Nyowani Rheumatoid Arthritis App Inogadzira Nharaunda, Insight, uye Kufuridzira Kune Avo Vanorarama neRA

Zvemukati

• Taura izvi munhaurirano dzeboka
• Tsvaga akakwana RA mutambo
• Verenga kumusoro pane dzichangoburwa RA nhau
• Kutanga kuri nyore

Mufananidzo naBrittany England

Taura izvi munhaurirano dzeboka

Zuva rega rega revhiki, iyo RA Healthline app inogadzira hurukuro dzeboka dzinoongororwa negwara kana mutsigiri anogara neRA.

Misoro inosanganisira:

• marwadzo manejimendi
• kurapwa
• dzimwe nzira dzokurapa
• zvinokonzera
• kudya
• kurovedza muviri
• Hutano hwepfungwa
• nezveutano
• hukama
• shanda
• matambudziko
• zvakanyanya

Jessica Gottlieb, uyo blogs nezve kugara neRA paLife neRA, anoti mapoka anopa mukana wekusarudza misoro zvichienderana nezvamunofarira muzuva iro.

“Kuva nechirwere chakaita seRA kungopfeka pauri pamoyo. Kana ndiri kunyatsotsvaga kuchera mune chimwe chinhu chakanyatsojeka, sekufamba nenzira yehutano, uye handidi kufunga nezvezviratidzo kana chikafu kana kurovedza muviri, ndinogona kungoita zero pane icho chinhu chimwe chete, "anodaro.

“Dzimwe nguva ndinoda kutarisa kuti vamwe vanhu vari kubata sei basa ravo. Basa rakaoma izvozvi, uye kuva nenzvimbo yekukurukura izvo hazvina zvematongerwo enyika, hushamwari hunonyengera, uye vatinoshanda navo mutambo wekuchinja, "Gottlieb anowedzera.

Wendy Rivard, uyo mablog paKutora iyo Yakareba Nzira Kumba, anobvumirana.

"Munguva yakapfuura apo ini ndakatora chikamu mumapoka ekutsigira RA, misoro iri munzvimbo dzese uye dzimwe nguva haina basa nemamiriro angu ezvinhu," anodaro.

Iye anonakidzwa nemararamiro ehupenyu uye epfungwa uye emanzwiro hutano mapoka.

Emrich anotumira kazhinji muKutiza kubva kuRA, Lifestyle, Mazuva ese Hupenyu, General, uye Mapoka mapoka.

“Panguva ino murwendo rwangu rweRA, iyi ndiyo misoro inondinakidza pachangu. Ndakashanyirawo mamwe emamwe mapoka kuitira kuti ndipe mazwi ekurudziro uye zvakaitika kune avo nhengo dziri kutsvaga mazano nezano, ”anodaro.

Mapoka acho anomuyeuchidza nezve yekare-foramu forum neakasiyana masamu-maforamu ezvinyorwa zvakasiyana.

"Mhinduro dzakapetwa dzinoita kuti nhaurirano dzinotevera dzive nyore, izvo zvinozotibatsira tese kutsigirana mukati menzvimbo ino iri kukura yeRA," Emrich anodaro.

Tsvaga akakwana RA mutambo

Mazuva ese, iyo RA Healthline app inowirirana vashandisi nedzimwe nhengo dzemunharaunda. Nhengo dzinogona zvakare kutarisa nhengo dzemaprofile uye kukumbira kuenzanisa ipapo ipapo.

Kana mumwe munhu achida kufanana newe, unoziviswa ipapo ipapo. Pane imwe nguva yakabatana, nhengo dzinogona kutumira mameseji uye kugovana mafoto neumwe neumwe ipapo.

Gottlieb anoti chinowirirana chinomupa simba mukati memazuva ake akaomesesa.

“Shamwari yangu nguva pfupi yadarika yakaudza murume wangu kuti ndiri mukadzi akagwinya waanoziva. Uye iro raive zuva mushure mekunge ndachema muhofisi mangu nekuti ndaida kumhanya uye handina kukwanisa, ”anodaro. "Ini ndinowanzo mhanya mamaira angangoita matatu, uye musi iwoyo makumbo angu akanzwa kunge abatwa nesope."

"Pamusoro pekusawana iyo endorphin rush yandaitarisira (uye yainyatsodikanwa), ndakayeuchidzwa kuti handife ndakamhanya imwe marathon, kuti chero chinhu chinopfuura mamaira mashanu chinosiya tsoka dzangu dzichinzwa senge dzakagadzirwa negirazi, uye kuti kweupenyu hwangu hwese ndichave murwere, ”anodaro Gottlieb.

Kunyangwe achitenda mushonga, achiri nemazuva akaoma.

“Vanhu vari paapp iyi vanonzwisisa kuti tinogona kutenda izvo zvatiinazvo uye zvakadaro kuchema kurasikirwa kwehutano hwedu. Iko kusimbisa munzira dzakawanda kwazvo. RA chinhu chisinganzwisisike. Hupenyu hwangu hwachinja, uye ndine rombo rakanaka nekuti mishonga yakandishandira. Izvo zvisingaonekwe nevanhu kunyange zvichinetsa, "anodaro.

Rivard anogona kurondedzera. Nekuti vanhu vazhinji vaari padyo navo havana RA, kugona kubatana pakarepo nemumwe munhu ane ruzivo rwekutanga rwezvaari kuitika zvinomubatsira kuti asanyanya kusurukirwa.

"Uye kuti handisi ndega ndine iyo nyaya kana kunetseka," anodaro.

Verenga kumusoro pane dzichangoburwa RA nhau

Kana iwe uri mumamiriro ekuverenga pane kusangana nevashandisi, iyo Discover chikamu cheapp chinosanganisira zvinyorwa zvine chekuita nemararamiro uye RA nhau, zvese zvakaongororwa neveHealthline varapi vehunyanzvi.

Mune yakasarudzwa tebhu, tsvaga zvinyorwa nezve kuongororwa uye sarudzo dzekurapa, pamwe neruzivo nezve kiriniki miedzo uye yazvino RA tsvagiridzo.

Nyaya dzekurera muviri wako kuburikidza nehutano, kuzvitarisira, uye hutano hwepfungwa zviripo. Uye iwe unogona kunyange kuwana pachedu nyaya uye zvipupuriro kubva kune avo vanogara neRA.

"Chikamu cheDiscover chinopa muunganidzwa wakanyatsorongedzwa wezvinyorwa kubva Healthline iyo inotaura zvakawanda nezveRA pane kuongororwa, zviratidzo, uye kurapwa," anodaro Emrich. "Parizvino, pane muunganidzwa wenyaya unotaura nezvehutano hwepfungwa wandinowana uchibatsira zvakanyanya."

Rivard anokoshesa kuve neruzivo rwekunyatso tsvagiswa, ruzivo rwekutsvagiswa pamunwe wake.

“Ndiri mukoti, saka ndinoda ruzivo rwakanaka, rwune humbowo. Ruzivo rwuri muchikamu cheDiscover rwakavimbika uye rwakakosha zvikuru, kunyanya izvozvi, ”anodaro.

Kutanga kuri nyore

Iyo RA Healthline app inowanikwa paApp Store neGoogle Play. Kudhanilodha iyo app uye kutanga kuri nyore.

“Kunyoresa purogiramu yeRA Healthline kwaive nyore. Unogona kugoverana ruzivo rwakawanda kana rwushoma nezvenyaya yako yeRA yaunoda, ”anodaro Emrich.

"Ndinoonga chaizvo kugona kuisa mapikicha akati wandei muprofile yako ayo anoratidza zvauri uye zvaunofarira zviri. Ichi chidiki chinhu chinonyatso kuita kuti iyo app inzwe seyakavanzika, ”anodaro.

Pfungwa yekureruka inonyanya kukosha munguva dzanhasi, anowedzera Gottlieb.

“Ino inguva yakakosha yekushandisa app. Pandakanga ndichangobva kuongororwa, vashandisi venhau vezvemagariro vakandibatsira kufamba nenzira yangu itsva. Izvo hazvizoitika izvozvi, saka kutsvaga nzvimbo yakaita RA Healthline kwakakosha kwazvo, ”anodaro.

"Haufanire kutora chikamu mune zvematongerwo enyika kana kutaura kweCOVID kana kugumbura vanhu nekusada kuita hurukuro idzi," anowedzera. "Hongu, akakodzera, asi kana muviri wako uchikushandira, zvakakosha kuti nharaunda yerheum pamwe chete kuti mugovane ruzivo, kurudziro, kana mifananidzo shomanana yembwanana."

Dhawunirodha app apa.

Cathy Cassata munyori akazvimiririra uyo anonyanya kugadzirisa nyaya dzakakomberedza hutano, hutano hwepfungwa, uye hunhu hwevanhu. Ane hunyanzvi hwekunyora nemanzwiro uye nekubatana nevaverengi nenzira inonzwisisika uye inobata. Verenga zvimwe zvebasa rake pano.