Zvinhu zvitanhatu zvandakadzidza mukati megore rangu rekutanga neMS

Zvemukati

• 1. MS haisi mhosva yemunhu
• 2. Ndiri akasimba kupfuura zvandakafunga
• 3. Kune rimwe divi, kusungunuka kwakanaka
• 4. Wese munhu inyanzvi
• 5. Kukosha kwerudzi
• 6. Hazvisi zvese zviri nezve MS
• Tora woenda nazvo

Makore gumi nemanomwe apfuura, ndakaongororwa chirwere che multiple sclerosis (MS). Kune chikamu chikuru, ndinonzwa senge ndakanaka pakuve neMS. Iri ibasa rakaoma uye mubhadharo uri lousy, asi ini ndinogadzirisa izvo zvinoda kutarisirwa. Ndinoenderera mberi nazvo, uye ndinogovana zvandinowana pane yangu blog, Kutsemura Pamhepo.

Ini ndaisave ndaigara ndiri shefu akadaro neMS, zvakadaro. Pandakatanga kuongororwa, ndakatya. Ini ndanga ndichangotanga muhupenyu, uye kuongororwa kwangu kwaiita sekunge ramangwana rangu rese rakaraswa.

Yekutanga-gore post-kuongororwa inogona kuve yeakaomesesa ehupenyu hwako. Ndakadzidza zvakawanda panguva iyoyo, uye newe uchazodaro.

Hezvino zvinhu zvitanhatu zvandakadzidza mugore rekutanga mushure mekuonekwa kwangu.

1. MS haisi mhosva yemunhu

Hunhu hwevanhu kuda kuziva kuti sei zvinhu zvichiitika. Hatigoni kuzvibatsira.

Chiratidzo changu chekutanga cheMS chaive chekubaya marwadzo emaziso ayo akazoonekwa se optic neuritis. Yakaonekwa vhiki mushure mekunge ndange ndapedza husiku hweHalloween ndichinwa waini yakawandisa nevasikana vangu, ndichikanda zvitsinga, uye tichiita zviitiko zveamateur.

Kwenguva yakareba, ndanga ndazvisimbisa kuti waini tsvuku nemadhimoni anga akakoka MS muhupenyu hwangu. Hatizive chaizvo chinokonzeresa MS, asi zvakachengeteka kutaura kuti hausi uroyi.

Iwe hauna kuwana MS kubva kunonoka kurara kana kusarova kurovedza muviri zvakakwana zvakakwana. Iwe hauna kuwana MS nekuti iwe unokanganwa kupuruzira kana kuti unodya zviwitsi zvekuseni. MS haisi mhedzisiro yechero tsika yakaipa yauri kuzvirova pamusoro. MS inoitika uye haisi mhosva yako.

2. Ndiri akasimba kupfuura zvandakafunga

Mushonga wekutanga wandakanyorerwa yaive jekiseni - jekiseni randaifanira kuzvipa. Pfungwa dzangu dzaingova kwete, kakawanda. Ndakatadza kufungidzira kuti ndaizokwanisa kumira majekiseni mazuva ese, ndoda kuzvipa ini.

Amai vangu vakandipa tsono dzangu dzemwedzi wekutanga. Asi rimwe zuva, ndakafunga kuti ndaida kuti rusununguko rwangu rudzoke.

Kupfura auto-injector mugumbo rangu kekutanga zvaityisa, asi ndakazviita. Uye nguva inotevera pandakazviita, zvaive nyore. Majekiseni angu akaramba achireruka, kudzamara ndichizvipa iyo tsono yakazopedzisira isisina basa.

3. Kune rimwe divi, kusungunuka kwakanaka

Kunyangwe pandakanga ndichitsvaga kuti ndinogona kuita zvinhu zvakaomarara, ini nguva nenguva ndaizviwana ndagumbuka pasi pabathroom, ndichichema maziso angu kunze. Ini ndinoisa yakawanda yekumanikidza pandiri kuisa pachiso chakashinga kune vamwe, asi zvakajairika kuti unetseke.

Izvo zvine hutano kuchema zvauri kupfuura nazvo. Asi kana iwe uchinetseka, ipfungwa yakanaka kukumbira rubatsiro. Taura nachiremba wako kuti ugamuchire mazano kune vashandi vehutano hwepfungwa vanogona kukubatsira.

4. Wese munhu inyanzvi

Mushure mekuongororwa kwangu, zvakangoerekana zvaita sekunge munhu wese akasarudzika uyo akadzidza kuti ndine MS ane chekutaura. Ivo vaindiudza pamusoro peshamwari yepedyo hanzvadzi yaamai vabati vaamai avo vaive neMS, asi vakaporeswa nechishamiso chikafu, zvekuwedzera zvekuwedzera, kana shanduko yemararamiro.

Iyo yenguva dzose isingakumbirwi kuraira yaive yakanangidzirwa-zvakanaka, asi isina kuzivikanwa. Rangarira, sarudzo dzako dzekurapa dziri pakati pako nachiremba wako. Kana zvichinzwika zvakanyanya kunaka kuti zvive zvechokwadi, pamwe ndizvo.

5. Kukosha kwerudzi

Mushure mekuongororwa kwangu, ndakasvika kune vanhu vaipfuura nemhando imwechete yezvinhu zvandaive panguva iyoyo. Izvi zvaive zvisati zvave nyore kuwana mapoka online, asi ini ndakakwanisa kubatana nevamwe seni kuburikidza neNational MS Society uye kuburikidza neshamwari dzakafanana. Ndakaumba zvisungo nevasikana vadiki vane MS vaive panguva imwechete yehupenyu seni, kuyedza kufunga zvinhu zvakaita sekufambidzana uye kutanga mabasa.

Makore gumi nemanomwe gare gare, ndichiri pedyo nevakadzi ava. Ndinoziva kuti ndinogona kufona kana kutumira mameseji chero nguva pandinoda kuburitsa kana kugovana ruzivo, uye ivo vanozozviwana nenzira isina mumwe munhu anogona. Kuonekwa kunokosha, uye nekubatsirana, unogona kuzvibatsira.

6. Hazvisi zvese zviri nezve MS

Kune mazuva apo ini ndinonzwa sekuti ini handisi kumbofunga nezve MS. Pamazuva ano, ndinofanira kuzviyeuchidza kuti ini ndiri kudarika kuongororwa kwangu - nzira yakawanda.

Kugadziridza kune yakasarudzika uye nzira nyowani yekuti iwe waifunga sei kuti hupenyu hwako hwaizotarisa kunogona kukurira, asi iwe uchiri iwe. MS idambudziko raunoda kubata naro, saka tarisa MS yako. Asi gara uchiyeuka kuti hausi wako MS.

Tora woenda nazvo

Pakati pegore rangu rekutanga neMS, ndakadzidza zvakawanda nezve zvazvinoreva kurarama nechirwere chisingaperi. Ndakadzidzawo zvakawanda nezvangu. Ini ndakasimba kupfuura zvandaimbofunga. Mumakore kubva pakuongororwa kwangu, ndakadzidza kuti MS inogona kuita kuti hupenyu huome, asi hupenyu hwakaoma haufanire kuve hupenyu hunosuruvarisa.

Ardra Shephard ndiye ane simba kuCanada blogger kuseri kweye mubairo-unokunda blog Kutsemura Pamhepo - irreverent insider scoop nezve hupenyu hwake ne multiple sclerosis. Ardra muchengeti wenyaya yeAMI yeterevhizheni akateedzana nezve kufambidzana uye kuremara, "Pane Chinhu Chaunofanira Kuziva," uye yakaverengerwa paSickboy Podcast. Ardra yakabatsira msconnection.org, Iwo Anesimba, xojane, Yahoo Lifestyle, nevamwe. Mu2019, aive mukurukuri wekutaura paMS Foundation yeCayman Islands.Mutevere pa Instagram, Facebook, kana hashtag #babeswithmobilityaids kuti ufuridzirwe nevanhu vanoshandira kushandura maonero ezvinoratidzika kurarama nehurema.