Kuwana Rutsigiro Pamhepo: Multiple Myeloma Blogs, Foramu, uye Mabhodhi eMessage

Zvemukati

• Chii chinonzi forum?
• Multiple myeloma maforamu uye mameseji mabhodhi
• Multiple myeloma mablog
• Tora woenda nazvo

Multiple myeloma chirwere chisingawanzo. Chete 1 pavanhu gumi nevaviri vanowana gomarara iri munguva yeupenyu hwavo. Kana iwe wakamboonekwa uine multiple myeloma, zvinonzwisisika kunzwa wakasurukirwa kana kuremerwa.

Kana iwe usina mumwe munhu kuti apindure mibvunzo yako yezuva nezuva kana mumwe munhu anogovera zvaunotya uye kushungurudzika, zvinogona kunzwa kusurukirwa zvakanyanya. Imwe nzira yekuwana kusimbiswa uye rutsigiro ndeyekushanyira akawanda myeloma kana general cancer cancer group. Kana pasina mamwe mapoka ekutsigira kwaunogara kana iwe usingade kufamba, unogona kuwana nyaradzo nenharaunda yaunotsvaga muforamu yepamhepo.

Chii chinonzi forum?

Foramu iboka repamhepo rekukurukurirana kana bhodhi uko vanhu vanotumira mameseji nezveimwe nhaurwa. Meseji yega yega uye mhinduro dzayo dzakabatanidzwa pamwechete muhurukuro imwechete. Iyi inonzi tambo.

Pane foramu yeakawanda myeloma, unogona kubvunza mubvunzo, kugovana nyaya dzevanhu, kana kuwana nhau dzichangoburwa pamushonga wemyeloma. Misoro inowanzo kuputswa kuita zvikamu. Semuenzaniso, kupfungaira myeloma, mibvunzo yeinishuwarenzi, kana kutsigira musangano musangano.

Iyo foramu inosiyana nekamuri yekutaura nekuti iwo mameseji akachengetwa. Kana usiri online kana mumwe munhu akatumira mubvunzo kana kupindura mumwe wemibvunzo yako, unogona kuiverenga gare gare.

Mamwe maforamu anotendera iwe kuti usazivikanwe. Zvimwe zvinoda kuti iwe upinde ne email kero uye password. Kazhinji, moderator anotarisa zvirimo kuti ave nechokwadi chekuti chakakodzera uye chakachengeteka.

Multiple myeloma maforamu uye mameseji mabhodhi

Heano mashoma mashoma maforamu myeloma maforamu ekushanyira:

• Cancer Vanopona Network. IAmerican Cancer Society inopa iyi bhodhi rehurukuro kune vanhu vane myeloma yakawanda nemhuri dzavo.
• Varwere Vakangwara.Iyi foramu foramu chishandiso chevanhu vanobatwa neakawanda akasiyana mamiriro ehutano, kusanganisira akawanda myeloma.
• Iyo Myeloma Beacon. Iyi foramu, iyo inoburitswa nesangano risingabatsiri muPennsylvania, yanga ichipa ruzivo nerutsigiro kune vanhu vane yakawanda myeloma kubvira 2008.
• Varwere Seni. Iyi foramu-yakavakirwa saiti inovhara vangangoita 3,000 mamiriro ekurapa uye ine vanopfuura mazana matanhatu nemakumi mashanu evatori vechikamu vanogovana ruzivo.

Multiple myeloma mablog

Iyo blog ndeye magazini-senge webhusaiti uko munhu, sangano risingabatsiri, kana kambani inotumira zvipfupi zvinyorwa zvine ruzivo nenzira yekutaurirana. Masangano ecancer anoshandisa mablog kuita kuti varwere vavo vagare vachiziva nezve marapirwo matsva uye vanowana mari. Vanhu vane myeloma yakawanda vanonyora mablog senzira yekugovana ruzivo rwavo, uye kupa ruzivo uye tariro kune avo vachangobva kuongororwa.

Chero iwe paunoverenga blog, ramba uchifunga kuti ivo vanogona kunge vasina kuongororwa nezvekurapa kwekurapa. Chero ani anogona kunyora blog. Zvinogona kuve zvakaoma kuziva kuti ruzivo rwauri kuverenga nderwechokwadi pakurapa.

Iwe unenge uri mukana wekuwana ruzivo rwakakwana pane blog kubva kusangano rekenza, yunivhesiti, kana nyanzvi yezvekurapa senge chiremba kana mukoti wekenza pane pane yakatumirwa nemunhu. Asi ega mablogiki anogona kupa yakakosha pfungwa yekunyaradza uye tsitsi.

Heano mashoma mablog anozvipira kune akawanda myeloma:

• International Myeloma Foundation. Iyi ndiyo hombe musangano wemyeloma, uine vanopfuura mazana mashanu nemakumi mashanu nemakumi mashanu enhengo munyika zana nemakumi mana.
• Akawanda Myeloma Research Foundation (MMRF). Iyo MMRF inopa blog-yakanyorwa blog kune yayo webhusaiti.
• Myeloma Boka. Iyi isingatendeswe nemurwere inotyairwa ine peji reblog rine nyaya nezve dzakawanda myeloma fundraising zviitiko uye nedzimwe nhau.
• Insight kubva kuDana-Farber. Imwe yenyika inotungamira kenza nzvimbo inoshandisa blog yayo kugovana nhau nezvekufambira mberi kwekutsvaga uye nzira dzekurapa.
• MyelomaBlogs.org. Saiti ino inosanganisa mablog kubva kune vanhu vakasiyana siyana vane yakawanda myeloma.
• Kona yaMargaret. Pane ino blog, Margaret anorondedzera kurwisa kwezuva nezuva uye kubudirira kwekugara uchipfungaira myeloma. Iye ave achishingairira blogging kubvira 2007.
• NguvaWifesBlog. Mushure mekunge murume wake, Tim, aonekwa aine multiple myeloma, mukadzi uyu naamai vakasarudza kunyora nezve hupenyu hwavo "paMM rollercoaster."
• Dhonza M yeMyeloma. Iri blog rakatanga senzira yekuti munyori arambe achichengetedza mhuri neshamwari, asi zvakazopedzisira zvave zvekushandisa kune vanhu vane gomarara iri pasi rose.

Tora woenda nazvo

Kana iwe wanga uchinzwa kusurukirwa kubva pawakawandisa myeloma kuongororwa, kana iwe uchingoda imwe ruzivo kuti ikubatsire kukutungamira kuburikidza nekurapwa, iwe uchaiwana pane imwe yemaforamu mazhinji uye mablog anowanikwa online. Sezvaunotarisa pamapeji ewebhu aya, yeuka kusimbisa chero ruzivo rwaunowana pane blog kana foramu nachiremba wako.