Spinal Muscular Atrophy: Iyo Yakanyanya Pamhepo Zviwanikwa

Zvemukati

• Iyo Muscular Dystrophy Association
• Poresa SMA
• Gwendolyn Strong Nheyo
• SMA Ngirozi Charity
• Masangano ari kunze kweUnited States

Spinal muscular atrophy (SMA) inokanganisa zvese zvehupenyu hwezuva nezuva. Saka zvakakosha kuti mukwanise kukurukura matambudziko nekutsvaga mazano.

Kujoinha boka rekutsigira reSMA kunogona kuve nemhedzisiro yakanaka kuhupenyu hwako hwepamoyo. Icho chinhu chekufunga nezvevabereki, nhengo dzemhuri, kana vanhu vanogara neSMA.

Heano mamwe emhando yepamusoro zviwanikwa zvepamhepo zveSMA rutsigiro:

Iyo Muscular Dystrophy Association

Iyo Muscular Dystrophy Association (MDA) inotungamira mukutsigira weSMA tsvagiridzo. Iyo MDA inopawo mapoka ekutsigira, mamwe akanangana neSMA. Zvimwe ndezvekushungurudzika kwemhasuru kazhinji. Ivo vanokurukura kugadzirisa kushungurudzika, shanduko, kana kurapwa. MDA zvakare ine mapoka ekutsigira evabereki vevana vane mhasuru kusagadzikana.

Kuti uwane boka rekutsigira, bata vekwaunogara veMDC. Tungamira kune iro MDA peji reboka rekutsigira, uye nyora yako ZIP kodhi mune "Tsvaga MDA Munharaunda Yako" locator chishandiso kuruboshwe-kuruboshwe rwepeji.

Mitsva yekutsvaga inosanganisira nhamba yefoni nekero yehofisi yako yeMDC yemuno. Iwe unogona zvakare kuwana yemunharaunda yekutarisira nzvimbo uye zviri kuuya zviitiko munzvimbo yako.

Rumwe rutsigiro rwepamhepo runowanikwa kuburikidza nesangano renharaunda enhau nharaunda. Tsvaga ivo paFacebook kana vatevere pa Twitter.

Poresa SMA

Poresa SMA isangano risingabatsiri rekutsigira. Vanobata musangano mukuru weSMA pasirese gore rega. Musangano uyu unounza pamwechete vaongorori, vashandi vezvehutano, vanhu vane chirwere ichi, nemhuri dzavo.

Webhusaiti yavo ine ruzivo rwakawanda nezveSMA uye kuwana kumasevhisi ekutsigira. Ivo vanotopa vanhu vachangobva kuongororwa vane mapakeji ekuchengetedza uye mapakeji eruzivo.

Ikozvino pane makumi matatu nemana makumi matatu nemana makumi mana nemana makumi mana nemana makumi mana nematanhatu ekuzvipira anotungamirwa Cure SMA zvitsauko muUnited States Ruzivo rwekubata runowanikwa pane Cure SMA peji zvitsauko.

Chitsauko chimwe nechimwe chinoronga zviitiko gore rega. Zviitiko zvemuno inzira huru yekusangana nevamwe vanobatwa neSMA.

Bata chitsauko chako chemuno kana kushanyira iyo Cure SMA peji yechiitiko kuti utsvage zviitiko mudunhu rako.

Iwe unogona zvakare kubatana nevamwe kuburikidza neCure SMA's Facebook peji.

Gwendolyn Strong Nheyo

Iyo Gwendolyn Strong Foundation (GSF) isangano risingabatsiri kusimudzira ruzivo rwepasirese rweSMA. Iwe unogona kubatana nevamwe kutsigirwa kuburikidza nevo Facebook peji kana Instagram. Iwe unogona zvakare kujoina yavo yekutumira runyorwa rwekuvandudza.

Imwe yemaitiro avo chirongwa cheProjekti Mariposa. Kubudikidza nechirongwa, ivo vakakwanisa kupa zana maPads kune vanhu vane SMA. Iwo maPads anobatsira vanhu ava nekutaurirana, dzidzo, uye kukurudzira rusununguko.

Nyorera kuchiteshi cheYGF cheYouTube chekuvandudzwa kweprojekiti uye kuona mavhidhiyo evanhu vane SMA vachitaura nyaya yavo.

Iyo webhusaiti yeGSF zvakare ine bhurogu kubatsira vanhu vanogara neSMA uye mhuri dzavo kuti vagare vachiziva zveSMA tsvagurudzo. Vaverengi vanogona zvakare kudzidza nezve kunetseka uye kubudirira kweavo vanogara neSMA.

SMA Ngirozi Charity

SMA Angels Charity inoitirwa kuunganidza mari yekutsvaga uye kugadzirisa kunaka kwekuchengetwa kwevanhu vane SMA. Sangano rinotungamirirwa nevanozvipira. Gore rega rega, ivo vanobata bhora kusimudza mari yekutsvaga kweSMA.

Masangano ari kunze kweUnited States

Iyo SMA Foundation ine rondedzero yemasangano eSMA ari kutenderera pasirese. Shandisa iri runyorwa kuti uwane sangano reSMA munyika yako kana uchigara kunze kweUnited States.

Shanyira webhusaiti yavo kana kufonera rumwe ruzivo nezve mapoka ekutsigira.