Kumhanya Kwakabatsira Mukadzi Uyu Kushingirira Mushure mekunge Aonekwa Aine Chirwere Chetsandanyama Chisingawanzoitiki

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Iko kugona kwekufamba chinhu chaunogona kunge usingafungidzire chichirerutsa, uye hapana anoziva izvo kupfuura mumhanyi Sara Hosey. Uyu 32-gore-okuberekwa anobva kuIrving, TX, akawanikwa achangobatwa aine myasthenia gravis (MG), chirwere chisingawanzoitika chetsinga chinoonekwa nekushaya simba uye nekukurumidza kuneta kwemhasuru dzaunodzora nemuviri wese.

Hosey anga achimhanya kubva paakange ari kukoreji, achinyatsoita chikamu mu5Ks uye hafu marathons. Kumhanya kwakava chikamu chehupenyu hwake, uye haana kumbofunga kaviri nezve kukwenya pese paanoda. Zuva rinonetsa kubasa? Hapana chinhu chekumhanya-mhanya chakatadza kurapa. Kutadza kurara? Nguva refu yaizomubatsira kumuneta. (Heano zvikonzero gumi nembiri zvinotsigirwa nesainzi zvinomhanya zvakakunakira iwe.)

Zvino rimwe zuva muchirimo chegore rapfuura, asingatarisiri akatanga kutamba achidya kudya kwemanheru nemhuri yake. "Ini ndanga ndichinzwa zvakanyanya kuneta kwemavhiki apfuura, asi ini ndakangozvikachira kuti ndishande nestress," anodaro Hosey. "Zvino humwe husiku ndakangokwanisa kutsenga chikafu changu ndokutanga kukosora mazwi angu. Izvo zvakaitika katatu pamasvondo maviri ndisati ndafunga kuenda kuchipatara."

Mushure mekuita bvunzo dzakatevedzana, kusanganisira CT uye MRI, vanachiremba havasati vakwanisa kuziva kuti chii chakashata. “Ndakanzwa ndisina simba uye ndisingachadzoreki, saka ndakatendeukira kuchinhu chimwe chaigara chakandisimbisa: kumhanya,” anodaro.

Akafunga kusaina otanga kudzidzira United Airlines New York City Half Marathon, mujaho wake wechina padaro. "Ini ndaingoda kunzwa sekuti ndine simba pane chimwe chinhu, uye ndaiziva kuti kumhanya kwaizondibatsira kuita izvozvo," anodaro Hosey. (Wanga uchiziva here kuti "mumhanyi wepamusoro" ichokwadi chaicho, chinoratidzwa nesainzi chinhu?)

Kwemwedzi mipfumbamwe yakatevera, zviratidzo zvake zvakapfuurira, izvo zvakaita kuti kurovedzwa kuome kupfuura nakare kose. “Muviri wangu hauna kumbonzwa sekunge ndiri kuvaka chero kutsungirira,” anodaro Hosey. "Ndagara ndichishandisa Hal Higdon Novice 1 kudzidzisa uye ndakaitira iyi zvakare. Asi mhasuru dzangu hadzina kuzombova nani sezvadzaimboita. Ndakatadza kuita maira panguva yekudzidzira kumhanya ndisati ndamira. Ini ko kudzidziswa kwese kwakamhanya (kusara kwevashoma) uye kutsungirira kwangu hakuna kuzomboita nani. "

Panguva iyi, vanachiremba havasati vakwanisa kuona kuti chii chainetsa paari. "Ndakaita ongororo yakawanda ini, ndikawona MG online," anodaro Hosey. "Ndakaziva zvakawanda zvezviratidzo uye ndakafunga kubvunza chiremba wangu kuti aongororwe ropa." (Nechekuita: Kutsvaga Kwehutano Kutsva kweGoogle Kuchakubatsira Kuti Uwane Ruzivo Rwezvokurapa Pamhepo)

Zvino, muna Kukadzi wegore rino, mavhiki mashoma asati agadzirirwa kuhwina mujaho wemujaho, vanachiremba vakasimbisa fungidziro dzake. Hosey akaita, muchokwadi, ane MG-chirwere chisati chave nemushonga. “Kutaura chokwadi, kwakandizorodza,” anodaro. "Ndakanga ndisisiri kugara mukukahadzika nekutya zvakanyanya."

Vanachiremba vakaudza kuti nekuda kwehutano hwake hwakasimba, chirwere ichi hachina kumukuvadza nekukurumidza sezvachingaita kune mumwe munhu aive asina kugwinya. Zvakadaro, "ndanga ndisina chokwadi kuti kuongororwa uku kwairevei kune ramangwana, saka ndanga ndakatsunga kuenderera nekudzidziswa kwangu uye kuita hafu kunyangwe zvodii," anodaro. (Ingo saina mujaho uye ndisingazive kuti ndotangira papi? Iyi hafu yekumhanya mhanya chirongwa chekudzidzisa chinofanira kubatsira.)

Hosey akaramba akatendeka kuvimbiso yaakaita kwaari uye akapedza hafu yemamarathon mu NYC vhiki rino rapfuura. "Kwaive kumhanya kwakaomarara kwandisati ndamboita," anodaro Hosey. "Pandakanga ndava kufemereka, mapapu angu airwadza uye ndakasvika patambo ndokuchema. Zvaiita sechinhu chikuru chandagona kuita sezvo muviri wangu wakanga uchishanda uchindirwisa. Kuvhiringidzika kwose kwaiita vanachiremba vairamba vachindinyorera mishonga isiri iyo kwakangobuda. "Ini ndaidada uye ndainzwa kurerukirwa kuti ndakwanisa kuzadzisa chinangwa changu asi manzwiro ese andanga ndakabata akabuda zvakare."

Nekuongororwa kuseri kwake, mibvunzo mizhinji ichiri kumirira Hosey. Chirwere ichi chinokanganisa sei kufamba kwake kwenguva refu? Parizvino, chinhu chimwe ndechechokwadi: kuwedzera kumhanya."Ini ndinogona kuenda pasi kuenda ku5Ks, asi ini ndicharamba ndichifamba zvakanyanya nepandinogona," anodaro. "Zviri nyore kutora zvishoma pane zvaunogona kuita kusvikira warasikirwa nazvo, ipapo unenge uine kukoshesa kutsva kwazvo."

Hosey anotarisira kuti nekugovana nyaya yake, anogona kusimudzira ruzivo nezveMG uye kukurudzira vanhu kuti varambe vachishingaira uye varambe vachifamba nekuti "hauzive zvinogona kuitika."

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