Munyori: Randy Alexander
Zuva Rekusika: 4 Kubvumbi 2021
Gadziridza Zuva: 22 Mbudzi 2024
Anonim
SKR 1.4 - A4988/DRV8825 configuration
Vhidhiyo: SKR 1.4 - A4988/DRV8825 configuration

Zvemukati

Mhedziso

Mushure me multiple sclerosis (MS) kuongororwa, unogona kuzviwana iwe uchitsvaga rairo kubva kune vanhu vari kupfuura nezviitiko zvakafanana newe. Chipatara chako chemunharaunda chinogona kukuzivisa iwe kuboka rekutsigira. Kana, pamwe iwe unoziva shamwari kana hama iyo yakaonekwa iine MS.

Kana iwe uchida nzanga yakafara, unogona kutendeukira kune internet uye akasiyana maforamu uye mapoka ekutsigira anowanikwa kuburikidza nemasangano eMMS nemapoka evarwere.

Izvi zviwanikwa zvinogona kuve nzvimbo yakanaka kutanga nemibvunzo. Iwe unogona zvakare kuverenga nyaya kubva kune vamwe vane MS uye nekutsvagisa zvese zvechirwere, kubva pakuongororwa uye kurapwa kuti utangezve uye kufambira mberi.

Kana iwe ukazviwana iwe uchitsvaga rutsigiro, aya masere maforamu eMS inzvimbo yakanaka yekutanga.

MS Kubatanidza

Kana iwe uchangobva kuongororwa uine MS, unogona kubatana nevanhu vari kurarama nechirwere paMS Connection. Ikoko, iwe unowana zvakare vanhu vakadzidziswa kupindura mibvunzo yako. Aya maratidziro ekutsigira vezera rako anogona kunge ari zviwanikwa zvihombe mushure mekuongororwa kwako.


Zvikamu zvidiki muMS Connection, seNewly Diagnosed Group, zvakagadzirirwa kubatanidza vanhu vari kutsvaga rutsigiro kana ruzivo nezvezvimwe zvinhu zvine chekuita nechirwere ichi. Kana iwe uine mudiwa ari kukubatsira kana kupa rubatsiro, vanogona kuwana iyo Carepartner Tsigiro Boka rinobatsira uye rinodzidzisa.

Kuti uwane mapeji eboka uye zviitiko, iwe unofanirwa kugadzira account neMS Connection. Iwo maforamu ari ega uye iwe unofanirwa kupinda kuti uone.

MSWorld

MSWorld yakatanga muna 1996 seboka revanhu vatanhatu mukamuri yekutaura. Nhasi, saiti inoitiswa nevanozvipira uye inoshumira vanopfuura mazana maviri nemakumi maviri ezviuru zvevanhu vane MS kutenderera pasirese.

Pamusoro pemakamuri ekukurukurirana uye mameseji mabhodhi, MSWorld inopa nzvimbo yehutano uye nzvimbo yekugadzira uko iwe kwaunogona kugovana zvinhu zvawakagadzira uye kuwana matipi ekurarama zvakanaka. Iwe unogona zvakare kushandisa saiti rondedzero yezve zviwanikwa kutsvaga ruzivo pane zvinyorwa kubva kumushonga kune zvinoshandura zvinobatsira.

MyMSTeam

MyMSTeam isocial network kune vanhu vane MS. Iwe unogona kubvunza mibvunzo muchikamu chavo cheQ & A, verenga zvinyorwa, uye uwane ruzivo kubva kune vamwe vanhu vari kurarama nechirwere. Iwe unogona zvakare kuwana vamwe padhuze newe vari kugara neMMS uye ona iwo ezuva nezuva-ezuva matsva avanotumira.


VarwereSakaMe

Iyo PatientsLikeMe saiti chishandiso chevanhu vane akawanda mamiriro ekurapa uye nenyaya dzehutano.

Iyo MS chiteshi yakagadzirirwa kunyanya kune vanhu vane MS kuti vadzidze kubva kune mumwe nemumwe uye nekuvandudza hukuru manejimendi manejimendi. Vanopfuura makumi manomwe ezviuru nhengo dzeboka iri. Iwe unogona kusefa kuburikidza nemapoka akatsaurirwa kune mhando yeMS, zera, uye kunyangwe zviratidzo.

Iyi ndiyo MS

Kune chikamu chikuru, mabhodhi ehurukuro ekare akapa nzira kunetiweki dzemagariro. Nekudaro, bhodhi rekukurukurirana Iyi Iyi MS inoramba ichishanda zvakanyanya uye ichiita mukati menzanga yeMS.

Zvikamu zvakapihwa kurapwa uye hupenyu zvinokutendera iwe kubvunza mibvunzo uye kupindura kune vamwe. Kana iwe uchinzwa nezve kurapwa kutsva kana kugona kuitika, unogona kuwana tambo mukati meiyi foramu iyo ichakubatsira iwe kunzwisisa nhau.

Facebook mapeji

Masangano mazhinji nemapoka enharaunda anotambira ega mapoka eMS Facebook. Mazhinji akavharwa kana akavanzika, uye iwe unofanirwa kukumbira kujoina uye ugamuchire mvumo yekupindura uye kuona zvimwe zvakatumirwa.


Iri boka reruzhinji, iro rinotungamirwa neMultiple Sclerosis Foundation, rinoshanda sedare revanhu rekubvunza mibvunzo uye kutaura nyaya kunharaunda yenhengo dzinosvika makumi matatu. Admins eboka anobatsira zvine mwero zvinyorwa. Ivo zvakare vanogovana mavhidhiyo, vanopa ruzivo rutsva, uye vanotumira misoro yekukurukurirana.

Shift MS

ShiftMS ine chinangwa chekudzora kusurukirwa vanhu vazhinji vane MS vanonzwa. Iyi nhandare ine hupenyu inobatsira iyo nhengo dzayo kutsvaga ruzivo, marapirwo ekurapa, uye kuita sarudzo dzekugadzirisa mamiriro acho kuburikidza nemavhidhiyo nemaforamu.

Kana iwe uine mubvunzo, iwe unogona kutumira kune vanopfuura zviuru makumi maviri nhengo. Iwe unogona zvakare kupururudza kuburikidza nemhando dzakasiyana dzenyaya dzakatotaurwa nezvadzo. Mazhinji anogarogadziridzwa nenhengo dzenharaunda yeShiftMS.

Tora woenda nazvo

Hazvisi zvisizvo kunzwa wega uri mushure mekugamuchira kuongororwa kweMS. Kune zviuru zvevanhu pamhepo zvaunokwanisa kubatana navo vari kusangana nezvinhu zvakafanana newe uye kugovana nyaya dzavo nemazano. Bhukumaka aya maforamu kuti iwe ugone kudzokera kwavari kana iwe uri mukuda rutsigiro. Rangarira kugara uchikurukura chero chinhu chaunoverenga online nachiremba wako usati waedza.

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