Kugadzirisa Mari dzeHodgkin's Lymphoma Treatment

Zvemukati

• Kubhadhara kurapa 101
• Kushanya kumwe, vazhinji vanopa
• Zvikwereti uye zvirongwa zvekubhadhara
• Vabatsiri vari kwese kwese
• Zvimwe zvekurapa mari
• Zvinyorwa uye zvinowedzera
• Kuchengetedza kubereka
• Therapy uye maturusi ekuramba wakadzikama
• Kubata nekurasikirwa nevhudzi
• Hupenyu hwezuva nezuva
• Kutsvaga zvipfeko zvitsva
• Kudya kune hutano uye kurovedza muviri
• Kuchengeta imba
• Kazhinji mabhiri emwedzi uye kutakura
• Zvemahara zvinhu zvinobatsira chaizvo
• Port mutsago
• Tote ye chemo
• Zororo
• Kutora

Mushure mekugamuchira kuongororwa kwechikamu chechitatu Hodgkin's lymphoma, ndakanzwa manzwiro mazhinji, kusanganisira kutya. Asi chimwe chekutya-kukurudzira zvinhu zvekenza yangu yerwendo zvinogona kukushamisa iwe: kugadzirisa zvinodhura. Panguva yega yega yekugadzwa kwekurapwa, ndakaratidzwa kapepa kairatidzira mutengo wekushanya, zvaizobhadharwa inishuwarenzi yangu, uye nemari yandaive ndakatarisira.

Ndinoyeuka ndichizeza kuburitsa kiredhiti kadhi kangu kasingaperi kuti nditeedzere mari shoma. Kubhadhara ikoko, uye kudada kwangu, kwakaramba kuchidzikira kudzamara ndazoburitsa mazwi ekuti, "Ini handikwanise kubhadhara nhasi."

Mune iyo nguva, ndakaona kuti ndakakundwa sei neangu kuongororwa uye nemitengo inoenderana nazvo. Pamusoro pekudzidza nezve izvo chirongwa changu chekurapa chingave chakaita uye mhedzisiro yazvinokonzeresa, ndakadzidza nezve izvo zvandaizofanira kuribhadhara. Ndakakurumidza kuona kuti cancer yaizotora nzvimbo yemota nyowani yandaitarisira kutenga gore rino.

Uye ini nekukurumidza ndakamhanyira mumitengo yakatowanda yandakanga ndisina kugadzirira, kubva kune chikafu chine hutano kusvika kumawigi.

Izvo zvakaomarara zvakakwana kutarisana nekenza kuongororwa pasina mabhiri ari kuwanda. Nedzimwe nguva, kutsvagisa, uye kuraira, ini ndaunganidza ruzivo rwakawanda pamusoro pekutarisira mitengo yeHodgkin's lymphoma kurapwa - uye ndinovimba izvo zvandakadzidza zvinobatsira iwe, zvakare.

Kubhadhara kurapa 101

Ngatitangei nemari yezvokurapa. Ndine rombo rakanaka kuva neinishuwarenzi yehutano. Yangu inobvisirwa inokwanisika uye yangu yekunze-muhomwe yakakwira - kunyangwe yakaoma pabhajeti rangu - haina kupwanya bhangi.

Kana iwe usina inishuwarenzi yehutano, ungangoda kuongorora sarudzo dzako nekukurumidza sezvazvinogona. Iwe unogona kuve unokodzera kune yakadzikiswa hutano hurongwa kana Medicaid.

Mwedzi wega wega, inishuwarenzi yangu inonditumira Kufungidzira kweMubatsiro (EOB). Gwaro iri rinotsanangura izvo zvinoderedzwa kana kubhadhara inishuwarenzi yako ichapa kune iwo masangano ari kukubhadharira uye izvo zvinodhura zvaunotarisira kutarisira kuve nazvo mumavhiki anotevera.

Iwe dzimwe nguva unogona kubhadharirwa mazuva, vhiki, kana kunyangwe mwedzi mushure mekushanya kune chiremba. Vamwe vevapi vangu vakakwanisa kubhadhara online uye vamwe vakatumira zvikwereti netsamba.

Hezvino zvinhu zvishoma zvandakadzidza munzira:

Kushanya kumwe, vazhinji vanopa

Kunyangwe kushanya kumwe chete kwekurapa, unogona kubhadhariswa nevazhinji akasiyana evanopa hutano.Pandakavhiyiwa kekutanga, ndakabhadhariswa nenzvimbo, chiremba wekuvhiya, chiremba wekuvhiya, rabhoritari yaiita biopsy, uye nevanhu vakaverenga zvabuda. Izvo zvakakosha kuti uzive waunoona, riini, uye chii. Izvi zvinobatsira nekuona zvikanganiso mumaEOBs ako kana pamabhiri.

Zvikwereti uye zvirongwa zvekubhadhara

Kumbira zvikwereti! Zvese kunze kweumwe wevashandi vangu vekurapa akandipa madhora pandakabhadhara zvikwereti zvangu zvizere. Izvi dzimwe nguva zvaireva kuyangarara zvinhu pakadhi rangu rechikwereti kwemavhiki mashoma, asi zvakabhadhara mukufamba kwenguva.

Izvo zvakare zvakakodzera kubvunza kana iwe uchigona kushandisa yehutano kubhadhara chirongwa. Ini ndakakwanisa kuendesa bharanzi yangu hombe kune wechitatu-bato zero zero muzana chikwereti chemubhadharo nemari inokwanisika yebhadharo

Vabatsiri vari kwese kwese

Funga zvine hungwaru pamusoro pekuti vangangove vatsigiri vako vanogona kunge vari papi pakushandisa mutengo. Unogona kukurumidza kuwana rubatsiro munzvimbo dzisingatarisirwe, semuenzaniso:

• Ini ndakakwanisa kubatana nemubatsiri wedhairekitori kuburikidza neangu wandinoshandira uyo akandibatsira kuziva zviwanikwa zviripo kwandiri.
• Ndakanga ndiine mukoti wandakapihwa kuburikidza neinishuwarenzi yangu yaipindura mibvunzo nezve kufukidzwa kwangu uye EOBs. Iye akatoita sebhodhi rinorira apo ini ndanga ndisingazive kwekuenda kuti ndiwane kupi zano.
• Mumwe wevandaishanda navo akange ashanda mune zvekurapa kwemakumi emakore. Akandibatsira kunzwisisa iyo system uye kufamba nenzira dzakaoma hurukuro.

Kubva pane zvakaitika kwandiri, ndakaona kuti kuramba uchibhadharisa zvikwereti zvekurapa kunogona kuita kunge basa renguva isina kuzara. Zviri muropa kuti kuvhiringidzika. Zvakajairika kuti ubvunze kuti utaure nevatariri.

Iwe unofanirwa kuita kuti zvirongwa zvako zvebhiri zvikushandire iwe. Usakanda mapfumo pasi! Ichi hachifanirwe kunge chiri chipingamupinyi chikuru muhondo yako yekurwisa cancer.

Zvimwe zvekurapa mari

Mari dzekurapa dzinoenda pamwe nekenza kuongororwa dzinopfuura mabhiri ekugadzwa uye vanopa hutano. Mari dzekunyorerwa, kurapwa, uye zvimwe zvinogona kuwedzera nekukurumidza. Heano rumwe ruzivo nezve kuvatarisira:

Zvinyorwa uye zvinowedzera

Ndakadzidza kuti mitengo yemishonga inosiyana zvakanyanya. Zvakanaka kutaura nachiremba wako nezvezvinodhura. Yese mirau yangu ine generic sarudzo. Izvi zvinoreva kuti ndakakwanisa kuvawanira iwo mitengo yakachipa paWalmart.

Dzimwe nzira dzekudzikisa mutengo dzinosanganisira:

• Kuongorora zvemuno zvisina purofiti. Semuenzaniso, yemuno isiri-purofiti inonzi Hope Cancer Resources vanobatana neangu oncologist hofisi yekupa rubatsiro nekutenga zvinyorwa zvine chekuita nekurapwa.
• Kutsvaga pamhepo kunogona kukubatsira iwe kuti uwane madhora kana zvikwereti. Kana iwe ukafunga kutora zvinowedzera, ita nekukurumidza mutengo kuenzanisa: Zvinogona kunge zvakachipa kuzvitora online.

Kuchengetedza kubereka

Ini ndanga ndisingatarisire kudzidza kuti kurasikirwa kwekubereka kunogona kuve mhedzisiro yekurapa. Kutora matanho ekuchengetedza mbereko kunogona kudhura, kunyanya kune vakadzi. Ini ndakasarudza kunzvenga iyi bhezari, sezvo inogona kunge yakanonoka kutanga kwekurapwa kwangu.

Kana iwe uchifarira kuchengetedzwa kwekubereka, bvunza wako inishuwarenzi nezve yako kufukidzwa. Iwe unogona zvakare kutarisa pamwe neako mubatsiri murongi kuti uone kana iwe uchigona kugamuchira rubatsiro kubva kune chero mapurogiramu anopiwa neako waunoshandira.

Therapy uye maturusi ekuramba wakadzikama

Kurarama nekenza kunogona kunetsa. Dzimwe nguva ndainzwa kunge ndiri muhondo huru yehupenyu hwangu. Ndicho chikonzero nei zvichikosha kuti unzwe kutsigirwa uye kudzidza nzira dzakanaka dzekutarisana nadzo.

Asi kunyangwe neinishuwarenzi inovhara, kurapwa kunowanzo kudhura. Ini ndakasarudza kuita mari iyi ndichiziva kuti yangu yakawanda yekubuda muhomwe yeinishuwarenzi yangu yehutano ichakurumidza kusangana. Izvi zvaireva kuti ini ndaigona kuenda kurapi kwemahara kwakawanda kwegore.

Kana iwe usiri kuda kushandisa mari kurapa, bvunza waunoshandira, nzvimbo dzekurapa dzemuno, uye zvemuno zvisina purofiti kuti uone kana uchigona kuwana rubatsiro. Imwe sarudzo ndeyekuenda kumapoka ekutsigira kana kuwiriraniswa neanopona anogona kupa zano.

Uye kune dzimwe nzira dzekusunungura kushushikana. Zvikuru zvakandishamisa, vanamukoti vangu vechemotherapy vakandikurudzira kuwana masaji! Kune masangano anopa masasi chaiwo kune varwere vegomarara, senge Angie's Spa.

Kubata nekurasikirwa nevhudzi

Mazhinji marapirwo ekenza anokonzeresa kurasikirwa nevhudzi - uye mawigi anogona kuve echinhu chinodhura chekugara nekenza. Akanaka, vhudzi remunhu mawigi anodhura mazana kana zviuru zvemadhora. Synthetic wigs anodhura zvakanyanya asi kazhinji zvinoda basa kuti zviite sevhudzi rechisikigo.

Kana iwe ukatora wigi, tarisa YouTube kana kubvunza bvudzi rako stylist matipi ekuti ungaita sei iyo wig isanyanya kuoneka. Kucheka, imwe shampoo yakaoma, uye kuvanza kunogona kuita mutsauko mukuru.

Kana zvasvika pakubhadhara wigi yako, bvunza yako inishuwarenzi kana yakavharwa. Ive neshuwa yekushandisa izwi rekuti "cranial prosthesis" - ndiyo kiyi!

Kana wako inishuwarenzi asingavhare wigi, edza kubata wig vatengesi zvakananga. Vazhinji vachapa dhisikaundi kana mahara nekutenga kwako. Kune mamwezve masangano asinganetsi anopa emahara mawigi. Ndakagamuchira mahara mawigi kubva ku:

• Verma Nheyo
• Shamwari Dziri Padivi Rako
• American Cancer Society Wig Bank, iyo ine zvitsauko zvemuno

Rimwe sangano, rinonzi Rakanaka Zvido, rinopa mahara masherefu kana misoro yekumonera.

Heino mufananidzo wangu ndakapfeka chivharo wigi yandakatambira kubva kuVerma Foundation.

Hupenyu hwezuva nezuva

Kunze kwekushandisa pakurapa, mutengo wehupenyu hwezuva nezuva negomarara hwakakosha. Uye kana iwe uchida kutora nguva kubva kubasa rakabhadharwa kuti utarise pakurapwa, kufambirana nemabhiri kunogona kuoma. Hezvino izvo zvandakadzidza:

Kutsvaga zvipfeko zvitsva

Kana iwe uchirapwa gomarara, zvinogona kubatsira kuve neimwe mbatya nyowani yekugadzirisa shanduko mumuviri wako. Iwe unogona kusangana nekuputika seimwe divi mhedzisiro yekurapa. Kana, iwe unogona kunge uine chiteshi chakaisirwa kubvumira nyore kupinda mutsinga.

Chero zvazvingaitika, pane nzira dzinodhura dzekuwana mbatya nyowani, kusanganisira kurova nzira yekubvumidza kana kutenga masekondi. Uye yeuka kuti vanhu vachada kukubatsira. Funga kugadzira runyorwa-runyorwa kuchitoro chako chaunofarira chembatya uye nekuchigovana.

Kudya kune hutano uye kurovedza muviri

Kuchengetedza chikafu chine hutano uye kugara uchishingaira sezvinobvira mazano akanaka - asi dzimwe nguva zvakaoma pabhajeti.

Kuita kuti zvive nyore, vavarira kuve wakasununguka kune vanhu vanogona muhupenyu hwako kupa. Vaviri vevandaishanda navo vakatora muridzi wekumisikidza chitima chekudya kwandiri panguva yekurapwa kwangu. Ivo vakashandisa ino webhusaiti inobatsira kuchengeta wese akarongeka.

Ini zvakare ndinokurudzira kuisa inotonhorera pavheranda rako uye nekuwedzera echando mapaketi apo vanhu vari kuendesa chikafu kwauri. Izvi zvinoreva kuti chikafu chako chinogona kuendeswa pasina iwe nemhuri yako muchivhiringidzika.

Ndakapihwawo akawanda makadhi echipo ekuendesa. Izvi zvinouya zvinobatsira kana iwe uri mune chidiki. Imwe nzira inoshanda shamwari yavanopinza nayo ndeyokugadzira mabhasiketi ezvipo zvezvikafu zvako zvaunofarira, zvinwiwa, uye zvinwiwa.

Kana zvasvika kune chiitiko chemuviri, funga kubata yako yemuno American Cancer Society hofisi. Yangu inopa mwaka kudya zvinovaka muviri uye kugwinya zvirongwa zvemahara. Iwe unogona zvakare kutarisa munzvimbo yako yemunharaunda, nzvimbo dzepedyo, uye masitudiyo ehutano kuti uone paunogona kutora chikamu mumakirasi emahara kana kana vachipa miedzo yevatengi vatsva.

Kuchengeta imba

Pakati pekugara hupenyu hwako hwakajairika uye kurwisa kenza, zvakajairika kuti unzwe kupera simba - uye kuchenesa kungave chinhu chekupedzisira iwe chaunonzwa kuda kuita. Kuchenesa masevhisi anodhura, asi pane zvimwe sarudzo.

Ini ndakasarudza kunyorera rubatsiro kuburikidza neKuchenesa kune Chikonzero. Sangano iri rinokubatanidza nebasa rekuchenesa munzvimbo yako uyo achachenesa imba yako mahara kwenguva shoma.

Shamwari yangu - akaonekwa aine kenza muvhiki imwe chete yandaive - akashandisa imwe nzira. Akagadzira rondedzero yemabasa aaida kubatsirwa nawo uye kurega shamwari dzichinyorera kune mamwe mabasa. Chikwata chese chevanhu chaigona kukunda runyorwa muchikamu chidiki chenguva yaingadai yakamutorera kuti aite ega.

Kazhinji mabhiri emwedzi uye kutakura

Kana iwe uchinetsekana nemari yaunogara yemwedzi nemabhiri kana nemutengo wekufambisa kuenda kunzvimbo dzakatarwa, zvinogona kubatsira kutarisa masangano emuno asiri epundutso. Semuenzaniso, munzvimbo yangu, Hope Cancer Resources inogona kupa vamwe vanhu rubatsiro rwemari yekunyorerwa, rendi, zvinoshandiswa, kubhadhara mota, gasi, uye mari yekufambisa yekurapa kunze kweguta. Ivo zvakare vanopa kutakura kune vanogadzwa mukati memakumi matanhatu mamaira nharaunda.

Izvo zvisina-purofiti zviwanikwa zvinowanikwa kwauri zvinoenderana nenzvimbo yako. Asi zvisinei nekwaunogara, vanhu muhupenyu hwako vangangoda kupa rutsigiro rwavo. Kana vaunoshanda navo, shamwari, kana vadikanwa vachida kuronga iwe fundraiser iwe - rega ivo!

Pandakatanga kuswededzwa, ndainzwa kusagadzikana nepfungwa iyi. Nekudaro, kuburikidza nevaya vanotsvaga mari, ndakakwanisa kubhadhara zviuru zvemadhora kumabhiri angu ekurapa.

Imwe nzira yakajairika yekuti shamwari vakutsvakire mari ndeyekuita masevhisi akaita seGoFundMe, iyo inobvumidza ako ekubatanidza kuti apinde mumagariro avo. GoFundMe ine yekubatsira nzvimbo ine toni yemazano ekuti unganyatso kushandisa sei yako fundraiser.

Vanhu muhupenyu hwangu vakawanawo nzira dzakasarudzika dzekutsvaga mari yekundibatsira. Chikwata changu kubasa chakatanga pfungwa "yekupfuudza ngowani" nekusiya kapu yekofi padhesiki rangu, sezvo ndaisazodzokera muhofisi kwemavhiki. Vanhu vanogona kudonha nekupa mari sezvavaikwanisa.

Imwe pfungwa inotapira yakabva kushamwari inodiwa anova chipangamazano weScentsy. Akaparadzanisa komisheni yake kubva pamwedzi wese wekutengesa neni! Pakati pemwedzi waakasarudza, akagashira zvese zviri online uye mu-munhu pati mukukudzwa kwangu. Shamwari dzangu nemhuri vaida kutora chikamu.

Zvemahara zvinhu zvinobatsira chaizvo

Ndapedza maawa akawanda Googling rubatsiro rwunowanikwa kune vanhu vakatarisana nekenza. Ndiri munzira, ndakadzidza nezve zvemahara zvinhu uye zvinopihwa - uye zvimwe zvacho zvinobatsira zvakanyanya:

Port mutsago

Kana iwe uine chiteshi chenguva yekurapa kwako, iwe unogona kuona kuti hazvina kugadzikana kupfeka bhandi repachigaro. Sangano Tariro neHugs rinopa mapiro emahara anonamatira kubhandi rako remagaro! Ichi chinhu chidiki chakaita mutsauko mukuru muhupenyu hwangu.

Tote ye chemo

Mainini vangu vaitapira, avo vakarova gomarara repazamu, vaiziva kuti ndaizoda bhegi rakazara nezvinhu kuti ndiende naro kuchemotherapy inoita kuti kurapwa kuve nyore. Saka, akandipa chipo chemunhu. Nekudaro, iwe unogona kuwana yemahara tote kubva kuLydia Project.

Zororo

Chimwe chezvinhu zvinonyanya kushamisa zvandakawana ndechekuti varwere vegomarara, uye dzimwe nguva vanochengeta, vanogona kuenda pazororo (kunyanya) remahara. Kune akati wandei asiri mapundutso avo vanonzwisisa kukosha kwekuzorora kubva muhondo yako yekurwisa kenza kunogona kuve kwehutano hwako. Heano mashoma.

• Kutanga Kudzika
• Camp Kurota
• Tora Zororo kubva kuCancer

Kutora

Kwandiri, dzimwe nguva zvave zvichikurudzira kufunga nezve kudzora mitengo yekenza. Kana iwe uchinzwa saizvozvo, ndapota ziva kuti zvine musoro zvachose. Iwe uri mune mamiriro iwe iwe usina kukumbira kuve mukati uye ikozvino iwe unongoerekana watarisirwa kuvhara mari.

Tora mweya wakadzika, uye yeuka kuti kune vanhu vanoda kubatsira. Zvakanaka kuudza vanhu zvaunoda. Zviyeuchidze kuti uchapfuura neizvi, imwe nguva panguva.

Destiny LaNeé Freeman mugadziri anogara muBentonville, AR. Mushure mekuonekwa kuti ane Hodgkin's lymphoma, akatanga kuita ongororo yakadzama pamusoro pekugadzirisa chirwere ichi uye nemitengo inouya nacho. Destiny mutendi mukugadzira nyika ive nzvimbo irinani uye anotarisira kuti vamwe vanobatsirwa neruzivo rwake. Iye zvino ari kurapwa, aine yakasimba rutsigiro system yemhuri neshamwari kumashure kwake. Munguva yake yekusarudzika, Destiny anofarira lyra uye yemuchadenga yoga. Unogona kumutevera pa @destiny_lanee pa Instagram.