Leukemia Yangu Yakaporeswa, asi Ndichine Zviratidzo Zvisingaperi

Zvemukati

• Ndasvika sei pano
• Kutsvaga iyo chaiyo chitaridzi
• Zvandatarisana nazvo kubva pakurapwa
• 1. Peripheral neuropathy
• 2. Nyaya dzemeno
• 3. Kenza yerurimi
• 4. Graft-versus-host chirwere
• 5. Prednisone mhedzisiro
• Maitiro Andinoita
• 1. Ndinotaura
• 2. Ndinoita maekisesaizi mazuva ese
• 3. Ndinodzorera

Yangu yakaoma myeloid leukemia (AML) yakaporeswa zviri pamutemo makore matatu apfuura. Saka, apo oncologist yangu nguva pfupi yapfuura yakandiudza kuti ndaive nechirwere chisingaperi, pasina chikonzero chekutaura ndakashamiswa.

Ndakave nemabatiro akafanana pandakawana email ichindikoka kujoina boka rekutaura "kune avo vanorarama neacute myeloid leukemia" uye ndikaziva kuti yaive "yevarwere" vaive mukati nekunze kwekurapwa.

Ndasvika sei pano

Leukemia yakandibata pandakanga ndiri mumwe mutana ane makore makumi mana nemasere ekuberekwa. Amai vakarambana vane vana vatatu-vechikoro vana vanogara kumadokero kweMassachusetts, ini ndaive mutapi venhau pamwe chete nemhanyi anofarira uye mutambi wetenisi.

Pandaimhanya muPatrick Patrick's Road Race muHolyoke, Massachusetts muna 2003, ndakanzwa ndaneta zvisingaite. Asi ndakapedza zvakadaro. Ndakaenda kuna chiremba wangu mazuva mashoma gare gare, uye kuongororwa kweropa uye kupora kwemongo wemapfupa kwakaratidza kuti ndaive neAML.

Ndakagamuchira kurapwa kwekenza yeropa ine hasha kanokwana kana pakati pa2003 na2009. Ndakawana maround matatu echemotherapy kuDana-Farber / Brigham neWomen's Cancer Center muBoston. Uye mushure meizvozvo kwakauya stem cell yekuisa. Kune maviri makuru mhando dzekuisa, uye ini ndakawana ese ari maviri: autologous (uko masero emadzinde anobva kwauri) uye allogenic (uko masero emadzinde anouya kubva kune anopa).

Mushure mekudzokazve kaviri uye kutadza kubatika, chiremba wangu akapa chimwe chisingawanzo kuisirwa chechina nekemotherapy yakasimba uye mupi mutsva. Ndakagashira masero ane hutano hwakanaka musi waNdira 31, 2009. Mushure megore rekuzviparadzanisa - kudzikisira kusvibiswa kwangu neutachiona, izvo zvandakaita mushure mekuiswa kamwe - ndakatanga chikamu chitsva muhupenyu hwangu… kurarama nezviratidzo zvisingaperi.

Kutsvaga iyo chaiyo chitaridzi

Nepo mhedzisiro yacho ichizogara kwehupenyu hwangu hwese, ini handizvitarise sekuti "ndinorwara" kana kuti ndiri "kugara neAML," nekuti ini handina imwe futi.

Vamwe vakapona vanonzi "vanorarama nechirwere chisingaperi," uye vamwe vakataura kuti "kurarama nezviratidzo zvisingaperi." Icho chinyorwa chinonzwika senge chiri nani kwandiri, asi chero iwo mazwi, vapukunyuka seni vanogona kunzwa sekunge vari kugara vachiita nechimwe chinhu.

Zvandatarisana nazvo kubva pakurapwa

1. Peripheral neuropathy

Iyo chemotherapy yakakonzera kukuvara kwetsinga mutsoka dzangu, zvichikonzeresa kugwinha kana kugwinha, kurwadziwa kwakapinza, zvinoenderana nezuva. Izvo zvakakanganisawo bharanzi yangu. Hazvigone kuenda.

2. Nyaya dzemeno

Nekuda kwekuoma mukanwa panguva yekemotherapy, uye iyo yakareba nguva pandakanga ndisina simba rekuzvidzivirira, hutachiona hwakapinda mumazino angu. Izvi zvakaita kuti vashaye simba nekuora. Rimwe zino rakanga rakaipa zvekuti chandaigona kuita kurara pasofa nekuchema. Mushure mekukundikana mudzi canal, ndakabviswa zino. Yaive imwe ye12 yandakarasa.

3. Kenza yerurimi

Neraki, chiremba wemazino akazviwana pazvaive zvidiki panguva yeimwe yezino yakabviswa. Ndakawana chiremba mutsva - musoro uye mutsipa oncologist - uyo akabvisa zvishoma scoop kunze kwekuruboshwe kwerurimi rwangu. Yakanga iri munzvimbo inononoka uye inononoka-kupora uye inorwadza zvakanyanya kweanenge mavhiki matatu.

4. Graft-versus-host chirwere

GVHD inoitika kana masero emupi wemupi achirwisa zvisizvo mitezo yemurwere. Vanogona kurwisa ganda, kugaya chikafu, chiropa, mapapu, zvinobatanidza matishu, uye maziso. Mune yangu kesi, zvakakanganisa ura, chiropa, uye ganda.

GVHD yematumbo yaive yakakonzera collagenous colitis, kuzvimba kwekoloni. Izvi zvaireva anopfuura mavhiki matatu anosiririsa emanyoka. kwakatungamira kune yakakomba chiropa enzymes iyo ine mukana wekukuvadza ino yakakosha nhengo. GVHD yeganda yakaita kuti maoko angu azvimbe uye ikonzere ganda rangu kuomarara, zvichidzikamisa kuchinjika. Nzvimbo shomanana dzinopa kurapwa uko kunonoka kunonoka ganda rako:, kana ECP.

Ini ndinotyaira kana kukwira makiromita makumi mapfumbamwe kuenda kuKraft Mhuri Ropa Rinopa Center kuDana-Farber muBoston. Ndinorara ndakamira kwemaawa matatu uku tsono huru ichiburitsa ropa paruoko rwangu. Mushini unopatsanura maseru machena asiri kuita. Ivo vanobva varapwa neye photosynthesizing mumiririri, vanovhenekerwa kune UV mwenje, uye vodzoka neDNA yavo yakachinjwa kuti vadzikame.

Ndinoenda vhiki rega rega, kudzika kubva kaviri pasvondo apo izvi zvakauya muna Chivabvu 2015. Vanamukoti vanobatsira kupfuudza nguva, asi dzimwe nguva handigoni kubatsira asi kuchema kana tsono yarova tsinga.

5. Prednisone mhedzisiro

Iyi steroid inotsika pasi iyo GVHD nekudzora kuzvimba. Asi zvakare ine mhedzisiro. Iyo 40-mg dose yandaifanira kutora zuva nezuva makore masere apfuura yakaita kuti kumeso kwangu kuzvitutumadza uye zvakare kushomeka mhasuru dzangu. Makumbo angu aive erabha zvekuti ndakazununguka kana ndichifamba. Rimwe zuva ndichifamba imbwa yangu, ndakawira pasi neshure, ndichiwana imwe yenzendo dzakawanda kuimba yekukurumidzira.

Kurapa kwemuviri uye kuderera kunodzikira - izvozvi 1 mg pazuva - kwakandibatsira kuti ndiwedzere kusimba. Asi prednisone inonetesa immune system uye iri chinhu mune yakawanda squamous maseru kenza eganda andakawana. Ndakavabvisa pahuma yangu, mutsipa wemisodzi, dama, ruoko, mhino, ruoko, mhuru, nezvimwe. Dzimwe nguva zvinonzwa sekuti kungofanana nekuporeswa kwakaita mumwe, imwe isina kusimba kana yakasimudza nzvimbo inoratidza imwe.

Maitiro Andinoita

1. Ndinotaura

Ndinozviratidza pachangu kuburikidza neangu blog. Pandinenge ndine zvinonetsa pamarapirwo angu kana manzwiro andiri kuita, ndinotaura nachiremba wangu, chiremba, uye mukoti. Ndinotora matanho akakodzera, sekugadzirisa mishonga, kana kushandisa dzimwe nzira pandinonzwa kushushikana kana kushushikana.

2. Ndinoita maekisesaizi mazuva ese

Ndinoda tenesi. Nharaunda yetenisi yanga ichitsigira zvisingaite uye ndaita shamwari dzeupenyu hwese. Izvo zvinondidzidzisawo ini kuraira kwekutarisa pane chimwe chinhu panguva pane kutorwa nekutambudzika.

Kumhanya kunondibatsira kumisikidza zvinangwa uye ma endorphins anoburitsa anondibatsira kuti ndigadzikane uye nditarise. Yoga, zvakadaro, yakavandudza bhalansi yangu uye kushanduka.

3. Ndinodzorera

Ini ndinozvipira muchirongwa chevakuru kuverenga nekuverenga apo vadzidzi vanogona kuwana rubatsiro neChirungu, math, uye mimwe misoro yakawanda. Mumakore matatu andanga ndichizviita, ndawana shamwari nyowani uye ndainzwa kugutsikana kwekushandisa hunyanzvi hwangu kubatsira vamwe. Ini ndinonakidzwawo nekuzvipira muDana-Farber's One-to-One chirongwa, uko vapenyu seni vanopa rutsigiro kune avo vari pamatanho ekutanga ekurapwa.

Kunyangwe vanhu vazhinji vasingazvizive, "kurapwa" kwechirwere senge leukemia hazvireve kuti hupenyu hwako hunodzokera kune hwazvaimbove. Sezvauri kuona, hupenyu hwangu post-leukemia hwazadzwa nematambudziko uye zvisingatarisirwe mhedzisiro kubva kumishonga yangu uye nzira dzekurapa. Asi kunyangwe paine chokwadi chekuti aya ari zvikamu zvehupenyu hwangu, ini ndawana nzira dzekutora hutano hwangu, hutano, uye mamiriro epfungwa.

Ronni Gordon akapona neacute myeloid leukemia uye munyori we Kumhanyira Hupenyu Hwangu, iyo yakanzi mumwe we yedu yepamusoro leukemia mablog.