Izvo Zvinhu Zvisinganzwisisike Ini Zvandaifunga Nezve Psoriasis Ndisati Ndawana Chokwadi

Zvemukati

• Ndakafunga kuti chaingova chinhu cheganda
• Ndakafunga kuti zvaizoenda
• Ini ndaifunga kuti kwaingova nemhando imwe chete ye psoriasis
• Ndakafunga kuti paive nechinyorwa chimwe chete chevose
• Kutora

Kunyangwe hazvo gogo vangu vaine psoriasis, ini ndakakurira nekunzwisisa kushoma kweizvo chaizvo zvaive. Handikwanise kumurangarira aine murazvo pandakanga ndiri mudiki. Muchokwadi, akambotaura kuti mushure merwendo rwekuenda kuAlaska mune makumi mashanu, yake psoriasis haina kuzombobudazve.

Kuziva izvo zvandinoziva iye zvino nezve psoriasis, chinhu chinoshamisa chakavanzika. Uye rimwe zuva ndinotarisira kushanyira Alaska kuti ndizvizarurire ndega!

Kuzviongorora kwangu kwakauya muchirimo cha1998 pandaive nemakore gumi nemashanu chete. Kare kumashure, internet yaireva kufonera kusvika kuAOL uye kutumira mameseji neshamwari dzangu se "JBuBBLeS13." Yakanga isiri nzvimbo yet kusangana nevamwe vanhu vanogara ne psoriasis. Uye ini zvechokwadi ndakanga ndisingabvumirwe kusangana nevasingazive pa internet.

Iniwo ndakanga ndisiri kushandisa internet kuita ongororo yakazvimirira uye kudzidza nezve mamiriro angu. Ruzivo rwangu rwe psoriasis rwakaganhurirwa nekushanyirwa kwenguva pfupi kwechiremba uye mapepa mumakamuri ekumirira. Kushaya kwangu ruzivo kwakandisiya ndine dzimwe pfungwa dzinonakidza nezve psoriasis uye "kuti yakashanda sei."

Ndakafunga kuti chaingova chinhu cheganda

Pakutanga, ini handina kufunga nezve psoriasis sechinhu chero chipi zvacho kunze kweganda dzvuku, rinonzwika iro raindipa makwapa muviri wese. Sarudzo dzemishonga dzandakapihwa dzaingobata chitarisiko chekunze, saka aive makore mashoma ndisati ndambonzwa izwi rekuti "autoimmune chirwere" zvine chekuita ne psoriasis.

Kunzwisisa kuti psoriasis yakatanga kubva mukati kwakachinja maitiro andaibata kurapwa kwangu uye kufunga nezve chirwere.

Iye zvino ndave neshungu dzekurapa psoriasis kuburikidza nehutano hwakazara hunorwisa mamiriro kubva kumativi ese: kubva mukati nekunze, uye nerubatsiro rwakawedzerwa rwekusimbiswa kwemweya. Haisi chete chinhu chekuzora. Pane chimwe chinhu chiri kuitika mukati memuviri wako uye zvitsvuku zvitsvuku ingori imwe yezviratidzo zve psoriasis.

Ndakafunga kuti zvaizoenda

Pamwe nekuda kwechitarisiko chayo, ndakafunga kuti psoriasis yakanga yakaita sechivava. Ndingadai ndisina kugadzikana kwemavhiki mashoma, ndopfeka bhurugwa nemaoko marefu, uye ipapo mushonga waizopinda mukati uye ini ndaizoitwa. Zvachose.

Izwi rekuti flare rakanga risingareve chero chinhu, saka zvakatora nguva kubvuma kuti kubuda kwe psoriasis kunogona kunamatira kwenguva yakareba uye kuti icharamba ichiitika kwemakore.

Kunyangwe ini ndichichengeta zvangu zvinokonzeresa uye ndichivavarira kuzvibvisa pavari, uye ini zvakare ndinoedza nepandinogona napo kudzivirira kunetseka, dzimwe nguva marasha achiri kuitika. Kuputika kunogona kukonzerwa nezvinhu zvandisingakwanise kudzora, kunge mahormone angu achichinja mushure mekuzvarwa kwevanasikana vangu. Ini ndinogona zvakare kuwana kupisa kana ndikarwara nefuruu.

Ini ndaifunga kuti kwaingova nemhando imwe chete ye psoriasis

Akanga ari makore akati wandei ndisati ndadzidza kuti paive nemhando inopfuura imwechete ye psoriasis.

Ndakaona pandakaenda kumusangano weNational Psoriasis Foundation uye mumwe munhu akandibvunza kuti ndirini rudzii. Pakutanga, ndakashamisika kuti munhu wandisingazive aibvunza yeropa rangu. Maitiro angu ekutanga anofanira kunge akaratidzira kumeso kwangu nekuti akatsanangura zvinotapira kuti kune mhando shanu dzakasiyana dze psoriasis uye kuti haina kufanana kune wese munhu. Izvo zvinoitika, ini ndine plaque uye guttate.

Ndakafunga kuti paive nechinyorwa chimwe chete chevose

Ndisati ndaongororwa, ndaiwanzo sarudza nzira dzekurapa - kazhinji dzinowanikwa mune remvura kana piritsi fomu. Zvinogona kutaridzika kunge zvisina musoro, asi ini ndanga ndakagwinya kusvika ipapo. Kare kumashure, zvangu zvakajairika nzendo kuna chiremba zvaive zvakaganhurirwa kune gore rega-rekutarisa uye zvezuva nezuva zvehutano hwehudiki. Kuwana mabara kwakachengeterwa majekiseni.

Kubva zvandakaziva, ndakarapa psoriasis yangu nemakirimu, gels, furo, mafuta, mapiritsi, UV mwenje, uye biologic pfuti. Ndiwo angori marudzi, asi ini ndakaedzawo akawanda mabhureki mukati merudzi rumwe nerumwe. Ndakadzidza kuti hazvisi zvese zvinoshanda kumunhu wese uye chirwere ichi chakasiyana kune mumwe nemumwe wedu. Zvinogona kutora mwedzi uye kunyange makore kuti uwane chirongwa chekurapa chinokushandira. Kunyangwe zvikakushandira, zvinogona kungoshanda kwenguva yakati wandei uye ipapo uchafanira kutsvaga imwe nzira yekurapa.

Kutora

Kutora nguva yekutsvaga mamiriro uye kuwana chokwadi nezve psoriasis kwaita mutsauko mukuru kwandiri. Yakajekesa fungidziro dzangu dzekutanga uye ikandibatsira kunzwisisa zviri kuitika mumuviri wangu. Kunyangwe hazvo ndanga ndichigara ne psoriasis kweanopfuura makore makumi maviri, zvinoshamisa kuti ndadzidza zvakadii uye ndichiri kudzidza nezvechirwere ichi.

Joni Kazantzis ndiye musiki uye blogger ye justagirlwithspots.com, inohwina mubairo psoriasis blog yakatsaurirwa kuumba ruzivo, kudzidzisa nezvechirwere ichi, uye kugovana nyaya dzega dzega rake 19+ rwendo rwegore neporiyo. Chinangwa chake ndechekugadzira pfungwa yenharaunda uye kugovana ruzivo runogona kubatsira vaverengi vake kurarama nezvinetso zvezuva nezuva zvekurarama ne psoriasis. Iye anotenda kuti neruzivo rwakawanda sezvinobvira, vanhu vane psoriasis vanogona kupihwa simba rekurarama hupenyu hwavo hwakanakisa uye voita sarudzo dzakakodzera dzekurapa kwehupenyu hwavo.