira tariro

Uye mukuita kudaro, vakagonesa vamwe vakadzi vane IBD kuti vataure nezvevanoongorora.

Dumbu raive chikamu chenguva dzose chehucheche hwaNatalie Kelley.

"Isu taigara tichingokachira kwandiri kuti ndive nedumbu rakaoma," anodaro.

Nekudaro, panguva yaakange ave kukoreji-akasungwa, Kelley akatanga kucherechedza kusagadzikana kwezvikafu uye akatanga kubvisa gluten, dairy, uye shuga netariro yekuwana zororo.

"Asi ndakanga ndichiri kucherechedza nguva dzese kutyisa kwakanyanya uye kurwadziwa nemudumbu mushure mekunge ndadya chero chinhu," anodaro. "Kwerinenge gore, ndakanga ndiri mukati nekubuda mumahofisi echiremba uye ndaiudza kuti ndaive neBS (inorwarisa ura, chirwere chisina kutsva) uye ndaida kuziva kuti ndezvipi zvekudya zvisina kundishandira."

Kwake kwekusvitsa kwakauya zhizha pamberi pegore rake rekupedzisira rekoreji mu2015. Akanga achifamba muLuxembourg nevabereki vake paakaona ropa muchigaro chake.

"Ndipo pandakaziva kuti chimwe chinhu chakakomba chaiitika." Amai vangu vakaonekwa kuti vane chirwere cheCrohn vachiri kuyaruka, saka takaita sekuisa vaviri uye vaviri pamwechete kunyangwe isu taitarisira kuti kwaive kurwara kana kuti chikafu muEurope chaiita chimwe chinhu kwandiri, "Kelley anoyeuka.

Paakadzokera kumba, akaronga colonoscopy, izvo zvakaita kuti aonekwe zvisirizvo nechirwere cheCrohn.

"Ndakaongororwa ropa mushure memwedzi yakati wandei, uye ndipo pavakafunga kuti ndaive ne ulcerative colitis," Kelley anodaro.

Asi pane kunzwa kushushikana nezve chirwere chake, Kelley anoti kuziva kuti ane ulcerative colitis kwakamuunzira rugare rwepfungwa.

"Ndakanga ndichifamba makore mazhinji kudaro mune izvi zvinogara zvichirwadza uye nekugara kuneta, saka kuongororwa kwacho kwainge kwakaita senge kusimbiswa mushure memakore mazhinji ekushamisika kuti chii chingave chirikuitika," anodaro. “Ndakaziva ipapo kuti ini ndaigona kutora matanho ekuti ndive nani pane kungotenderera ndichiita bofu ndichitarisira kuti chimwe chinhu chandisina kudya chingabatsira. Zvino, ndinogona kugadzira chirongwa chaicho uye kufambira mberi. ”

Kugadzira chikuva chekukurudzira vamwe

Sezvo Kelley aive achidzidza kuongorora kwake kutsva kuongororwa, aive achitarisirawo bhurogu yake Plenty & Well, iyo yaakange atanga makore maviri apfuura. Asi kunyangwe aine chikuva ichi chaainacho, mamiriro ake anga asiri iwo nyaya yaaishuvira kunyora nezvayo.

"Pandakatanga kuongororwa, handina kutaura nezve IBD zvakanyanya pablog rangu. Ini ndinofunga chikamu changu ndichiri kuda kuchisiya. Ndakanga ndiri mugore rangu rekupedzisira kukoreji, uye zvinogona kunetsa kutaura nezvazvo neshamwari kana mhuri, ”anodaro.

Nekudaro, akanzwa kudaidzwa kuti ataure pamusoro peblog rake uye Instagram account mushure mekuita chakakomba chakamuisa muchipatara muna Chikumi 2018.

"Muchipatara, ndakaona kuti zvaikurudzira sei kuona vamwe vakadzi vachitaura nezve IBD uye vachipa rutsigiro. Kubloga nezve IBD uye kuve nepuratifomu yekutaura pachena nezve kugara nechirwere ichi chisingaperi kwakandibatsira kupora munzira dzakawanda. Zvinondibatsira kuti ndinzwe kunzwisiswa, nekuti pandinotaura nezve IBD ndinowana zvinyorwa kubva kune vamwe vanowana zvandiri kutarisana nazvo. Ndinonzwa kusurukirwa ndiri ndoga muhondo iyi, uye ndicho chikomborero chikuru. ”

Iye anotarisira kuvapo kwake pamhepo kuve pamusoro pekukurudzira vamwe vakadzi vane IBD.

Kubva zvaakatanga kutumira nezve ulcerative colitis pa Instagram, anoti akagashira mameseji akanaka kubva kuvakadzi nezvekuti kukurudzira kwake zvave zvakasimudzira sei.

"Ndinowana mameseji kubva kuvakadzi vachindiudza kuti vanonzwa simba uye chivimbo chekutaura nezve [IBD yavo] neshamwari, mhuri, nevadikani," Kelley anodaro.

Nekuda kwemhinduro, akatanga kubata Instagram mhenyu nhepfenyuro inonzi IBD Warrior Vakadzi Chitatu chega chega, paanotaura nevakadzi vakasiyana neBD.

"Tinotaura nezve matipi ezve positivity, matauriro nevadiwa, kana nzira yekufamba nayo kukoreji kana 9-to-5 mabasa," Kelley anodaro. "Ndiri kutanga hurukuro idzi nekugovana dzimwe nyaya dzevakadzi pachikuva changu, zvinova zvinofadza chose, nekuti patinonyanya kuratidza kuti hachisi chinhu chekuhwanda kana kunyara nacho uye patinonyanya kuratidza kuti kunetseka, kushushikana, uye hutano hwepfungwa. [zvinonetsa] zvinouya neBD zvakasimbiswa, ndipo paticharamba tichipa vakadzi simba. ”

Kudzidza kutsigira hutano hwako

Kubudikidza nehukama hwake mapuratifomu, Kelley anotarisirawo kukurudzira vechidiki vane chirwere chisingaperi. Pazera remakore makumi maviri nemaviri chete, Kelley akadzidza kusimudzira hutano hwake. Nhanho yekutanga yaive kuwana chivimbo kutsanangurira vanhu kuti sarudzo dzake dzekudya dzaive dzehupenyu hwake.

"Kuunganidza pamwechete kudya mumaresitorendi kana kuunza chikafu cheTupperware kumafaro kunogona kuda tsananguro, asi zvishoma zvaunoita nekuita nezvazvo, vanhu vanokukomberedza vanonetseka," anodaro. "Kana vanhu chaivo vari muhupenyu hwako, vacharemekedza kuti unofanirwa kuita sarudzo idzi kunyangwe dzakatosiyana pane dzevamwe vese."

Zvakadaro, Kelley anobvuma kuti zvinogona kuva zvakaoma kuti vanhu vataure kune avo vari mumakore ekuyaruka kana makumi maviri vari kurarama nechirwere chisingaperi.

"Zvakaoma pazera diki, nekuti unonzwa sekuti hapana munhu anokunzwisisa, saka zvakatiomera zvikuru kuzvimiririra kana kutaura nezvazvo pachena. Kunyanya nekuti mumakore ako makumi maviri, unenge uchingoda kukwanawo, ”anodaro.

Kutarisa hudiki uye hutano kunowedzera kuchinetso.

"Chinhu chisingaonekwe cheBD ndechimwe chezvinhu zvakaomarara pazviri, nekuti manzwiro aunoita mukati handiwo akafungidzirwa kune vekunze, saka vanhu vazhinji vanofunga kuti uri kuwedzeredza kana kunyepa. inotamba muzvinhu zvakasiyana siyana zvehutano hwepfungwa, "Kelley anodaro.

Kuchinja maonero uye kuparadzira tariro

Pamusoro pekuparadzira ruzivo uye tariro kuburikidza nemapuratifomu ake, Kelley ari kubatanawo neHealthline kunomiririra iyo yemahara IBD Healthline app, iyo inobatanidza avo vanogara neBD.

Vashandisi vanogona kutarisa maprofayiri enhengo uye kukumbira kufananidza nechero nhengo iri munharaunda. Vanogona zvakare kujoina hurukuro yeboka inoitwa zuva nezuva inotungamirwa negwara reIBD. Misoro yekukurukurirana inosanganisira kurapwa uye mhedzisiro, chikafu uye dzimwe nzira dzokurapa, hutano hwepfungwa uye hwepamoyo, kufamba pahutano uye basa kana chikoro, uye kugadzirisa hutachiona hutsva.

Pamusoro pezvo, chirongwa ichi chinopa hutano uye zvinyorwa zvemukati zvakaongororwa neveHealthline nyanzvi dzezvekurapa dzinosanganisira ruzivo nezvekurapwa, zviedzo zvemakiriniki, uye neazvino IBD tsvagiridzo, pamwe nekuzvichengeta uye ruzivo rwehutano hwepfungwa uye nyaya dzevamwe kubva kune vamwe vanogara neBD.

Kelley achagamuchira maviri ehupenyu mhenyu muzvikamu zvakasiyana zveapp, kwaanozoisa mibvunzo yevatori vechikamu kuti vapindure uye kupindura mibvunzo yevashandisi.

"Zviri nyore kwazvo kuva nepfungwa dzakakundwa patinoonekwa kuti tine chirwere chisingaperi," anodaro Kelley. "Tariro yangu huru kuratidza vanhu kuti hupenyu hunogona kungoshamisa uye kuti vanogona kusvika pazviroto zvavo uye nezvimwe, kunyangwe vari kurarama nechirwere chisingaperi senge IBD."

Cathy Cassata munyori akazvimiririra uyo anonyanya kugadzirisa nyaya dzakakomberedza hutano, hutano hwepfungwa, uye hunhu hwevanhu. Ane hunyanzvi hwekunyora nemanzwiro uye nekubatana nevaverengi nenzira inonzwisisika uye inobata. Verenga zvimwe zvebasa rake pano.