Chiremba Nhaurirano Nhungamiro: Chii Chaunobvunza Nezve PPMS

Zvemukati

• 1. Ndakawana sei PPMS?
• 2. PPMS yakasiyana sei nedzimwe mhando dzeMS?
• 3. Uchaongorora sei mamiriro angu?
• 4. Ndeapi chaizvo maronda muPPMS?
• 5. Zvinotora nguva yakareba sei kuongorora PPMS?
• 6. Kangani kandinoda kuongororwa?
• 7. Zviratidzo zvangu zvichawedzera here?
• 8. Ndeapi mishonga yauchapa?
• 9. Pane here dzimwe nzira dzokurapa dzandinogona kuedza?
• 10. Chii chandingaite kugadzirisa mamiriro angu?
• 11. Pane mushonga wePPMS here?

Kuongororwa kwekutanga kufambira mberi multiple sclerosis (PPMS) kunogona kukuvadza pakutanga. Mamiriro acho pachawo akaoma, uye kune zvakawanda zvisingazivikanwe zvinhu nekuda kwenzira iyo multiple sclerosis (MS) inoratidza zvakasiyana pakati pevanhu.

Izvo zvakati, iwe unogona kutora matanho izvozvi izvo zvinogona kukubatsira iwe kubata PPMS uchidzivirira matambudziko anogona kupinda munzira yehupenyu hwako hupenyu.

Nhanho yako yekutanga ndeyekuita hurukuro yakatendeseka nachiremba wako. Funga kuunza urwu runyorwa rwemibvunzo gumi neimwe newe kugadzwa kwako semutungamiri wePPMS wekukurukurirana.

1. Ndakawana sei PPMS?

Icho chaicho chikonzero chePPMS, uye ese mamwe mafomu eMMS, hazvizivikanwe. Vatsvagiri vanotenda kuti zvakatipoteredza uye genetics inogona kutora chinzvimbo mukuvandudzwa kweMS.

Zvakare, sekureva kweNational Institute of Neurological Disorders uye Stroke (NINDS), vangangoita zvikamu gumi neshanu kubva muzana zvevanhu vane MS vane nhengo yemhuri imwechete. Vanhu vanosvuta vanogonawo kuwana MS.

Chiremba wako anogona kunge asingakwanise kukuudza kuti wanyatsogadzira PPMS sei. Nekudaro, ivo vangangobvunza mibvunzo nezve yako wega uye yemhuri nhoroondo dzehutano kuti uwane mufananidzo uri nani pane zvese.

2. PPMS yakasiyana sei nedzimwe mhando dzeMS?

PPMS yakasiyana nenzira dzinoverengeka. Mamiriro acho:

• inokonzera kuremara nekukurumidza kupfuura mamwe mafomu eMMS
• inokonzera kushomeka kuderera kwese
• inogadzira maronda mashoma muuropi
• inokonzera mamwe maronda emuzongoza
• inowanzokanganisa vanhu vakuru mushure mehupenyu
• zvakanyanyisa kuoma kuongorora

3. Uchaongorora sei mamiriro angu?

PPMS inogona kuongororwa kana uine imwechete yeuropi lesion, angangoita maviri emusana musana maronda, kana yakakwira immunoglobulin G (IgG) index mune yako musana mvura.

Zvakare, kusiyana nemamwe mafomu eMMS, PPMS inogona kunge ichionekwa kana iwe uine zviratidzo zvinoramba zvichikura kweinenge gore pasina kuregererwa.

Mune fomu yekudzokerera-yekuregedza yeMS, panguva yekuwedzera (flare-ups), mwero wekuremara (zviratidzo) unowedzera, uyezve vanobva vaenda kana kugadzirisa zvishoma panguva yekuregererwa. PPMS inogona kunge iine nguva apo zviratidzo zvikasatowedzera, asi izvo zviratidzo hazvidzikire kumatanho epakutanga.

4. Ndeapi chaizvo maronda muPPMS?

Maronda, kana mabara, anowanikwa mune ese marudzi eMS. Izvi zvinonyanya kuitika pahuropi hwako, kunyange zvichikura zvakanyanya musana wako muPPMS.

Maronda anokura semhinduro yekuzvimba apo immune system yako painoparadza iyo yayo myelin. Myelin ndiyo inodzivirira sheath inotenderedza nerve fibers. Aya maronda anokura nekufamba kwenguva uye anoonekwa kuburikidza neMRI scans.

5. Zvinotora nguva yakareba sei kuongorora PPMS?

Dzimwe nguva kuongorora PPMS kunogona kutora makore maviri kana matatu pakureba pane kuongorora kudzokororazve MS (RRMS), maererano neNational Multiple Sclerosis Society. Izvi zvinokonzerwa nekuoma kwemamiriro acho.

Kana iwe uchangobva kugamuchira kuongororwa kwePPMS, zvinogona kunge kwakabva pamwedzi kana kunyangwe makore ekuyedza nekutevera.

Kana usati wagamuchira kuongororwa kwechimiro cheMS parizvino, ziva kuti zvinogona kutora nguva yakareba kuti uongorore. Izvi zvinodaro nekuti chiremba wako anozoda kutarisa kuburikidza nemaMRI mazhinji kuti aone mapatani pahuropi hwako uye musana.

6. Kangani kandinoda kuongororwa?

National Multiple Sclerosis Society inokurudzira MRI yegore pamwe nekuongororwa kwetsinga kamwechete pagore.

Izvi zvinobatsira kuona kana mamiriro ako ari kudzokedzana kana kufambira mberi. Pamusoro pezvo, MRIs dzinogona kubatsira chiremba wako kutara nzira yePPMS yako kuti vakwanise kurumbidza marapirwo akanaka. Kuziva kukura kwechirwere kunogona kubatsira kudzikamisa kutanga kwehurema.

Chiremba wako achapa zvakanangana nekutevera mazano. Iwe unogona zvakare kuda kuvashanyira kazhinji kana ukatanga kuona kuwedzera zviratidzo.

7. Zviratidzo zvangu zvichawedzera here?

Kutanga uye kufambira mberi kwezviratidzo muPPMS zvinowanzoitika nekukurumidza kupfuura mune mamwe marudzi eSMS. Naizvozvo, zviratidzo zvako zvinogona kusachinja sezvazvingaite mukudzokazve kwemhando dzechirwere asi zvichiramba zvichiwedzera kuwedzera.

Sezvo PPMS ichifambira mberi, pane njodzi yekuremara. Nekuda kwezvakawanda maronda pane yako musana, PPMS inogona kukonzera mamwe matambudziko ekufamba. Iwe unogona zvakare kusangana nekuwedzera kushushikana, kuneta, uye kugona kuita sarudzo.

8. Ndeapi mishonga yauchapa?

Muna 2017, Chikafu neDrug Administration (FDA) yakabvumidza ocrelizumab (Ocrevus), mushonga wekutanga unowanikwa mukurapa PPMS. Ichi chirwere-chinogadzirisa kurapwa chinotenderwawo kurapa RRMS.

Kutsvagisa kuri kuenderera mberi kutsvaga mishonga inozoderedza mhedzisiro mhedzisiro yePPMS.

9. Pane here dzimwe nzira dzokurapa dzandinogona kuedza?

Dzimwe nzira uye dzekuwedzera dzokurapa dzakashandiswa kune MS dzinosanganisira:

• yoga
• acupuncture
• mishonga yekuwedzera
• biofeedback
• aromatherapy
• tai chi

Kuchengetedza nedzimwe nzira dzokurapa kunetsekana. Kana iwe ukatora chero mishonga, mishonga yemakwenzi inokonzeresa kusangana. Iwe unofanirwa kungoedza yoga uye tai chi nemurairidzi akasimbiswa uyo anoziva nezveMS - nenzira iyi, ivo vanogona kukubatsira iwe kugadzirisa zvakachengeteka chero zvimiro sezvazvinodiwa.

Taura nachiremba wako usati waedza chero imwe nzira dzekurapa dzePPMS.

10. Chii chandingaite kugadzirisa mamiriro angu?

PPMS manejimendi inoenderana zvakanyanya ne:

• kugadziriswa
• rubatsiro rwekufamba
• kudya kunovaka muviri
• kugara uchirovedza muviri
• kutsigirwa mupfungwa

Pamusoro pekupa kurudziro munzvimbo idzi, chiremba wako anogona zvakare kukuendesa kune mamwe marudzi ehunyanzvi. Izvi zvinosanganisira varapi vemuviri kana vebasa, vezvekudya, uye vezvekurapa veboka.

11. Pane mushonga wePPMS here?

Parizvino, hapana mushonga wechero fomu yeMS - izvi zvinosanganisira PPMS. Chinangwa ipapo ndechekugadzirisa mamiriro ako ekudzivirira kuwedzera kwezviratidzo nekuremara.

Chiremba wako achakubatsira iwe kuona yakanakisa kosi yePPMS manejimendi. Usatya kuita zvinotevera-kugadzwa kana iwe uchinzwa sekunge iwe unoda mamwe matipi ekutungamira.