Ndakanga Ndichitya Kuedza Mafambiro Ekushandisa - uye Ndakafukura Yangu Ndoga Kukwanisa mune Maitiro

Zvemukati

• Nekudaro, ndiri kuzvipa mvumo yekuyedza zvekubatsira zvekubatsira ndisina zvangu kutonga - {textend} izvo zviri kundigonesa kuti ndisatarise nezve chero ani zvake, futi.
• Ndakakwira Alinker, yaive yakanyanya kundikurira, saka ndakaisa mamwe matinji ndokurova mugwagwa - {textend} ndichibva ndadanana nebhasikoro rekufamba riri $ 2,000.
• Ndiri muwiricheya, ndainzwa kunge ndaive ndoda kukwidziridza "hurema" hwangu kunyika, ndichiuisa kunze uko kuti munhu wese aone uye kutonga.

"Uchazoguma wave pawiricheya here?"

Dai ndaive nedhora nguva dzese pandakanzwa mumwe munhu achiti kubvira yangu multiple sclerosis (MS) kuongororwa makore gumi nematatu apfuura, ndinenge ndine mari yakakwana yekutenga Alinker. Zvimwe pane izvo gare gare.

Kunyangwe makore gumi nematatu ehumwe humbowo kubva mukuziva vanhu vazhinji vanogara neMS vasingashandise mawiricheya, ruzhinji rwevanhu rwunogara rwunoratidzika kunge rwunofunga kuti ndipo panotungamira rwendo rwese rweMS.

Uye izwi rekuti "kuguma" muwiricheya rakaderera pane rakanaka, handiti? Kufanana nenzira imwecheteyo iwe "yaunopedzisira" uchiita mabasa paSvondo masikati, kana kuti iwe "unopedzisira" sei rakaputika vhiri mushure mekurova pothole.

Yikes, murume. Hazvishamise kuti vanhu vane MS, seni, vanorarama hupenyu hwedu nekutya uku kwakaputirwa mukuzvidzwa kwakazara nekutonga kana zvasvika pane pfungwa yekuda chishandiso chekufamba.

Asi ini ndoti sikuruwa izvo.

Ini handidi parizvino mudziyo wekufambisa. Makumbo angu anoshanda mushe uye achiri akasimba akasimba, asi ini ndaona kuti, kana ndikashandisa rimwe, rine simba rakakura pakuenda kwandinogona kuenda kana kuti ndichaita nguva yakareba sei kuita chero zvandiri kuita.

Zvandiita kuti nditange kufunga nezve mafambiro ekushandisa, kunyangwe ichinzwa icky - {textend} rinova izwi resainzi rechimwe chinhu chakadzidziswa nevevanhu kutya nekunyara nazvo.

"Ick" ndiyo yandinonzwa kana ndikafunga nezvekuti kuzvikoshesa kwangu kungakanganiswa sei kana ndikatanga kushandisa mudziyo wekufambisa. Ipapo zvinowedzerwa kubva mukuzvipa mhosva kwandinako kwekufunga kunyange kufunga kwakadai.

Zvinonyadzisa kuti kunyangwe semunhu anorwira kodzero dzevakaremara, handikwanise kugara ndichitiza ruvengo rwakadzika midzi kuvanhu vane hurema hwepanyama.

Nekudaro, ndiri kuzvipa mvumo yekuyedza zvekubatsira zvekubatsira ndisina zvangu kutonga - {textend} izvo zviri kundigonesa kuti ndisatarise nezve chero ani zvake, futi.

Icho chiitiko cheichi chinoshamisa chiitiko apo iwe waunobata mune icho chinhu chaungangade mune ramangwana, kungoona kuti zvinonzwa sei iwe uchine sarudzo.

Izvo zvinondiunza kune iyo Alinker. Kana iwe wanga uchichengeta kumusoro paMS nhau, iwe unoziva parizvino kuti Selma Blair ane MS uye ari beboppin 'kutenderedza guta pane Alinker, iri bhasikoro rekufamba rinoshandiswa panzvimbo pewiricheya kana kufamba kune avo vachiri kushandiswa kwakazara kwemakumbo avo.

Izvo zvizere shanduko kana zvasvika kune zvekufambisa zvinobatsira. Iyo inokuisa iwe pamwero weziso uye inopa rutsigiro kuti uchengetedze yako pachako huremu kubva patsoka dzako nemakumbo. Ini ndaida chaizvo kuyedza imwe, asi vana ava havatengeswe muzvitoro. Saka, ndakataurirana naAlinker ndikabvunza kuti ndaigona sei kuyedza imwe.

Uye haungazive here, paive nemukadzi anogara maminetsi gumi kubva pandiri akazvipira kunditorera yake kwevhiki mbiri. Ndatenda, Universe, nekugadzira chaizvo zvandaida kuti zviitike, zviitike.

Ndakakwira Alinker, yaive yakanyanya kundikurira, saka ndakaisa mamwe matinji ndokurova mugwagwa - {textend} ndichibva ndadanana nebhasikoro rekufamba riri $ 2,000.

Ini nemurume wangu tinoda kutora kufamba husiku, asi zvinoenderana nezuva randava naro, dzimwe nguva kufamba kwedu kupfupika kupfuura zvandaizoda kuti vave. Pandakanga ndiine Alinker, makumbo angu akaneta akange asisiri nemesis, uye ndaigona kuramba ndichifamba naye kwenguva yakareba sezvataida kufamba.

Yangu Alinker kuyedza yakandiita kuti ndifunge: Ndekupi kumwe muhupenyu hwangu kwandingashandise rubatsiro rwekufambisa runoita kuti ndikwanise kuita zvinhu zvirinani, kunyangwe ndichigona kushandisa hunyanzvi makumbo angu nguva dzese?

Semumwe munhu parizvino anotsemura mutsetse pakati pevakagwinya nevakaremara, ndinopedza nguva yakawanda ndichifunga kuti ndepapi pandingangoda rutsigiro rwemuviri - {textend} uye rusarura nyadzi dutu rinotevera kusiri kure kumashure. Iyo rondedzero ndinoziva kuti ini ndinofanirwa kupokana, asi hazvisi nyore munzanga yatove inogona kuve neruvengo kuvanhu vakaremara.

Nekudaro, ndakafunga kushandira pakuzvigamuchira pamberi ichi chinova chikamu chechigarire chehupenyu hwangu. Uye izvo zvinoreva kuve anodisa kusagadzikana sezvo ini ndichiyedza zvekufambisa zvinobatsira, nepo zvakare ndichinzwisisa ropafadzo yandiinayo mune ino mamiriro.

Nzvimbo inotevera yandakayedza yaive panhandare yendege. Ndakazvipa mvumo yekushandisa wiricheya kutakura kuenda kugedhi rangu, yaive kumagumo epasi, aka iri iro ghedhi rekure kubva kuchengetedzeka. Ini munguva pfupi yapfuura ndakaona shamwari ichiita izvi, uye chiri chinhu chakatendeseka chisina kumbopfuura nepfungwa dzangu.

Zvisinei, kufamba kwenguva refu uku kunowanzoita kuti ndive ndisina chinhu nenguva yandinosvika kugedhi rangu, uyezve ndinofanira kufamba uye kuzviita zvakare zvakare mumazuva mashoma kuti ndidzoke kumba. Kufamba kunonetesa sezvazviri, saka kana kushandisa wiricheya kunogona kubatsira, wadii kuzviedza?

Saka ndakadaro. Uye zvakabatsira. Asi ini ndakapotsa ndazvitaura pachangu ndichienda kuairport uye pandanga ndakamirira kuti vanditore.

Ndiri muwiricheya, ndainzwa kunge ndaive ndoda kukwidziridza "hurema" hwangu kunyika, ndichiuisa kunze uko kuti munhu wese aone uye kutonga.

Rudzi rwakaita senge iwe paunopaka munzvimbo yakaremara uye wechipiri iwe wobuda mumotokari yako, unonzwa sekunge unofanira kutanga kukamhina kana chimwe chinhu kukuratidza chaizvo ita vanoda nzvimbo iyoyo.

Panzvimbo pekuda gumbo rakatyoka pandiri, ndakayeuka kuti ndanga ndichiyedza izvi. Uku ndiko kwanga kuri kusarudza kwangu. Uye pakarepo ndakanzwa kutonga kwandakanga ndaratidza mumusoro mangu kutanga kusimudza.

Zviri nyore kufunga nezvekushandisa mudziyo wekufambisa sekupa mukati, kana kutorega. Izvi zvinongoitika nekuti isu takadzidziswa kuti chero chinhu kunze kwemakumbo ako maviri "chidiki pane," hachina kunaka. Uye kuti iyo nguva yaunotsvaga rutsigiro, iwe zvakare unoratidza kushaya simba.

Saka, ngatitorei izvozvo shure. Ngatibatei mumidziyo yekufambisa, kunyangwe isu tisingavade mazuva ese.

Ndichine makore akati wandei kumberi kwangu ndisati ndanyatsoda kufunga zvekugara ndichishandisa mudziyo wekufambisa. Asi mushure mekuyedza mashoma, ndakaona kuti haufanire kutadza kuzadza makumbo ako kuti uwane anobatsira. Uye izvo zvaive nesimba kwandiri.

Jackie Zimmerman inyanzvi yekushambadzira yedhijitari inotarisa kune isingabatsiri uye nemasangano ane chekuita nezvehutano. Kubudikidza nebasa pawebhusaiti yake, anotarisira kubatana nemasangano makuru uye kukurudzira varwere. Akatanga kunyora nezvekurarama neakawanda sclerosis uye chirwere chinokanganisa ura nguva pfupi mushure mekuonekwa kwake senzira yekubatana nevamwe. Jackie anga achishanda mukutsigira kwemakore gumi nemaviri uye anga aine rukudzo rwekumiririra nharaunda dzeMS neIBD kumisangano yakasiyana siyana, hurukuro dzekutaura, uye nhaurirano dzemapaneru.